I have posted on here many times and answered questions every now and then. Dad passed away Oct 7th 2013 from Liver Cancer . He was in a hospice facility for 11 days until he died. The day before he was admitted he was in the hospital and was talking,eating and very clear headed but his ammonia levels were high and he had been very combative, not eating and wouldn't take his meds for 4 days at his nursing home. ( He was in for a Psych Evaluation.) The hospice worker talked to me about admitting him instead of returning to the nursing home. I agreed to this and arrangements were made. He was transferred later that day and was alert and in good spirits. The next morning he was unresponsive and stayed that way until he passed. They gave him morphine and ativan around the clock. He never got any water but they did cleanse his mouth and moisten it with swabs. It seemed like he could hear me the first few days because I would shake his shoulder and say "dad". His eyes seemed to be moving under his eyelids and his mouth would move slightly. I did ask about them lowering his dosages so he could wake up a little. The nurse said he was getting a very small dosage already. I just wonder if the drugs made him unresponsive and if less was used he could have ate and drank and lived longer. I know it was time for him to go but I'm kinda puzzled about his going from complete alertness and straight into unresponsiveness so quick. The nurses did a Great job. I myself don't know how they do it. They treated dad like he was their baby. So gentle and compassionate. I was just wondering if anyone else had the feeling that death felt a little rushed once their loved one was placed in Hospice.
I don't hate you. I don't know you other than what you write in your posts. I'm not trying to ban you. I would like to see this thread close because I think we have exhausted the issue. It's time to stop chasing our tail.
Some believe in hospice, others don't. No one is forced to sign up. It's a voluntary thing. The family member that's signing up should read all the material and fine print before signing a contract with hospice. They should inform ALL of the other family members, so everyone will understand the plan and be on the same page. If they don't find it to their liking-cancel it! If, after you've cancelled, you find it did a lot of good, sign up again. It's that easy.
People are expected to die from their disease. Hospice is to make a person comfortable at the end of life.
The US government is not in the business of hiring "hit men" to "finish off" these terminal patients. Actually, there would be an incentive for the hospice company to keep the patients alive, as they are paid for every day they assist the patient.
I have worked as a hospice nurse. You haven't. Even though you may have had a family member in hospice, there is a big difference being on that side. I was on that side too. My Dad was in hospice the week before he died. I was the daughter, in that case, not the nurse. Hospice explained things much more clearly than the jerk of a doctor that was assigned to my dad. I felt both of us (Dad and I) were well served by hospice. I don't feel that they ended his life. He was DYING from 2 massive strokes. His G-tube feedings wouldn't digest. They had to stop feeding him. We have to keep in mind that death can happen at any time. Because they are given meds that make them sleepy, does not mean that they are dying from them. I'm glad for any relief my father received.
We all have our own opinions about many subjects. I respect your right to your own opinion. But please don't tell me that I don't really care when I say I'm sorry that a loved one of a person on this board died. I DO care. I got into nursing BECAUSE I care. I'm a sensitive person and probably spend way too much time with my patients to my own detriment (clocking out late, backed up charting, etc.) Because I am pro-hospice doesn't make me a non caring person.
The same if I was, for example, pro abortion, pro assisted suicide or any other "hot" topic. Don't put me into a "box" because of my beliefs. My hair could be green and I could have 10 lip piercings but just because I wouldn't be conforming to YOUR way of thinking, then I'm bad? That's pretty narrow minded. (By the way, my hair is not green, and I do not have any lip piercings-it's just an analogy. I will keep my position on abortion and assisted suicide private.)
I think we've all said about as much as can be said. Let the thread die a peaceful death.
RIP
I promised my mother one and only one thing in life, that she wouldn't die in pain. Hospice gave me the option to relieve her pain. Not to end her life.
Let’s just allow this thread to be a venting place for those who believe hospice kills. A venting place that doesn’t require us to respond.....
By Ben Hallman
Development and data reporting by Shane Shifflett.
Additional reporting by Chris Kirkham.
Design by Hilary Fung.
JUNE 19, 2014
Evelyn Maples’ last day as a hospice patient wasn’t anything like her family imagined when the nurse from Vitas Healthcare first pitched the service two months before.
On the morning of Dec. 31, 2011, Maples’ daughter, Kathleen Spry, found her mom unconscious and gasping for breath, with her eyes rolled back in her head. Maples was at a Vitas inpatient facility on Merritt Island, 30 miles from the home the two women shared on Florida’s east coast. No one from Vitas had called to warn the family that the woman everyone called “granny” was in sharp decline, Spry said. No one from Vitas had sought treatment for the blood infection that had made her severely ill, despite the family’s standing request that she receive life-saving care in the event of a crisis.
KEY FINDINGS
The U.S. hospice industry has quadrupled in size since 2000. Nearly half of all Medicare patients who die now do so as a hospice patient — twice as many as in 2000, government data shows.
Since 2006, the U.S. government has accused nearly every major for-profit hospice company of billing fraud.
Hospices bill by the day, and stays at for-profits are substantially longer than at nonprofits (105 days versus 69 days).
In 2009, for-profit hospices charged Medicare 29 percent more per patient than nonprofits, according to the inspector general for the health service.
The average hospice stay has increased dramatically since 2000, regardless of diagnosis, a HuffPost analysis of Medicare data found. This has led to a surge in expenditures: $15 billion in federal dollars in 2013.
Despite widespread allegations of fraud and abuse, regulators have consistently rated hospice as a lower priority for inspection than traditional health facilities like hospitals.
The average U.S. hospice has not undergone a full certification inspection in more than 3.5 years, a HuffPost analysis of Medicare data found. HuffPost found 759 hospices that haven’t been inspected in more than 6 years. Nursing home inspections, by contrast, are required by federal law at least every 15 months.
Over a recent three-year span, 55 percent of all U.S. hospices were cited for a violation, many care-related, HuffPost found. HuffPost found 20 providers that were cited for more than 70 violations each during that time.
No one is reading but keep giving this thread CPR. I've stopped the "code blue". Let it die.
No more for me.
Bye 👋🏼
#1 The U.S. hospice industry has quadrupled in size since 2000. Nearly half of all Medicare patients who die now do so as a hospice patient — twice as many as in 2000, government data shows.
Yes, that's more or less what you'd expect. a) The number of people reaching end of life has also increased dramatically by virtue of demographics; and b) fewer people are dying in hospital - which most people when questioned say they do not want to happen - because there is now a better-known and more widely available alternative.
#2 Since 2006, the U.S. government has accused nearly every major for-profit hospice company of billing fraud.
Fraud or error? Billing practices will be the subject of regulation; correction of poor practice is one aim; corporate malpractice needs to be brought to light in any industry. The system appears to be working, then.
#3 Hospices bill by the day, and stays at for-profits are substantially longer than at nonprofits (105 days versus 69 days).
I thought you were outraged at hospices bumping people off to save money. Or are you outraged at their forcing dying patients to linger, suffering, for the sake of profit? It is possible to be outraged at both, of course, I grant you - a sort of moral Morton's Fork with which to prod your target.
#4 In 2009, for-profit hospices charged Medicare 29 percent more per patient than nonprofits, according to the inspector general for the health service.
Yes. What would you expect? Non-profits reinvest surplus cash in their business. Profit-making organisations have dividends to pay, which they achieve by charging their customers more to create a fatter surplus. That's how capitalism works.
#5 The average hospice stay has increased dramatically since 2000, regardless of diagnosis, a HuffPost analysis of Medicare data found. This has led to a surge in expenditures: $15 billion in federal dollars in 2013.
So they ARE cruelly keeping their patients alive? Or they're wickedly (not to mention illegally) hurrying them off? Surge in expenditure: yes. Surge in number of patients, earlier referrals to palliative care, advances in end-of-life treatments. Living costs money. Living when you're dying costs a lot of money.
#6 Despite widespread allegations of fraud and abuse, regulators have consistently rated hospice as a lower priority for inspection than traditional health facilities like hospitals.
I too would like to see more effective and more frequent and more constructive, improvement-oriented inspection of all health and care facilities. But it's expensive, and implementing the recommendations would be expensive again. Where would you get the money? Or, rather, what other services would you take the money from?
#7 The average U.S. hospice has not undergone a full certification inspection in more than 3.5 years, a HuffPost analysis of Medicare data found. HuffPost found 759 hospices that haven’t been inspected in more than 6 years. Nursing home inspections, by contrast, are required by federal law at least every 15 months.
Same.
#8 Over a recent three-year span, 55 percent of all U.S. hospices were cited for a violation, many care-related, HuffPost found. HuffPost found 20 providers that were cited for more than 70 violations each during that time.
Violation of what? Some of the regulations are of interest only to civil servants and management accountants - what family member gives the proverbial if a hospice hasn't sent its diversity monitoring forms in on time? - so it matters. So does the word "many". If many meant enough for the reader to get excited about, any self-respecting journalist would have specified the number.
It's a wicked world. Sickening things take place in all corners of it, so why should hospice facilities be uniquely exempt? But that doesn't make bad practice the norm, and it doesn't make dying in hospital a better alternative, either. The answer is to be vigilant and to work for improvements, perseveringly and realistically. Has your research brought you into contact with the many dedicated, knowledgeable and compassionate people who are doing just that?
And, in any case, this forum is for people who are facing caregiving challenges right now. Their loved ones are dying now. And you're telling them not to accept the specialist help of experienced professionals for fear that their loved ones will be fleeced, abused and ultimately murdered. What is the better choice that you would offer them?
I agree with Sue. I’m sick of the nut bag crap this thread attracts. I’m gone. Never even gonna look at this thing.
I suggest everyone bail on this mess and let the crazies have it.
Over and out.....
I will warn everyone NEVER to consider the organization known as Willow Tree Hospice, headquartered in Kennett Square, PA. May that beastly organization start its own "journey" into the afterlife.
As a PS: this organization, upon learning that we have questioned some of their methods, have now denied my mother the care and support she was supposed to receive for a year after my father's death. They prove their own guilt.
So yes, hospice absolutely hastened--and cruelly engineered--my father's death. I am sick over this.
And why did they seek out a website on elder care long after the fact? The reality of doing this doesn't make sense. Unless they still need to point a finger at someone or something.
Wish people would realize that the death time-table is the same for the love one whether they use Hospice or not. The question is, do we want our love one to pass over pain free or not. I know for myself, I prefer it be pain free.
Hospice patients are terminally ill; the expectation is they will die soon. Every family should realize that fact.
Do patients rally & come off hospice? Yes, they do.
The person isn’t penalized for getting better.
I too am a RN. I had my mother enrolled in Hospice twice while she was in a NH.
The first time, she got better, substantially so, & was discharged from hospice.
One year later my mom had a stroke, & we called Hospice again. They came back in & provided services to her.
I think she was on Hospice for one or two months prior to her death.
During her final hours the nurse came in to assess my mom and stated she was going to give her morphine but felt my mom was in no pain, this withheld the morphine.
Thus to believe hospice over medicates willingly is just not true.
I would think that being a Hospice nice is a hard job but in my conversations over the years with hospice nurses, all of them tell me that they loved their job - that they were honored and privileged in their role to provide support to the patient and their families during the end of a person’s life.
I asked if it was depressing having to take care of dying patients and actually not one of them said it was depressing- heart wrenching, sad, & hard work physically but not depressing. I am sure there are hospice staff that do get depressed from their job, but enlightening to me that many of them loved what they did.
We don’t know what expectations the anti-hospice posters were of the hospice team; were they unreasonable expectations? Maybe.
Hospice staff are not miracle workers, after all. They are human too.
To me while this thread asked if hospice rushed their loved one’s death, of course there will be those who have a negative view, but the majority of people that replied were very pleased with the hospice team’s performance in providing comfort to a dying person & if that meant giving more medication to that person, so be it.
No one can say they know how the body metabolizes narcotics and the person in hospice is usually quite ill meaning many organs are not capable of functioning as they should. I don’t believe any hospice nurse willingly over medicates the person to the point of respiratory depression and death. That provider uses their professional assessment skills to administer the appropriate dose the nurse feels will achieve the goal of comfort.
Families angry their loved one wasn’t turned every hour, lips moistened when they became dry all the time is an unrealistic expectation of hospice staff, and in this situation the family should be there to assure that person is turned and their lips moistened, as well as other comfort measures.
That was MY job as I kept vigil with my mom in the last hours of her life.
Perhaps hiring 24/7 caregivers would have assured the hospice patient’s needs were being met because it is truly unrealistic to believe any health care provider will be available every minute of their shift to assure those needs were met.
An RN or PA with hospital experience surely is aware of this as well.
For those families reading the negative opinions on this forum, please don’t be frightened to where you will not choose Hospice to take care of your dying loved one.
My experience in the two times I utilized hospice were very satisfying, under the circumstances.
I will share one interaction with our hospice nurse Holly.
I lived 200 miles from my mom. I had spoken to the hospice nurse, Holly, every week prior to my mother’s passing. On our last conversation I discussed the distance & time I lived from my mother, & asked her to please notify me if she assessed that my mother’s death was imminent. Holly called my home @ 8:30am the morning of my mom’s passing and told me that today might be the day.
I thanked her & headed north on 95. I was able to get to my mom’s bedside by 3pm. My mother died 12 hours later at 3am. I was with her.
Moral of this story is that Holly, who was probably very busy, recognized the signs of approaching death and remembered what we had spoken about, as she called me & I was able to be with my mom when she passed.
Long post, I know! But please keep an open mind about using hospice. Hospice will assure the dying person’s comfort and needs are being met.
I’ve been a RN for 37 yrs & have never heard of any family complain that hospice didn’t do their job in past experiences.
Don’t let the negativity of a few cloud your judgement.
I know two families who had a family member in a hospital hospice wing. And each said their family member was given NO food. Not even ice!
My view as a RN am thinking his CO2 levels were high from not being able to breath well enough to get enough oxygen in due to his lung cancer. As you may know now being a PA/RN or whatever title you have acquired, there is something triggered when end stage COPD pts or lung cancer called the hypoxic response. Those patients are so used to functioning at a certain level of O2/CO2 that once that condition changes their respiration’s decrease and they stop breathing.
This coupled with fatigue & all the other adverse conditions from his cancer caused his demise, not the actions of the hospice staff.
I say this respectfully but you may benefit from therapy for you to work out all this guilt or projection that you have for not being able to save your father. In your role now as a healthcare provider, you must realize that your personal feelings about a modality of treatment - Hospice - can not prohibit you from offering that service to others. You have a duty to provide your patients the right to decide on their own but you need to be able to give them that information with no personal bias.
Your mother did the best she could have done under those circumstances 20 yrs ago.
I am curious, Mark, what do you feel should have happened? What treatment would have given you a different outcome? Your father had lung cancer with metastasis. What could you have changed about that?
I hope you work out whatever negative feelings you have stored back in your psyche and are able to see both sides of this discussion. I certainly hope those issues a will not prohibit you from supporting any patients you have the honor of caring for if they choose Hospice.
20 years is a long time to wrestle with the circumstances of your father’s death. I wish you peace.