Update in Papa’s care; he keeps thinking he can beat Parkinson's.

Hi Becky! My sympathy for the loss of your Dear Mother!!!! Papa's Doc is whacko! My husband has Parkinson's as well and he falls a lot.. I know all patients progress differently, but falls are a huge part of the disease. His bones are fragile and brittle and one fall could end it all for him!! Why is he so stubborn?? I only hopes if this happens to me I will be humble. I am trying my best to keep up with all that is going on with my husband, but then he defies me being independent and goes behind my back and make unnecessary Doctor appointments and confuses himself and me as to what is going on!!! An independent spirit like him and papa does not help the caregiver!! PAPA needs to be in a facility at this stage!!!!!

Thanks talkey.

Dad never lost his ability to communicate, though his voice was very, very low, and he had trouble forming thoughts into words.

Papa’s balance is amazingly stable, no falls in 9 months - I have no idea how! New question though, his speech is getting really bad and it’s driving him crazy. He stutters and can’t get his words out, what is the natural progression of this? What happens next? Does he stop talking altogether? His voice is still pretty strong, so it’s not a matter of weakness, just the stutter and stammer thing getting worse. Anyone here been through it?

Thanks for all of your concern. Papa has very little cognitive decline. Still pretty sharp, alert & oriented. He’s home today, happy to see his house. Fingers crossed, we’ll see how it goes. He gets an assessment tomorrow for a 4 hour daily home health aide, which (I think) he will need to be able to get out of bed. It should be an interesting next few days, to say the least.

Ohio was cold. Funeral was so sad, but Mom looked beautiful. I will certainly miss our gab sessions late at night.

I’m going to collapse this weekend, hopefully. 🙃

I am so sorry that all this is happening at once.

So sorry for your loss BeckyT.

What kind of doctor does he have? Are you the HCPOA? I'm pretty sure that I might tell doctor that he is out of his mind and ask if he's ever treated someone like this under these conditions. I'm not kidding. I'd be pretty blunt and might even ask for his after hours number, so I could call it him personally for the next emergency. Take care and I hope things go smoothly.

Has your father been diagnosed with cognitive decline?  I mean, magical thinking/poor judgment can be a sign of cognitive decline.  Does doctor know this?

Oh, Becky, I'm so sorry for your loss.

Becky, I'm so glad you made it to Ohio okay!

You doctor's must be some kinda fool! Hope this turns out as well as can be expected.

Yikes, sorry, Becky. Crazy making times indeed! Please accept my condolences on the loss of your mother.