She said she wanted to come home, to our house. I abided by her wishes but I don't think others thought that because she was not vocal about it. It was harder than hard taking care of her. I even asked her if she wanted to go to my brothers or back to the nursing home because I felt I was not taking good care of her. I gave her one pill of ativan per the nurses instruction and she became delirious and flailing about. When I became very upset with the hospice nurses, they sent two the next day. I guess they were afraid of liabilty, but I was furious. I have no one to really talk to about this. My husband is patient but not any help and my son and his wife, they all say I did everything I could. My brother and his family are estranged. He was never any help, although I think he was her favorite one. I could not leave her in the nursing home. We had always said if one of us died the other would be there. I have been recently diagnosed bi-polar.I did everything for her for 25 years.
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You meniton a recent diagnosis with Bipolar Disorder. Which version?
What meds are you taking and how long have you been taking them?
Are your medications workig?
Are you seeing a therapist to help you with the bipolar and if so how often?
If you have a therapist, have you disgussed this guilt with your therapist? 4 years in an incredibly long time to be carrying this burden of guilt. This tells me that you have been long stuck in the grieving process. Google healthy and unhealthy grief to see more on this. The fact that your family has not been able to help you is a sign that you very likely need an objective 3 person to help you work through off all this mess. At this point, your grief sounds confiicted as seen in this extreme guilt.
I wilsh you well in this journey
Your mom wanted to be surrounded by her loved ones when her time came, and you did the right thing by bringing her home. I've said it before in this forum, and I'll say it again. There's nothing scarier for someone who knows his/her life is coming to an end than the thought of dying alone or surrounded by strangers -- which is pretty much the same thing.
You did everything you could and couldn't for your mother, and in retrospect perhaps there were a few things you could have done better. But there's no point in blaming yourself for not being perfect. Besides, your mother knew that you loved her deeply and that for 25 years there really wasn't anyone else you could count on. ... And she was grateful for every single thing you did to enhance the quality of her life. What matters now is how you're going to fill that void in a positive manner and begin the healing process.
Wherever your mom is now, she's smiling at you and her spirit will always be with you. And she definitely wants you to be happy and move forward.
I send you a big hug from NYC, and keep us posted.
-- ED