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TheBoogs Posted November 2014

Mom won't stop with the "I wanna die" talk...

My mom's been going through chemo and radiation for rectal cancer. She has a good prognosis. She hasn't lost any hair nor has gone through "extreme" side effects. She has a lot of discomfort with burning and chaffing also bleeding when she uses the bathroom.

She has ONE more day left of radiation! We're hoping the small tumor has dissolved into nothing, however if it didn't, my mom is old school -- she does NOT want to be opened up for surgery. She thinks that once they open you up -- that's it. So, we respect her decision to not go with surgery and just do the "maintaining", which is going to be another whole set of siblings trying to go back and forth driving mom here and there. So, ... yeah.

If you are religious, or even spiritual, would you mind saying a prayer for my mom that her tumor is gone? Tomorrow is the last day and she has three weeks to know if it has been changed to non-cancerous. She said she wants to die if the tumor is still there. I get it. Cancer sucks the life out of you, but I want my mom to have quality of life. Her worst fear is having a colostomy bag, because my grandfather committed suicide because he had to get one for his illness back in 1970. Times have changed though.

Regardless, please, if you can, all I'm asking is to just pray for her, or send some positive energy.

Thanks so much for reading this....

TheBoogs Dec 2014
Thank you. We found out that the chemo and radiation has lessened the tumor, but the cancer is still there and needs to be removed. She doesn't want to be operated on. She's a "healthy", vibrant 76 year old who can live a long life -- but I have to respect her wishes if she chooses not to. She wants a few more weeks with the radiation, but it's going to hurt her so much. (It burns her bottom up severely.) Please pray that the cancer is gone or goes away. I've been depressed all holiday long and I know that 2015 is going to be super challenging.

Thank you in advance.

vja1951 Dec 2014
I will pray for her. God bless you both.

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TheBoogs Nov 2014
Thank you so much for listening, empathizing and just giving the best advice you can.

Mom woke up yesterday morning...smiling! She said, "It's amazing! The pain went away!"

I HONESTLY believe that between this site and all of the prayers and many others who have prayed for her besides myself have truly made a difference. I read somewhere that her type of pain from the radiation itself may never go away. The past couple of days, she has gone out to dinner, went to family dinners and enjoyed herself, laughing and joking like she used to.

I'm in awe.

So, thank you. Thank you!!!

I'm so relieved. I totally understand that the lack of quality of life may want to bring some to that decision of 'turning the lights out' --- but what if there was a silver lining like my mom just had? I mean, what if that pain, that misery can slip away somehow? That's the scary part of it because she wasn't terminal. I can totally understand a terminal patient who is just going to keep declining and declining. And yes, part of me wants to keep her here forever, she is such a vibrant women.....except when illness brings her down unfortunately.

Again, just thank you.

freqflyer Nov 2014
I think it is a very normal reaction when diagnosed with cancer and after having surgery, then dealing what whatever meds you are given, to want to die.

I had the same reaction when I had cancer back in 2009.... I had wished I would have died on the operating table.... there is a lot of emotions going on, a lot of deer in headlights moments, and those darn meds which caused a whole variety of non-user friendly side effects. It was a case of the medicine being worse than the illness itself.

TheBoogs, your Mom will do fine, give her time, there is just so much emotionally for her to deal with, and she's from a generation where *cancer* isn't discussed, it's always hush hush.

Veronica91 Nov 2014
Don't know how I'd do it but i would find a way. Maybe move somewhere it is legal

Litldogtoo Nov 2014
@ Debbie - I don't believe I would walk into the woods to die. Too buggy.

Debbie54 Nov 2014
My healing prayers and thoughts are being sent to your mother and you! I also believe your mother, no matter her age has a right to decide if she wants further treatment. I understand how hard this is for you as for different reasons, I am experiencing the same thing. My godmother, who has been like my mom my whole life, was diagnosed with early dementia/alzheimers. It is so hard to watch such a strong willed women losing her ground mentally and she is very scared! As I watch her fading from me, I can understand why as a person gets older and illness takes over that they rather go "Home". With our pets, as they get old and sick and cannot get around, we say it is humane to put them to sleep and not let them suffer, yet we allow humans to suffer in great pain and agony with no quality of life! I have never understood that, especially since I was a nurse for 10 years and worked in a nursing home back in the 80's until I hurt my back, and saw people laying in beds suffering or in a vegetated state.

I myself would not want this. Our Native Americans had it right, when they became to old that they felt they were a burden or could no longer contribute to their people, they walked off into the woods and allowed God to take them Home. I know I do not want to be a burden to my children when I can no longer do for myself and have no fear at all to go Home. As my mother back in the 70's had a life/death experience, she always told me never be afraid to die, that Heaven was truly our Home and we are Spiritual beings having a human experience and that Earth is just our University where we come to learn. Death should never be feared, when I took care of my dad for 5 years, he came to me one day when he was not feeling good, and told me he had no reason to be here any longer, that he did what he had to do here on earth and it was his time to go Home to my mom, who had passed away 3 years earlier. I remember telling my dad if that is how he felt, then by all means go Home to mom. He went into the hospital that same night, the doctor told him he was terminal, sent him home with hospice to help me and within a week he passed away. I am a very spiritual person and feel if they need to talk about it, then listen to them, give them dignity and assure them to have no fear!

MarkJohn Nov 2014
Thanks for sharing what's going on and the encouragement. You certainly come from a good family. Keeping you in my prayers.

Litldogtoo Nov 2014
Ouch. Sounds painful. Hopefully she'll take the pain medication she's been prescribed to alleviate the pain as she heals.

The other evening I was wondering how she was. Glad I came on tonight and saw the post.

I want to thank you for your update.

TNovak Nov 2014
I believe everyone on this discussion will be praying for her and peacefulness and strength for you. Everyone handles this dreaded cancer and any illness in their own way and with their own words. Respect her rights to handle it her way, no matter how it may makes you feel. Hang Tough, cause that's all you can do really. Pray and Pray and give her pain to the Lord.

TheBoogs Nov 2014
Thank you...!

4Grandys Nov 2014
Praying.

EXPERT Carol Bradley Bursack, CDSGF Nov 2014
Absolutely - it's the quality of life that matters.
Take care of yourself and please keep us posted,
Carol

TheBoogs Nov 2014
Thank you all for your prayers. Yes, I do want my mom to live for another 25 years. She's 76 and 101 would be a nice prime age. (hehe) That woman is my best friend and she is so full of life. She really is... until this crap.

Anyway, Litdogtoo, her last radiation went well, however she has to wait 3 weeks before they can let her know if the cancer has truly gone away. (PRAYING!) The only thing she complains about is the intense burning of her rectum and bladder, because her rectal cancer was treated in that area... She finally took a Percocet for the pain which mostly occurs in the morning and she's doing much better! In better spirits like she always used to be.

But I do realize that our parents go. I had fully accepted the passing of my dad when he died of bladder cancer 2 years ago. He was also my best friend. It's so STRANGE without him here! He was full of life, making everyone laugh and telling these crazy stories of the past. And when cancer took hold of him, it was a different person. And it can happen at any age! It's a destructive disease that I wish there was a cure for. Anyway, I prayed to God, asking to heal my dad as well as trusting God's will if He needed to take my father back home. I get it. And I accept it. I can't help but hope. It is my mom after all. Most children adore their parents, right? I think...?

But again, "God's will" is what I trust. But for now, I pray to God that his will leans towards life...just a bit longer and most of all, the quality of life is what's most important.

Litldogtoo Nov 2014
I'm wondering how the last radiation treatment was and how she's feeling?

London28 Nov 2014
Praying for your Mom. Nothing is impossible with God!!

kseale Nov 2014
My dad had a colostomy then had it reversed after he healed. It was a little inconvenient but nothing to cash in over.

I am praying for you and your mom.

conzzie Nov 2014
I am praying for you and your mom. I believe god hears and answers prayers. God give you peace.

Deeandfam1216 Nov 2014
I don't know what's worse; terminal physical disease (a cancer or heart condition) or mind altering disease (Alzheimers, dementia...),,,they're all difficult and I don't think one is easier than the other ...both my parents got seriously sick pretty much at the same time; my Mom was showing alarming signs of her eventual diagnosis of Alzheimers when out of left field my Dad almost died from a cardiac condition...it took three years of me running them both back and forth to a total of 20 doctors but I've still got both here on this Earth...my Dad is now showing signs of some kind of dementia...not sure if age-related or illness related.. it's time to check it out...you know, I wanted to write and give prayers to the person who says her mom wants 'to die' because of her rectal cancer...and I ended up writing about my parents....I'm sorry.....I really do give my prayers to this woman because she is scared, and tired of doctors and tests and scared of the unknown...I try to give strength to all who needs, but in this case I give her also prayers...I guess I started writing about my parents illnesses because I saw them both today and I saw some profound changes in my Dad's mindset that I cannot overlook anymore. I am very sad because he was always so 'smart' and he's been making some very odd and not good decisions that it is going to be very difficult to help him. I am already the DPOA for both my parents but he's going to fight his sanity every step of the way; whereas my Mom doesn't really understand the whole Alzheimers thing because she just seems to 'go with the flow'...she's already in the moderate to severe stage and I should just appreciate this from her as long as I can because it's going to get worse. I am so sad to have both so ill at the same time but there is nothing I can do except accept it, deal with it and take care of them....I love them both so much that I don't want anyone else to take care of them...even tho it may be difficult they're my parents and I will love them by taking care of them for as long as I can...I know when to take some time off so I don't have health issues for a day or two...thanks for listening...writing helps me cope :)

wamnanealz Nov 2014
I think rakshita is very wise and right on the point! Why do our children want us to live forever? Death is inevitable and it is better to be in touch with your feelings than in disbelief!

NYDaughterInLaw Nov 2014
You are in my thoughts and prayers.

rfox1960 Nov 2014
Prayers sent for you mom and your family!

debsent Nov 2014
Am praying for you and your mom. My mom also keeps talking about wanting to die, and I agree that it is fear talking. I try to let my mom know I will be there for her and that she is not alone. We can only do our best, and no more. Love to you both.

rakshita Nov 2014
This may sound cold, but it may be that your mom's wanting to die is an appropriate attitude in her current situation. So many have such fear of death that we can't even hear the word without dread. After my beloved mom, sister, and best friend died, and I lived with them through the downward journey, I have studied death through other cultures and many religions. I've visited cemeteries, and even have ongoing discussions with my dearly departed. I strive to be like them in my daily life. That always makes me more kind, generous and loving. I'm 78 now and have had a very full life. I've cared for my disabled husband for 12 years now. I've done the best I could every step of the way. Our many children and grandchildren have their turn now to shape their lives as best they can. Your mom may be mirroring her family's fears. A big help is getting all her affairs in order and planning the next steps. The death of a young person or the shock of a sudden death is cause for fear and dread, but for us older people, it's God's next step for us. Our task is to get real about this fact of life.

Gershun Nov 2014
I received a call from my mom's nursing home today saying she was not well.Just before I left to go see her I looked down and there was a piece of paper on the pavement in front of me that said God is merciful. I'm sure that was a message from God for me to not worry.

I pray that God puts his message of love and comfort in your heart and especially in your mom's.

Litldogtoo Nov 2014
My problem is just the opposite. My mother is almost non-verbal and she never talks or talked about death or God or anything. It drives me up a wall. I know she has to be thinking about this. Yet she doesn't reach out.

But anyway, this is not about me, it's about you and your mom. Still thinking about you, but read a post above that read one parent wants to die, the other doesn't. Anyway, subject for another board, and prayers for you and your mom. It's going to be okay.

Litldogtoo Nov 2014
I think if I was going through what your mom is going through, I'd want to die, too.

She has to be afraid. It has to be totally humiliating to have to go through something like that, not to mention psychologically/physically challenging. Her life has been turned upside-down.

She seems to be in good hands and tell her I will be thinking of her.

Hugs to both of you.

TheBoogs Nov 2014
All of your comments helped tremendously, thank you.
My heart is so broken over her broken heart. She's so scared and understandably so. I wish I could make it better or take her pain away. We were so incredibly happy months before the big "C" hit our home. So strange how things can turn so fast.

Thank you for your support.

luvpeople Nov 2014
Believe me I sometimes feel like that with my mom . I feel like I need counseling. I listened to Joel Osteen the other night and I was really encouraged. He talked about an even now faith like Mary and Martha had when they came to realize that Lazarus was dead for four days. When there seems to be know outlet, there is a way. It may seem that your situation is awful. God is there with you in your situation. What does your mother do to make it a living h*ll?

ArleneHutcheon Nov 2014
I feel your Mum at this time. Unfortunately, the things she are saying will not stop, it is how she is feeling at present. When she talks like that, don't reply to her. Leave it for a seconds and then change the subject, maybe it's a lovely sunny day, maybe the garden is nice. Anything that will give you a measure of control over the situation, without dwelling on whats on her mind. It doesn't mean you don't care any less, it is a way of you coping with situation too. Give your Mum plenty of hugs, she knows you care. Arlene

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