What is the sequence of symptoms of multiple system atrophy (MSA)? Not looking for exact answers as I know "everone is different," but others' experiences might help me be prepared. Wife so far has Pisa symptom, very poor handwriting, slurred speech, some lack of balance, is using cane and/or walker, etc. What are the symptoms that might next happen?
People are usually referring to that very thing when counseling self care.
I have seen that caregivers do not eat properly, get enough rest, doing heavy lifting that hurts, isolate and basically forget about themselves in the forest of caregiving.
You still matter and you will be a better husband for taking time for you and pleasure. I am sure your wife would tell you the same.
Any hints on how to weather this storm together? Everyone says to take care of myself, but I'm not sure what that means. Sometimes I wonder if doing something that I might think is taking cae of myself is just a selfish excuse for doing something I want to do for MY pleasure.