I need some advice! My mom has lived with my husband and myself for the last 2 1/2 years. We both agreed to have her come live with us since she was so unhappy in the nursing home. How to I tell her I don't want her to live with us anymore? It would mean a nursing home for her and that would probably just about kill her. She DID NOT adjust well the last time she was in a nursing home. Any suggestions would be appreciated.
Dads only 65 and that's young and I have been doing this for going on 6 years. And the guilt thing I feel it every day why? Don't know, just I feel sorry for him but I am tired too. And catholic too. I am 42 and I want my life back because I can't think of a time when dad was a good dad just his drinking and today we went out and I am so scared he will fall I am a nervous reck. But he was talking about when he drank and all the "fun" he had and I said now "we" are paying for all that fun.
But I still know when I see him is the only time I see he is happy then he goes today you know how I get. Like he wanted sympathy for the broken arm and now with five broken ribs he said he'd rather forget the sympathy. He thinks everyone is going to rally around him if he's sick. First, it was when he was trying to stop drinking and he ended up in the hospital every week because the drinking was killing him now its killing me. How do you win at this???
Oh well, we are still here what do ya do? I told him today he might have to think about going into assisted living again because next week I start my full schedule and cannot be their all day long. He said he would if he has to. We shall see, I guess he's ok if he can get over the pain of the ribs. But the dementia according to the doctors is going to get worse and I would like it to be his decision and not have to force the issue.
Well ladies another day is almost gone and he's still on my mind. We each live with it and yes they are selfish. My cousin has been helping here and their and his wife's dad died and my dad said I hope she can still do my laundry. That's the way they are, I told him not to worry about her at all as long as his laundry gets done...
Talk to you soon, take care..
Alice
Don't let your mom play on your guilt. Go on your trip. My husband and I have not seen our daughter more than a few days in a year. She lives halfway across the country, so mom is gong to a home for 2 weeks. We have a 2 week minimum for respite care at our nursing homes. I don't care what she says because I know that if she objects, she is not thinking clearly, so I have to think for her. I am going to see our daughter in a few months. My daughter and husband come first. We all come first as caregivers. We just forget it sometimes!
Hang in. It sounds like she's reasonably content, so that's good. You're doing well.
Carol
I think they all raised us on "guilt"!or we are all catholics!!
I feel guilty when I fuss about my mom! Im still so grateful to have her, but OH my God I miss my life.
Miss having friends and being able to go when i want and do what I want. Miss my own "stuff"...being able to read a book or take a walk go to happy hour after work or to go out. 7 years and Im looking at alot more, shes 77 and in relatively good shape, a broken hip shoulder, a fall on the ice(Christmas day) thank goodness she was oka!
Seems were all in the same boat. Why are they so mean? Why didnt they stay in contact with there friends? Why have they turned so selfish?
I think its their generation.
They expect it specially from us daughters!
It always makes me feel better to come here and read your stories. Feeling that others are in the same boat is somewhat soothing and makes me feel a little better about caring for dad.
Its really hard being a daughter and caring for your father. I have seen to many things over the past 5 1/2 years that can never go away, I am tired and ready to live my life but of course, dad still needs help and I am the only one here. And its not fair that I have 3 other sisters that are living their lives with no care of dad in the world. But, we all know this and still I am doing it.
Things have changed--dad has his own apartment now but just went through another episode first fallying and breaking his ribs that turned out to be 5 ribs and not 2. Then he went into delusions for 2 weeks while I was on vacation. Every vacation it happens its always some big episode to be sure I worry about him my whole time away.
The doctors don't want dad to live alone but they don't want to live with him either. I have one more week off and I am spending it getting all the help for dad that I can. My cousin has been helping a little bit but just that little big helps so much. I have found 3 places that will take him to his appointments for free and he is using these services--we had a discussion about it and I told him look I cannot be with you 24/7 and I have a huge load this semester at school since its my last. So he is not allowed to turn down any help we get. I want him to go into assisted living but he of course does not want to be with the old people he always tells me. THe doctors tell me he is going to get worse and worse--I don't know what else to do besides what I am.
I am hoping with a little help I won't have to do everything. Just that will help me.
But, I am tired and I know how everyone else feels--sometimes I am crazy with all of this being so much and somehow it gets done. Not knowing when an end will come has to be the biggest thing of all.
dejavu--you need to thing of yourself and your baby because this could go on for a long period of time. You or your husband do not owe your lives to care of her. Their are places for her that you can visit on your terms. I hope you can do this for your sake and the new babies.
Life is short and carries no guarantees as to what the future holds. Focus on your husband and baby. My advice to all of you who are in this situation and are still young is to plan ahead! You see what it is like. We have one daughter who will be thirty next summer. I have promised her that I will never put her in the position that I am in with my mom. We have a house that is much too big for us. When the market gets a little better, we are selling, moving to a more manageable home and putting money in a trust so that the state can't get their greedy hands on it. Get a good estate lawyer and let that person plan your future so that you will be taken care of and your family will not suffer. Long term health care to too expensive and does not cover everything, but a good lawyer can tell you the alternatives. I love my daughter enough to not want her to spend her life taking care of me and missing out on what I am missing out on. Good Luck and congratulations on the baby!
You are a well spoken, lovely person. I started caregiving for my father at the same age as you are now. I am now 46 and am still doing it, not half heartedly, no heartedly. My mother and father both live with me after losing my home in Hurricane Katrina. My father, too, has had 3 strokes and is in a wheelchair permanently. My advice to you, is with your new baby coming, you may need to consider putting her in a nursing home. I was pregnant for my first child when my dad has his first stroke 21 years ago. My oldest daughter is now 21 years old and has many frustrations about growing up around sickness. I didn't know I affecting her at the time, but she is quite angry about it now.
I know it is hard, at one time, I would have chose taking care of my parents over what my husband and children wanted, thinking I was doing the right thing for caring and wonderful parents. It is not worth giving up your life for. I am now 20 years older and my life is passing me by. I don't know when any of this will end and neither do you and your husband.
I don't mean to sound harsh, I just don't want to see you 20 years down the line feeling as desperate as I do.
Love,
marylynne
I just need to add a note to your comment about all the sacrifices our parents made. My mother sacrificed her life because of my dad. HE never sacrificed anything. And just so you know, I took care of him his last years, and have no regrets. But I did that because my mother taught me how to be in this world. I did not sacrifice myself for him, I simply did what needed to be done. But had I not had YEARS of therapy, I would not have given that man the time of day, much less my time and energy. Not all parents are loving and kind. I would love to be able to tell you I loved him, but I did not. He made that happen, not me. There are a lot of crazy,dysfunctional old folks out there getting very good care because we are good people with good hearts. But not everyone can take the abuse and still have a life. He did not abuse me while in my care, there were some boundries set before I even attempted to take him on. Each one of us have our limits and that is what this sight is for. To help each other, listen and share.
You are very blessed to have had such great parents. Some of us did not get that blessing.
Tell us how you really feel! You don't have to sugarcoat it for us! You are certainly a spitfire and I love it.
My mom is 90 and still lives in her home of 50 years. I do more and more for her so she can stay in her home. I certainly don't want her living with me and elder care would mean just as much work or maybe more for me. Besides with assisted living or nursing home care I would lose control of what was being done. Like sticking a tube up her rectum. (That's just plain cruel. What are the medical types thinking?)
I write complaining emails to my sister who lives on the other side of the country and she told me that I am enabling Mother to live in her home. Well I guess I am. Isn't that the point of what I'm doing? I guess my sister thinks I should stick her in assisted living and walk away. I'd like to do that but it's just not the right thing to do. The woman is like a child and she looks to me to guide her around in a very confusing world.
I hate being out with her in the ice and snow because her balance is so poor and she reels around. She has fallen a couple of times and bounced with no problems. I pick up her earrings and glasses and help her get up. But what if she falls on me and I get hurt? I've had a couple of injuries doing things for her. Serious stuff that required medical care.
She doesn't seem to consider the possibiltiy that I can be incapacitated. I suppose it's the narcissism that has plagued her all her life. And she really doesn't have much capacity to reason. Never has. Did she never grew up because she didn't have to earn a living and deal with the real world? I'd like to have her brain autopsied when she dies. I wonder if there is a big tumor or malformation somewhere. It's just beyond me how anyone can be so self-centered and uncaring about those around her especially when she needs others for her survival.
What a dopey frustrating situation this all is.
She isn't ready for a nursing home and when the time does come thats exactly where she is going that's what they are there for. I work for a Healthcare system and it is only 3 min away so I will keep an eye on whats going on anyway I am a force to be reckoned with and the people over there know it. All 5/2 122 lbs of me. When dad was in the hospital for the last time they had a plastic tube in his rectum. He was skin and bones hadn't ate in 3 weeks, had a massive stroke and was told to keep him comfy and not worry with anything else because we knew this was it. I blew out of that room because he was in so much pain from it and told them whoever the smart ass was that put that tube in his ass better get it out right now or I would put it up theirs, Oh boy, (I work there) what a ruckus oh the doctor ordered it. Well, I don't care who ordered it, I just ordered it out and I mean now. It was taken out poor man. The little nurse was so petrified by me I think they had to hold her for a few hours before she could go back to work.
Anyway, I get off track sometimes..... When mom goes the government can take her SS check I don't care, I just want peace. I wish you all the same and hopefully a Happy New Year. neon
" I have also learned that caregiving is not for everyone. It takes a real heart and soul commitment to care for a family member--no matter what the cost!"
Trust me,I had real heart and soul commitment for the past 20 years of my adult life.No matter what the cost is a pretty strong statement.Have you ever tried caregiving when you have breast cancer?To pay with your own health and maybe even your very life is a pretty steep price.I worked in a nursing home for 4 years,caring for the forgotten alot of times.I came home many times crying because I could only do so much.And when all other family members are affected,should they pay too?My circumstances are quite different I suppose,maybe that's why I feel the way I do.
I have also learned that caregiving is not for everyone. It takes a real heart and soul commitment to care for a family member--no matter what the cost! It is most important to realize that you are not alone, that once you have decided to take care of someone, you must find out all the resources available to you--utilizing the resource center on aging in your area, the United Way, and the Senior Citizen centers close to you. There are many resources available--but you must do the research and make the calls.
For those that have decided that taking care of a family member is more than they can handle--ask these above mentioned resources to help you place your family member where they would get the best care that is affordable to you and your family.
Making any decision is difficult--delaying a decision due to doubt-fear-misinformation and poor planning is inexcusable--it makes it difficult for your family and for your senior family member, but most of all for you!
Lastly, make sure that if you do place your family member in a caregiving facility--do not forget to visit often, bring them their favorite snack, cookie, or thing they enjoy, and make sure they have plenty of pictures of their family around them. But, most of all show and tell them how much you "love them".
We should do our best, and in many instances that is to find outside help, call in social services, even get a court appointed guardian, because the relationships in the family are so dysfunctional and toxic that the parent's care can't be handled any other way. That is not a reason for guilt.
Some of you have put up with far too much abuse already - from parents and even siblings. You need to resolve - yes tomorrow will be a new year - resolve to take care of yourself and get the help you need to do that and to take care of the family situation.
Stay strong. That means detaching from the situation enough to drop the guilt and get the help you need.
Carol
You owe your mom only thanks for giving you life
I cannot believe it I just got back from 13 days of vacation. Most of the time I worried about my dad because as usual right before I went he fell and broke 2 ribs. He was taking pain meds that made him crazy acting and he was picked up by the cops for walking around his apartnment building with no shoes and shorts on in the snow acting like he was out of his mind. This all happened 3 days before I went, it seems like everytime I go someplace something happens to him and he is sick or something major goes on. I think he stopped taking his meds to get sick before I went in hopes I would cancel my vacation.
Well it took everything I had but I sent my cousin and uncle to go to the hospital and managed to stay away before I went even though I got calls non stop how bad off he was. I am the only daughter here and the other 3 take no responsibility in his health or life at all. He has 2 brothers and I put it on them and went on vacation anyway, Even though I worried the whole time I think dad has got it in his head that I cannot do it alone.
I just got home and I spoke to him several times the past few days and we have discussed that we need help and he realizes that we are going to ask for it because I cannot take care of him 24/7. His options are basically go into the nursing home or we get some help at home. He called to get his scooter because his balance is so off he keeps falling. He did this alone all by himself. He is coming around on the idea I have a husband and my own life and I do not owe him my entire life till he is gone.
I still feel horrible, don't ask me why but I do. I know that he is lonely and I know that its not my fault but I am a compassionate person and I feel sorry for him--but I am about to get a divorce if I do not lower my efforts and time with him. I am working on this now that I am home.
My plan is to give him all the help he needs. I am going to check out every service in Michigan and we will have help. I already found 3 places that will take him to his appointments for free. I am looking up all the advice I have gotten here and going to make a plan for him. He needs social activities and if that's a day care then so be it--he needs friends and I want him to have some happiness for the remainder of his time. But I know its not my total responsibility and it is so hard not to do everything but I am doing it. I am thinking of myself first from now on I have to.
Your stories are so heartbreaking--neonwacky--I pray for you and hope that you move for your own sake--we had dad in our home and it did not work out but please for yourself get some help in that home and be good to yourself--love yourself and your family first and then realize no matter how much help you give or how much of yourself you give the other person will always be the same--we always expect a different outcome from the same situation and it does not never work. It hurts like hell not to be recognized for all we are doing and all we have sacrificed but we are doing most of it to our own selves. You are sick yourself you need to be taken care of and your needs need to be tended to, if your sick you cannot take care of anyone else. The situation is toxic for you and your family--please find it in your heart to forgive yourself of guilt and love yourself.
Take care and thank you for all the information I have found here.......Alice
yes, that's a joke I don't even have a $1.00. LOl
The hardest thing when taking care of my mother in law 11 years ago with alzheimers was not taking it personally, she never liked me cuz I was never good enough for her baby but here we are next week 38 years later and still good enough for baby boy but thats a whole nother topic. Its hard not to take it personal but its not personal. Its just their frustration will try to find some websites and post when I have a few extra min. neon
I would have social services do a welfare check on your mother and your brother. Your mother sounds mentally ill and your brother has been made to feel useless and needs a lot of psychological help.
The only way out is to detach yourself from this mess and have social services take over. You are helping them by getting help. You can't do more than you are and what you are are doing is ruining your life. Please get help so you can take care of yourself, save your marriage and family, and move on. You can monitor what happens with social services and help in any way you can, but this is something your can't do alone.
Carol