I'm sure are some of you out there who are caring for someone who does not have dementia, but the vast majority of posts seem to relate to caring for folks with Alzheimer's or other dementia. I know there a lot of commonalities in caregiving issues, no matter the condition, but there are a lot of differences as well. I don't have any particular questions at this time, just wondering what kinds of things other caregivers of non-dementia folks have to say. For example, although my husband has Parkinson's his cognition is still very good (maybe a little more trouble multi-tasking, but he's always kind of been that way). He uses a walker and is extremely careful, so no falls to date (knock wood); he also is very diligent about exercising. We're both sad we can't do things we used to, especially travel long distance, but we're trying to figure that out. He also really misses all the work he used to do outdoors.
Blessings to you
eloise
It’s wonderful that your husband continues to exercise! Encourage him in that all you can as it will be huge in keeping that mobility going as long as possible
So much to learn out there. I am quite addicted to this forum and all I have learned here has helped me enormously. Sometimes I also think, since I am not doing hands on in home care giving that I am steeping myself too much in the subject of aging, my own, my partner's, my brothers, our friends. That I should spend more of the time back in the garden, sewing and reading and museums. I am new to it here and here only since February, not willing to give it up yet, or even cut down I guess; it has been an enormous support to teacher for me. I am really enjoying seeing the responses from caregivers here, who have always been so helpful with answers. I know more about them by what they are doing.
"He also really misses all the work he used to do outdoors." Probably involves a lot of yard work, but if he likes growing things, can you set up any kind of indoor garden? Herbs? Plants? I get satisfaction being able to start/grow/maintain plants. The current house I am in has a "sun room", which I use for plants, including a place to start my tomatoes and peppers. It is also a safe place, the cats can't get into the dirt or chew the plants!
Perhaps also, for at home, find small crafts, etc that he or both of you can work on together. Visit pet shelters, provided neither of you are allergic, to give some love/attention to those waiting for a home - cats might be easier, less chance for a dog to jump/knock you over, but all these poor animals generally welcome free attention!
While it isn't a lot, take some comfort in the fact that he DOESN'T have any real cognitive issues! Sad to have to curtail once loved activities, but dementia adds a whole new dimension to care-giving, which you have seen when reading posts here!
the only thing I can tell you is try to maintain some kind of enjoyable hobby. I’ve spiraled down physically but keep replacing what I can’t do any longer ( gardening, photography, refinishing furniture ) with things I can do, recently started crocheting and freeform crochet. Imo to keep your sanity you need to do something “ useful” and enjoyable
See All Answers