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It is to talk about the hospice doing their best to relieve pain. My husband did not sleep for nearly two years, average 2 to 3 hours a night. After the 'comfort med' were given, he slept for 3 days! I look forward to hearing from you. Cassestar
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I'm dealing with Hospice nearly killing my grandmother. Not terminally ill, just old. Talking last week and everything. This week they started doping her up on Ativan and Morphine and she was basically in a damn coma. Tried telling me she couldn't swallow anymore and was shutting down. After a heated argument with the nurse we had the ambulance pick her up. 2 days later she is eating, drinking, and talking. This lady fed me well my whole life. There is no way in h*ll they were gonna starve her to death with me around. I don't know how much life she has left but she is getting a chance to live and not wasting away given no chance at all.
I think what they were doing to her is down right criminal and that won't happen again.
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I just tried to reply to you gully 81 but my comment did not go through. I'm glad you got your grandma out of there. Same thing happened to my mom, that is why I want the whole world to know about these atrocities. My mom was also just elderly and even in good health. I had even told the staff in great detail that she can not have adivan and haldol because she had a sensitive reaction to it. It was even written in her chart. These kind of sedatives are deadly for elders. I cant begin to understand how and why the staff are allowed to get away with either attempted murder over and over again or murder. This really needs to be stopped .You have to be careful cause I have heard of people complaining that the medical staff will put a dnr in someones chart,The medical staff get away with so much that it would not surprise me if they get away with that also. I used to think that medical staff were all saints now I know that there are some very creepy murders in there and I just want to find a way to make it harder for them to harm and kill patients.I think punishing them would be a good start That is if they can be brought to justice and serve time.These kind of murders are difficult to take down.Right now hospitals hospices nursing homes are just not safe. You have to stay with the patient all the time in any of these places and hope they don't take your loved ones life.I have heard things like this happening all over but U.S. does not do anything about this.In parts of Europe they at least recognize that it happens and the people are trying to do something about it.In U.S. many people don't want to believe it even happens.
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Here is something about patients who are not even dying. May have dnrs
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I don't understand how people who are not dying would get on Hospice in the first place. A doctor has to state that given their diagnosis and prognosis they are not expected to live more than 6 months. Healthy people do not get onto hospice.

And what would be the motivation of hospice to murder patients? They get paid only while the patient lives. If they have nasty motives you would think it would be to keep the patient hanging on to extend their own pay.

Anyone explain this?
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Jeanne, you're very naïve. Unfortunately I saw it first hand with my own mother. You do realize there is someone coming right behind the patient that passes? These places aren't hurting for business.

The bed doesn't even get cold.

Talk to nurses who have worked hospice, they will tell you they have "angels" and you have "devils", there are some sick people who go into nursing and like the control over life and death. Some end up in a hospice.

We had issues with the hospice my mother was in and I reported them to the state, and the state did an onsite inspection and there were violations found in regards to rules and care.

Horrible experience, I still beat myself up for my mother having to suffer like that. I tried to get her out of the place and we were in the process when she passed. She was dying, I understand that but the "care" was awful.

And I do believe the nurse she had was evil. She said horrible things to both my father and I. For example to me she walked up behind me one morning(I didn't even know she was there) and said "your mother was spitting up blood this morning" and kept walking. Why say that?

I was rattled. What was the point of saying that? Other than to rattle my cage. I can't say the word on here that applies to her, but it rhymes with runt.

Hospice may have started out with compassion, but now it is big business. I would tell anyone go with a private hospice if you have to, and stay away from the corporate run ones.
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My mom got put on hospice for not even a day, she was not terminal,she could have came out of her haldol adivan coctail induced coma. She was so strong.The only thing else that she had was an untreated hospital fungal skin infection that had become serious only due to it never being treated. That needed to continue to be treated with anti-fungal meds not antibiotics.The medical staff knew this, that is one thing that hurts so much. It had been treated only for a couple of days at another medical facility when it got very serious. The treatment was supposed to continue even though she was doing well aside from the haldolcoctail coma she was in. Everyone knew about it yet this hospital the same one that never treated it before continued to not treat it, They just used antibiotics which only caused it to multiply.At the very end when she was swelling up in the hospital under hospital staff then hospice staff from the antibiotics and no fungal meds. They not only kept the antibiotics going instead of fungal meds but they also put it in a vein in her neck and took the food from her .She had a picc line for food and fluids ever since the last overdose. She was comatose from that one until they killed her.Hospice kept the fluids going even though she was swelling up and took away the food.They also gave her as much insulin as they could put in.The last place she was in, always checked to see if she needed insulin and she never needed it. The last place also did not give her fluids when she started swelling up. The only thing antibiotics did was make her infection multiply. I found out later that they diagnosed her with all kinds of terminal diseases that she did not have so she could go on hospice to be killed from an infection that was very treatable even when it is serious as long as antibiotics is kept away from her. no antibiotics and fungal meds would have been a nice treat so we could have had her today. Her problem was that she was severely overdosed cause she had a dnr. They were able to give her all the sedatives that they wanted to and keep the meds away from her that she needed.Then give her ones she did not need that only killed her instead. In there sick little minds they did not ever have to treat her since she was a dnr and were able to do what they wanted to do. Hers is not the only case. I think hospice is charging for all kind of things when they get patients in. They don't have to do anything but they can still charge if they make up things,They are just corrupt like many hospitals and nursing homes are. They may not always intend to kill but when you give that much sedatives and pain meds and dont use meds that work only meds that don't then most likely the patient will not survive.Thanks to the dnr they were able to get away with not ever wanting to treat her or treat her properly and force her to die. Even a very healthy patient can not survive that much overdosing leave alone an elder one. So my mom lost her battle to the medical staff. Even the healthiest young person could not survive what she went through. It has been pure hell ever since this has happened.I had to deal with the most horrible monsters that I did not know exists. They were ok about taking my moms life not just hospice but the other medical staff as well. It would have been hard enough to lose her naturally, but for her to be forced to die was just cant even describe it.the only thing I can say is how could they have done what they did and be ok with it.I dealt with lots of extremely evil medical staff.I will put in one positive note, the doctor and his staff at the other medical facility that she was at were good and very helpful people. They were the ones that she should have stayed with.
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Back in the 90's we were having a health care crisis in Ontario as the wait lists for surgery were getting longer and longer. My dad was having recurring unstable angina and his family doc didn't push for him to be bumped higher on the lists so he suffered a heart attack at 75 and died a few hours after we agreed to disconnect him from life support. At the time I was angry, I blamed god and the health care system for his unnecessary end.
Today I care for my mom, now 95 and living in the twilight zone, neither fully living nor ready to depart. I no longer "rage, rage against the dying of the light". I look back and see my father had a good death, and thank god he is no lingering like my mother. So many here are fighting tooth and nail for their loved ones in their 80's, 90's and beyond, railing at the injustice of their untimely passing. I'm sorry for you all, and I hope some day you can make peace with it.
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Update: My grandmother has done nothing but gotten better since being admitted to the hospital Wednesday morning. She is now ready to leave and go home but we are keeping her here a day or 2 more. She knows exactly what is going on, she is eating and drinking. Both things hospice claimed she could not do. She is not terminally ill and I'm unsure as to how she was placed on Hospice in the first place.
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cwillie My dad had died naturally he was young and had cancer and my grandma lived almost to 100 and died on her own.Both deaths were very hard and I loved them both so very much and it was extremely difficult to lose them but I accepted it and moved on. The only difference is that my mom was murdered and her killers are still out there to hurt and kill others if they want to that is the difference.So imagine if you can one of your loved ones being murdered and the killers were free to walk free. Imagine that the murder was ok, one minute your loved one is fine, the the next they are murdered and killers are free to walk, so now you have no justice either. I'm not sure you would have such a carefree attitude as you have now if something like that happened to you. I know it is very difficult to put yourself in someone elses shoes. I never ever would have thought that I would ever have to deal with a murder accept hearing it on the news.
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jeannegibbs, I was wondering the same thing. Thanks for asking that question.

Gully81, not to scare you and hope this isn't the case for your Grandmother, but it is not unusual for a patient to rally, be up and around and ready to go home, only to slip back into their pre-rally condition a week or two. Again, I hope that isn't the case with your Grandmother.
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gully 81 That is fantastic news. I'm so glad you guys have a good hospital just keep a good eye on her.
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gully 81, make sure they are not giving her haldol and adivan other powerful sedatives hopefully someone will be with her 24 hours to guard her even if you think she I would never let my guard down. In my case it was just me. When I left the hospital to go home and take a shower, there was an aide with my mom and she said it would be fine for me to leave. I was able to trust the last aide that that I left my mom with the last time before that.My mom was worried and wanted me to stay. I should have listened to her cause when I came back they had put her in a haldol adivan cocktail coma that she was in for 2 weeks until the hospital and hospice killed her. That was the last time I got to talk to her. She was recovering from the sedatives before that slowly but surely. When I asked the nurses when she would wake up from the haldol cocktail they did not know. The investigators found that they had drugged her so severely that would have caused her great bodily harm and death. So just watch everything they put in her iv and give her and ask about everything they give her, keep notes, take pics. try not to take pics in front of them especially if the staff is being nice. They may get insulted, but your grandma needs to be protected cause it is a jungle out there.
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I know that my brother died a few days after entering hospice. BUT - he was going to die - one way or the other. He was at the end of the road and Hospice made his last days pain free and the facility was beautiful and the staff caring.

People go into Hospice AT THE END OF THEIR LIFE - what do we expect - that they live forever? No, we expect Hospice to do what Hospice does - make their life less painful.

I have often wondered why anyone would want a loved one to live on in pain. We don't even do that to our pets. My brother had excellent care - the pressure of care was taken off his wife's shoulders. She could just sit and hold his hand. Sure, he soon went into a coma. Dying people do that! It isn't always the meds.

I agree. Hospice does a great job. If a loved on is not ready for Hospice - don't call them. Simple.
http://en.wikipedia.org/wiki/Hospice
Taken from wikipedia: Hospice care is a type of care and philosophy of care that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs

I am sorry for the grief and sadness that death brings. I have experienced it. Lost my parents, a son and a dear brother. Grief is not always easy to bear. We must give it time. Hoping that you all get the love and support needed to grieve well.
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gully 81 My message got cut off, I hope you can have someone with her at all times.24 hours. I would make sure that they do not give her haldol and adivan and other sedatives. My mom was getting better from being off of the sedatives slowly but surely until she got the next overdose. I was the only one that could stay with her. I left like I had done before cause I trusted that hospital. The last time I left there was a nurse aide there that said it would be fine for me to go home and take a shower like I did last time. My mom was worried and did not want me to leave. I see why now. I said she would be fine like the last time. I left her while a nurse aide kept her company while I was away. When I came back she was drugged into a coma that lasted until the hospital staff and hospice staff killed her. If I was you, I would take pics, keep good notes. I would try not to do it in front of them cause they may be insulted and say they don't allow it. I would find out everything that goes into her iv or is given to her. My advise to you is never let your guard down that is what happen to me. I would tell them that she does not need haldol and adivan and other sedatives and make sure she does not get them. Even a little bit of sedatives such as haldol and adivan can take a month to recover from. My mom was always trying to recover.The sedatives cause the person to look like they are deteriorating. They can develop other complications from these drugs.The nurses used to tell me that these were not dangerous or that all meds have have some dangers but they are not safe.I still told them I don't want them and she also told them she did not want them when she was not too drugged. They are not safe. Good luck to you
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oldcodger You are right grief is not easy I have had to deal with it in the past my dad was in hospice and was given only what he needed he was not helped to die. He actually died on his own. He was not given sedatives and enough pain meds to die faster. That is not right, now days people are going into hospice that should not be there. I guess if the hospital is getting over crowded they will go in there to be killed off what ever the reason it is just to be murdered for no reason other than their age. That kind of murder is impossible to deal with and there is no justice these sico murderers are getting away with it, when they really need to be in prison for life. There are actually other countries where people who do killings in the hospital will be put away for life not in our state hospitals, nursing homes and hospics are the perfect place for a murder to kill cause they get away with it.
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oldcodger2 What exactly do you mean by this "We don't even do that to our pets" Usually when people say this they are referring to euthanasia. If that is the case read your link There is no mention of killing the patients off so they wont have to suffer. G...d forbid if euthanasia does become legal in our state then it would not even be safe to go to the hospital for any reason.Hospitals nursing homes are already not safe because of attitudes like yours. It is one thing to manage pain without killing the patient but it is another thing to kill the patient off when the staff decides to do it. Even if the person is dying. I know of some elder people that were put in hospice who where not dying they had critical health problems but were not dying. Then there are people who should not be put in them at all. So hospice is not supposed to be a death sentence for anyone even the dying.
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hospice-uncovered.blogspot/2010/01/hospice-and-what-they-will-not-tell-you.html

hospicepatients/mass-killing-issues.html
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flowgo, A doctor has to order hospice, usually with a three to six month life expectancy. People just can't be "put" on hospice at someone's whim.

You're making some pretty outlandish accusations.

And your final statement about hospice not being a death sentence for anyone even the dying. That makes no sense whatsoever. Hospice doesn't kill them, disease kills people. The medications they are given ease the transition. They were dying in the first place and nothing could prevent that. Hospice is comfort care for the actively DYING.
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windytownThen why are people who are not terminal going into hospice instead of getting treated for curable conditions or diseases that would not take very long. That does not make any sense yet they are somehow ending up in hospice. There are nurses in hospice and hospitals and nursing homes who believe in mercy killings like giving them as much sedatives or morphine or doing something to help them die faster.
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windytown There are people who go into hospice who are not terminal.I knew of people, some even did not need to stay in hospice after they recuperated. As far as the dying goes they should not be getting anything that is used to kill them faster. They should be allowed to die on their own. That is what I'm upset about and the ones who are being murdered just because of their age, like my mom, that is another situation that is unbelievable. There are hospices that used to not do this, but from what I have seen and heard about in other peoples comments all over the internet and others I have talked to that is not happening so much anymore. I would like to think that there are some hospices who still care for their patients without killing them or helping them die faster. Im thinking that is just probably a fairy tale these days though.
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flowgo, How does a person get into hospice if they are not terminal? I've never heard of that happening in my real life. A doctor's orders have to be signed and Medicare has to approve it. Medicare pays for the services and there is a review every three months. They don't want to just be throwing money away on a non-hospice patient.

If a patient has improved, they can stop hospice at any time. My dad's hospice told me of many patients that improved and went off hospice. They were happy for them for the respite they had from the DISEASE that was killing them.

I realize this is a small corner of the internet universe. Your and my opinions are ours alone. This is a place of comfort and advice for many people seeking help. I know AC has helped me on my journey with my parents.

I am so sorry your experience with hospice was so bad. I truly feel sorry for you and I hope you find solace somewhere. I know how difficult it is to find peace after a loved one dies. I understand. I am still on that road with my mother. It is challenging to say the least.

I feel very strongly when I say this to you, not all hospice experiences are like what you describe. Murder is not a word I would use lightly.

There are people just finding AC that are reading your words that are probably horrified. I think that is your intent. I want to reassure them that every experience is different. They are not all like yours, and I'm sorry you had to go through that.

My father had a Gliobastoma grade 4. I can't imagine how we would've done it alone without hospice. Ativan calmed him and morphine kept his pain down. Without it he would've had multiple violent seizures that made his brain bleed. His tumor made him blind and he lost the ability to speak, not from hospice, but from cancer.

You really need to back off from your hospice bashing. I suggest you get some personal counseling for your issues. I wish you well.
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windytown The doctor can lie to get someone in hospice that is what happened to my mom.They said she had many end stages of diseases that she had never had in the first place and then labeled as terminal. So she was supposed to be in there for end of life treatment which happened to be a huge lie not a mistake a LIE. She was in a coma from the sedatives so it was easy. How could she be at the end stages if she never had those diseases in the first place. The investigators confirmed that. I am the most horrified one of them all on here since I had to experience this kind of horrendous treatment and killing. This kind of killing is so much different then just a natural death. I have experienced that more than once. I lost some people who meant the world to me but they died on their own, big difference. People should be warned since this happens so much. It is not just an isolated incident.If I can help one person not be harmed and killed that is good enough for me. So I will continue to post. Sometimes the truth is extremely difficult to deal with, but it must be known to save lives. I wish I would have known about this before this happened. I would have had a better fighting chance at saving my mom from the horrible medical staff. The hospice is not the only ones who kill. It happens in nursing homes and hospitals also.People just need to guard their relatives against the evil. It is not all good out there as I found out the hard way. I guess you would have to have walked in my shoes to see what really happened then you would know how evil things can be in the medical field. As for moving on it is very difficult to find closure in a situation as this. Normal deaths even if very difficult one can find closure and accept it, but not in my case. I have to accept that I will never get closure and my moms killers are not behind bars where they belong.
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windytown, why did you come on a thread specific to people who had bad experiences with hospice to argue with them? If they want to bash their hospice experience that they went through with their loved one, let them.

People don't make these events up. Who are you to question them?

And don't tell someone they need mental help and than wish them well, so very disingenuous.
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Irishboy good comment. Really she says I need help for my issues, I only need trauma counseling for the horrendous trauma I was put through in dealing with the most evil monsters that I have encountered ever in my lifetime. I don't believe that I have ever dealt with a murderer before and that is too much trauma especially when they took my mom's life and are still not behind bars. WHY AND HOW CAN A SUPPOSED HUMAN BEING DO THIS TO ANOTHER HUMAN BEING PURE EVIL.
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Truthseeker my mom had pancreatic cancer as well and was stage 4 when she found out January 29th 2015. It is a horrible, disrespectful cancer. It has no mercy...Sorry for your loss..
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Flowgo- Yes there is someone with her 24 hrs a day. They tried to give her ativan last night and we told them NO. She got out of her bed and into the chair today
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Yay, gully!! Assumptions get made and that is the biggest reason our loved ones need advocates like you!
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I knew of a friend of a friend - sorry not a personal experience - who was put on hospice and when taken off a pile of meds, thrived again and went back home to live on. I did once get a patient off something that was about to put them on hospice too. So, these stories are not impossible. You know there are a lot of climate-change deniers out there? Well, in the medical profession we seem to have a fair number of side-effect deniers. Not a good thing.
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You are awesome, so glad she is doing well and that someone is able to be with her 24 hours to protect her from the deadly sedatives. Now days you can't trust hospitals and nursing homes like before. I found out the hard way. Now I just want to keep spreading the word to help others keep their loved ones safe.
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