Mom passed away a month ago after battling dementia for about 7 years. I have cried very little. Yes, I miss her; but I am relieved this is over. For the first 4 years of her disease, she lived alone in her home (60 miles from mine). An aide & I shared primary caregiving duties, with assistance from a sister & brother. Then Mom moved in with us for 2 months and it was a disaster. We moved her to an ALF, and her aide continued to help 4 days a week with the 3 siblings each taking another day. That was all good for 18 months until her stroke. After the stroke, she was moved to a NH 75 miles away & was there for her last 18 months. I visited her every Saturday, and now I am questioning if I did that out of obligation & not love. Also during this time a single older brother battled lung cancer & we (3 siblings) did what we could long distance to help him (he was 600 miles away) & his busy daughters. In the end, 2 of us would go down for about 5 days at a time, which meant that every 3 weeks or so I’d be down there. Now I am facing the caregiving issues with my in-laws — she has dementia & he, the primary caregiver, has lung cancer. I am trying very hard to back off & let the more local SILs take the reins. But that shouldn’t affect how I react to my own mom’s passing. She was a wonderful woman and I should be grieving more. What is wrong with me? Am I really that cold hearted?
An indirect example of what I am saying. Is that a good online friend nearly died in 2012. She lives in Alberta, Canada; I live in the DC-Metro region. Up to that point, I had known her since 2002. I had emotionally supported her through several personal trials in her life. Including the death of a fiance who was killed in Fallujah, Iraq; And an (ex)husband who 'came out' after the birth of their daughter.
It has been five years since she almost died. But since then, I have been crying 'at the drop of a hat'.
Like when your mother died a month ago. One of my younger cousins died from a stroke in June 2016. She was only 40yrs.-old. I still think about her, and fall apart.
No, there is nothing wrong with you, there is a SILENT MAJORITY of us share the heartbreaking , painstaking dilemma you feel and the emotional wound that would remain forever. Us, who loved our parents . cared for them, had no support from outside. Lack of public awareness , politically driven and financially motivated agencies who would demonized someone in order to take possession of their assets. This conservatorship business had unlimited power in almost every sector and programs for financial gains. Since Oct. 2015 , my husband and I have faced ordeals no one would ever believed. Seniors with Alheimers are being medicated with numerous antiphsychotic drugs that make them worse. I could go on with these, and if you feel , you need a shoulder to lean on , please send a message. Take care. Christine
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It can be strange sometimes as to what sets off grieving or crying. I mentioned earlier that I've never cried as a result of the death of a family member. However, about a year ago I was reading about WW II (in which my father fought as a fighter pilot in the South Pacific) and about the atomic bombs dropped on Japan, and I started crying when it occurred to me how many young Japanese women would have been killed (but I'll have to admit I have at least a mild case of "yellow fever").
Sometimes the length & manner of death can be a factor but long term dementia means you grieve each time they loose a milestone - like the first time they can't recognize you then you will grieve that issue - each loss of a person's personality or character is a small grieving that is done at the time - it is accumulative so even when they are still with you then you have grieved the passing of those milestones
I hope this makes sense - if your mom was 62 with long ALZ you may grieve her lost years but if she was 96 then she probably lead a good long life - each person is an individual so don't worry about not crying & grieving after they die because I'll bet you did lots before they died
Be strong, your mother would have wanted that, All the best, Arlene Hutcheon
Try not to judge yourself so harshly..
It sounds like you've been (and continue to be) completely overwhelmed with caregiving hell, essentially. Having to focus on everyone else's problems may be putting you in a place that's hard to actually feel much of anything as you bounce from one crisis to another.
Give yourself some time alone in the car. Take long drives. You'll be amazed at what may surface if you let all of the demands on you fade away for a bit.
In the meantime, it's entirely possible that you've already grieved for the loss of your mom years ago when she stopped being the mom you knew. Frankly, dementia makes death a welcome thing in many ways, considering the emotional toll it takes on the families and caregivers.
I'm in a very similar situation: I cared for my beloved sister for 10 years as she fought breast cancer, then segued into my father's illness and death and have been at the helm of my mother's battle with dementia since 2010. It's exhausting. I love all of them deeply, but watching them all slip away slowly has been a slow form of torture over the last two decades. I'm not sure how much I'll cry either.
Be kind to yourself. I hope you'll find some time to process all of the stress you've been through and realize how strong you've been.
So, you are not cold-hearted. You just feel relief that your mom is not suffering anymore... and you are probably that her spirit is in your heart. That's what I feel with my mom and dad.
Take good care of yourself as you transcend into the new life. Get some grief counseling if you feel you need it.
apologies, i did not read everyone's thoughtful supportive comments as i usually do.
i am thankful for kdcm's unique question - it gave me 'reason' to express my reaction to my dad dying [july, 2015]. at his memorial i was overcome by 1 brief volcano of a cry - no more than 6 seconds! never cried 1 tear since. ironically tho - i loved my dad - identified / shared with him - and not with mom [still, and dealing with her progressing dementia..] i believe he knew i loved him, and i visited much more frequently than i visit mom now...
soooo - the irony? - - dad's passing was natural, no frayed ends of feelings. no crying. i predict that when mom passes, i will cry the 'normal expected' amount - as i have issues with her - no need to describe - suffice it to say, the loss of mom will be felt more as that relationship never grew...
Your concern was the same concern I experienced after my mom passed in January. What I came to realize is that we as caregivers for our loved ones are grieving through the care giving process. You have had 7 long years of doing your best yet knowing that your mom was declining. We can't help but grieve as we witness this process. I still have not cried like I want to or like I feel I need to. I think it's time alone that's needed to reflect on my mother and my life with her but in fact I may have grieved all that I am capable of. So all I am trying to say is that your lack of tears does not mean that you are a heartless daughter. You have been there when she needed you most and I truly think that you have grieved quite a bit before your mom passed. Please take comfort in the care you provided your mother. I wish you peace and wonderful memories.
Sorry, didn't mean to take over your post. ❤ I believe you are indeed grieving. Everyone is different. My hospice grief counselor explained that grief can be like an onion peel, it will come off in layers. In each person's own time and way. Don't be hard on yourself. You are a beautiful person who loved enough to make sacrifices to care for your family members, and still do. Give yourself time and permission to not worry about it. You will gradually grieve. It takes time.
When you are as busy and helping so many others, as you're doing right now, you don't have time to respond to your own needs, much less some of your feelings. I would encourage you to take some time for yourself and don't worry about not "grieving more." Your expression of grief may be entirely different from someone else's. Perhaps your grief is turned into wanting to help others more.