I have posted on here many times and answered questions every now and then. Dad passed away Oct 7th 2013 from Liver Cancer . He was in a hospice facility for 11 days until he died. The day before he was admitted he was in the hospital and was talking,eating and very clear headed but his ammonia levels were high and he had been very combative, not eating and wouldn't take his meds for 4 days at his nursing home. ( He was in for a Psych Evaluation.) The hospice worker talked to me about admitting him instead of returning to the nursing home. I agreed to this and arrangements were made. He was transferred later that day and was alert and in good spirits. The next morning he was unresponsive and stayed that way until he passed. They gave him morphine and ativan around the clock. He never got any water but they did cleanse his mouth and moisten it with swabs. It seemed like he could hear me the first few days because I would shake his shoulder and say "dad". His eyes seemed to be moving under his eyelids and his mouth would move slightly. I did ask about them lowering his dosages so he could wake up a little. The nurse said he was getting a very small dosage already. I just wonder if the drugs made him unresponsive and if less was used he could have ate and drank and lived longer. I know it was time for him to go but I'm kinda puzzled about his going from complete alertness and straight into unresponsiveness so quick. The nurses did a Great job. I myself don't know how they do it. They treated dad like he was their baby. So gentle and compassionate. I was just wondering if anyone else had the feeling that death felt a little rushed once their loved one was placed in Hospice.
I think what they were doing to her is down right criminal and that won't happen again.
And what would be the motivation of hospice to murder patients? They get paid only while the patient lives. If they have nasty motives you would think it would be to keep the patient hanging on to extend their own pay.
Anyone explain this?
The bed doesn't even get cold.
Talk to nurses who have worked hospice, they will tell you they have "angels" and you have "devils", there are some sick people who go into nursing and like the control over life and death. Some end up in a hospice.
We had issues with the hospice my mother was in and I reported them to the state, and the state did an onsite inspection and there were violations found in regards to rules and care.
Horrible experience, I still beat myself up for my mother having to suffer like that. I tried to get her out of the place and we were in the process when she passed. She was dying, I understand that but the "care" was awful.
And I do believe the nurse she had was evil. She said horrible things to both my father and I. For example to me she walked up behind me one morning(I didn't even know she was there) and said "your mother was spitting up blood this morning" and kept walking. Why say that?
I was rattled. What was the point of saying that? Other than to rattle my cage. I can't say the word on here that applies to her, but it rhymes with runt.
Hospice may have started out with compassion, but now it is big business. I would tell anyone go with a private hospice if you have to, and stay away from the corporate run ones.
Today I care for my mom, now 95 and living in the twilight zone, neither fully living nor ready to depart. I no longer "rage, rage against the dying of the light". I look back and see my father had a good death, and thank god he is no lingering like my mother. So many here are fighting tooth and nail for their loved ones in their 80's, 90's and beyond, railing at the injustice of their untimely passing. I'm sorry for you all, and I hope some day you can make peace with it.
Gully81, not to scare you and hope this isn't the case for your Grandmother, but it is not unusual for a patient to rally, be up and around and ready to go home, only to slip back into their pre-rally condition a week or two. Again, I hope that isn't the case with your Grandmother.
People go into Hospice AT THE END OF THEIR LIFE - what do we expect - that they live forever? No, we expect Hospice to do what Hospice does - make their life less painful.
I have often wondered why anyone would want a loved one to live on in pain. We don't even do that to our pets. My brother had excellent care - the pressure of care was taken off his wife's shoulders. She could just sit and hold his hand. Sure, he soon went into a coma. Dying people do that! It isn't always the meds.
I agree. Hospice does a great job. If a loved on is not ready for Hospice - don't call them. Simple.
http://en.wikipedia.org/wiki/Hospice
Taken from wikipedia: Hospice care is a type of care and philosophy of care that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs
I am sorry for the grief and sadness that death brings. I have experienced it. Lost my parents, a son and a dear brother. Grief is not always easy to bear. We must give it time. Hoping that you all get the love and support needed to grieve well.
hospicepatients/mass-killing-issues.html
You're making some pretty outlandish accusations.
And your final statement about hospice not being a death sentence for anyone even the dying. That makes no sense whatsoever. Hospice doesn't kill them, disease kills people. The medications they are given ease the transition. They were dying in the first place and nothing could prevent that. Hospice is comfort care for the actively DYING.
If a patient has improved, they can stop hospice at any time. My dad's hospice told me of many patients that improved and went off hospice. They were happy for them for the respite they had from the DISEASE that was killing them.
I realize this is a small corner of the internet universe. Your and my opinions are ours alone. This is a place of comfort and advice for many people seeking help. I know AC has helped me on my journey with my parents.
I am so sorry your experience with hospice was so bad. I truly feel sorry for you and I hope you find solace somewhere. I know how difficult it is to find peace after a loved one dies. I understand. I am still on that road with my mother. It is challenging to say the least.
I feel very strongly when I say this to you, not all hospice experiences are like what you describe. Murder is not a word I would use lightly.
There are people just finding AC that are reading your words that are probably horrified. I think that is your intent. I want to reassure them that every experience is different. They are not all like yours, and I'm sorry you had to go through that.
My father had a Gliobastoma grade 4. I can't imagine how we would've done it alone without hospice. Ativan calmed him and morphine kept his pain down. Without it he would've had multiple violent seizures that made his brain bleed. His tumor made him blind and he lost the ability to speak, not from hospice, but from cancer.
You really need to back off from your hospice bashing. I suggest you get some personal counseling for your issues. I wish you well.
People don't make these events up. Who are you to question them?
And don't tell someone they need mental help and than wish them well, so very disingenuous.