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Hi Ladies,

I'm new, have noticed removed posts too. What isn't supposed to entered here other than helpful tips. Lord knows we need all the helpful tips & support we can get!
Not like we are spies - or sptieful.

I'v enjoyed taking breaks, reading your journeys & adding my own. I'm on the west coast & everyone seems east. Hi from the chilly pacific NW. It's 63 outside. We haven't had summer. Easier on Dad & pets not having the blazing heat.

Bobbi - what a mess. Literally. Have you seen the Hoarding shows on cable TV? Nice to have the condition brought out. It's amazing what people pack in their homes!

Years ago a neighbor in a split level decided to move. They hauled out 4 30' dumpsters of trash! The whole neighborhood could smell it! The new owners ended up replacing all the drywall & flooring they didn'e even have leaky pets! Very ablebodied family.
I hope your experience goes better.

Dad needs a channel change & a catheter drain. Fun stuff.
Hang in there everyone!
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You just got to keep a good sense of Humor, every day as a care giver and just love them. They may be your parents but they are now children, dependent on your direction, as dementia progresses.
My Mom scooped up a whole sheet cake, as it was cooling, to be used for strawberry short cake for our mother's Day dinner.
When I found it missing on the my wire rack, I started searching in the kitchen. I found my cake, crushed up in the silver ware drawer.
I could only laugh, and we got another cake. She was only trying to help, and we had a great Mother's Day.
Demitia, changes the thinking process, They know they must comb hair, but, use the wrong tool to comb hair with, like using a toothbrush, in your case. If the ask, Pass the Shuvel, they may mean pass a spoon, or a pitch fork, could mean, pass a fork......
If I were you I would move my toothbrush to another location, it may have been used more than a comb. Just adapt, get organized, like you would with children.
And have a good sense of Humor, that's the main thing.
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Bobbie321, Good to hear you are getting the work done! Can't wait to hear boat stories.
SS, They gave Mom ativan in the hospital after a fall, last year. But, they neglected to give her the Parkinson's, anti anxiety, and depression meds. No wonder they couldn't calm her down. By the time I realized that she hadn't gotten her regular meds, she was a blithering idiot. It took the nursing home 4 days to straighten her out! Mom definitely needs drugs to keep her down.
Daycare called and left me a message today. Found it when I got home from shopping. Mom had managed to tip her special non-tip walker , over backwards. Of course they had to do an incident report etc. They were not happy, but they also were not watching her. They don't do 1 on 1, but if someone other than clients had been in the room, they should have noticed her pushing herself back on it. I already got the doctor to put her on Seroquel to calm her down while at daycare. The director said she doesn't know what the plan can be for Mom to keep her safe while there. I say they need to do what they are paid for, and keep a better eye on her. Of course I didn't say that to them, because I don't want them to kick her out of the program. That would STINK!!!
By the way, did you know my mom had a baby the other night? And the fan that was blowing in the hospital room made it nice and cool! She's been home the whole time, and of course, did not have a baby. She keeps saying she needs to go to the hospital to see her new baby!!!! Other than the last 2 paragraphs, things are as usual.
Oh! Does anyone have any good ideas on have to unclog a kitchen sink without calling the plumber? Used baking soda and vinegar last night. It was the only thing in the house. I put 2 1/2 bottles of Draino in this afternoon, and need to check the last dose.
Got to go. My FIL turned 100 years old today, and we are going to his house for cake tonight. So I need to get dinner going.
Take care everyone!
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deefer, Happy 100th to your FIL!! That's awesome!! And, yep, you gotta watch the care, even at hospitals. I think it was twice when Mom was there for her fall that they did not remove her nitro patch at night. I hear ya...they need to do their jobs!!!!
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That's why I stayed at the hospital the entire time except for to go home and sleep. Felt like I had to watch them and Mom to make sure everything was okay. I thought about spending the night too but I would have been a zombie.
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Miz if you need to spend the night at the hospital ask for a sleeper chair or use a sofa in the waiting room or even better find where the ICU waiting room it it is usually in a quiet place -just let the staff know where you are -I spent many a night sleeping at the hospital as a staff member and as a family member and you can usually find a linen cart with blanklets.
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Hi Shipmates,

Nothing new to report here. Miz, I so understand the constant guilt no matter how much I do for mom. Sunday mom informed me I don't care for her. This was all in response to my suggesting she sit down and sort through a storage box instead of stooping over it and falling head first. No matter how I try to help it is met with hurtful comments and it's always your fault no matter the issue.

Whenever I've had mom in the hospital I move in with her. I don't leave her, even at night since she had no idea what she should or shouldn't be taking and asking why if something new is added. This last time she got a bad case of "sundowners syndrome" and scared the crap out of me. I had never experienced this and I was sure she had had a stroke or something.

I may not acknowledge each and every one of you when I post, but you guys have been my lifesaver soooooooo many times. I would have lost it long ago if it weren't for y'all. Thank you for your big hearts!

Bobbie321 I can meet you in Charleston. Just let me know when and I will be there!

Have a good night everyone. Rest well so we can face another adventure tomorrow.

Diane
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Flex!

I KNEW there was someone in Charleston! Cool. should be a little over a month from next week. I'll keep everyone posted on the progress of the Barbara B as we go through some refit and repair in N. Fla and then up the East Coast. I've heard that Charleston Harbor is absolutely beautiful.

Miz: guilt. the gift the keeps on giving. In your conscious mind you know that you have nothing to be guilty for. You have done more than most any one would. Most of us have done more than anyone would given these sickening circumstances we find ourselves in.
Could it be that the guilt you feel is really helplessness? We also know in our conscious minds that we are helpless as we watch the disease progress and no matter what we do it will win. Period. Heartbreaking yes and a torment for us and a torment for our parents/spouses.

Miz, the depression and guilt you feel are a natural part of this type of caregiving, but that doesn't mean that these feelings are right. They are REAL, but they are not TRUE.

I talk out loud to myself (probably not a big surprise to you guys) and when I feel the guilt because I didn't do this little thing or because I couldn't convince a stupid municipality to get with it so mom could see her new bookstore before she died, I just throw (literally) my hands up in the air and say out loud: I did my best. She lived 2 years longer than the experts prognosed. God knows the truth, end of story.

Miz, you are doing wonders with your mom. Flex knows how hard it is when the disease makes them say all kinds of bs and Miz has a sweet mama, but guilt is part of it and I'm no saint. I get hit with it and I do what I just said I do. Just say NO.
and then have a strong cup of coffee and a Prozac!

Miz we're here for you and you just tell us if you're feeling guilty and we'll tell you to knock it off, you're doing great. You're a great daughter to your mom and at the end of it all, after the grief begins to subside and you understand that you mom is whole and happy again with God you will feel the burden begin to lift.

Now you just have to shove it off of you and tell guilt to go pee up a rope. the depression should be treated because it's 2010 and we don't have to suffer like that.

Go do something goofy, like vaseline some doorknobs in the house and sit back and watch the fun.

I love you Miz. And everybody. Please let me take this opportunity to thank you all again for saving my hide so many times.

lovbob
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Hey Bobbie, you might want to check out Mathews, Va. We have a beautiful town here. We're right off the Chesapeake Bay. Quaint little town, don't even have a stop light yet. If you come on a weekend there are lots of neat little shops and vendors selling fresh veggies and seafood and such.
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good morning . woke up hearin pa yellin screamin . he s hungry !
today he will be going to throat dr and prob go pig out somewhere for lunch . hope he doesnt get too loud while we go pig out . sometimes when he said i wanna go pig out i thought yeah u would sound like a pig eating like its never ate before . am kinda scared to take him out to pig out , lol
man i wish i live along the ocean and hollar for ya to come swing by an pick me up . michigan is prob about 4 hrs drive for me . cant go anywhere yet , i have feelin pa s gonna live to be over 100 yrs old . he s a hellva fighter ,

remmy ladies we re so damn good and do our best for our parents , an everyday job is a blessing . xoox
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Bobbie321, you're a hoot, and a great lady! I just love your encouragement for everyone (Miz), and your sense of humor. I also love your work ethics, zest for life, and sense of adventure and fun. What a blessing you are! I love hearing about your boat plans.

In fact, each in your own way, all of you ladies are a blessing!

Miz, you hang in there. Somewhere down the road, with a bit different perspective, you'll look back, and see what a blessing you've been to your mom, and to your husband. Let me tell you right now, you have been a great friend, and wonderful blessing in my life. Love you! So glad you're here. Thanks for your compassion and love!

lhardebeck, if you're only 4 hours from Michigan, we're probably the closest in proximity. Meeting half way is only 2. Just a thought...

OK, you're right (who said it?): Where is PirateGal? And I wonder how Pamela is doing with her mom? ~ Has anyone heard?

Welcome to the newbies! I'll check back as able. Lots to do today.
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Austin,. thanks so much for the suggestions about staying with Mom at the hospital. dtflex, if it happens again I am definitely going to stay with her. I think they would haven given me a bed in her room. The only problem is I take a medication at night and if I don't get at least 8 hours of good sleep I am worthless the next day. Last time, they had her near the nurses station but we still had to wait quite a bit when we would call them. That's so frustrating. They had an alarm set on her bed so they would know if she got up. I think at least once it was turned off. :( Ah well, I'll cross that bridge if and when I get to it.

You are all such angels. What would I ever do without all of you? I'd hate to think of it. I don't know where we would all get such support. Thank you so very much.

love,
miz
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Well I found the energy to clean the bathroom and shower/tub today. It may not sound like much but it's a p.i.t.a. I think I'd rather have a root canal. ;)
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I hate root canals! I'd rather clean the shower...well, sometimes.
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I'm very,very sad. I had to give up today in court for no reason other than not havin the money to tell the truth.Just as O.J. AND Mary Winkler got by with murder,my brothers were not even questioned.The lack of respect the court system has for the word caregiver is mind bogglin.It did not matter at all that my brothers were not around,it did not matter how many times,I came to the rescue,it did not matter that he did not come to the funeral.Well, so much for the truth and trying to do the right thing,I was hoping I could explain to my daughter that stickin to the truth rewards you,but she has gotten to see the ones with the bestest lie comes out on top.
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tennessee, I'm so very sorry. That makes me mad as hell. When are caregivers going to be given the credit and respect we deserve? Your daughter knows that you did the right thing no matter what and that sometimes life isn't fair. The truth is always best, no matter what. I'm so sorry for what you went through and are going through.

love,
miz
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Well said, Miz!
Ditto from Rip.
I hope we can all be here to support you.
I don't imagine posts on this site, the agony & cries for help, might be admitted in court?

Hearts go out to you!
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i'M going to be shell shocked about this for a while.The 400 arces is right across the road from me and they have already got a new saw mill going.Are there any happy legal stories
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Are there any good affordable school systems.More or likely,they would be where the cost of living is the highest.Wondering if we should move since there is going to be so much change around here.Where are best schools.
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Tennessee-your reward will be when you meet the real Judge-he wii say come on in and you will be in his presence forever-I am so sorry for what you are going through, There are good schools-my grand-daughter went to an excellent one when she went to live with her Dad and got in with a great group of kids.
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good morning ladies .
tenn no matter where you go its always something going on. on the other side of the fence . am sorry to hear theyre building a sawmill . maybe u get free wood to burn wood all winter long . i wont go to court cuz its all about money and it just drags on and on for more money . then u lose ! , might just swell go to casino and put ur money in that machine . is ur daughter wanting to leave her friends behind if she had to go to a new school ? now days i be scared to even think about transfering to another school .

took dad to throat dr yesterday . :-( . dr said his muscles in back of his throat is not working right and its normal for people at his age . says thats when they get the feeding tube put in .when dad no longer can swallow. dr sat there and blah blah about it in front of dad .
after that we went to china buffett and i wish i never took him there . he acts like he couldnt swallow , what he put in his mouth came back out slimey . awful mess . then try to put him in th evan to get him back home , oh my gosh it took me and my daughter s strength to get him inside the van . he whine and whine all day long . didnt wanna talk just whine .
i had to leave the house , it got to me real bad . i tried to lay down for a nap it didnt work . daughter told me to go somewhere . so i did .
went to my gfriend s house and had a cookout and a bonire . it was nice then on the way home i stop at my old job and see some coworkers , all of em was begging me to come back , i told them i could never come back , that place wears my body out . then i got to thinking , never say never . they needed people real bad , cant keep epople . oh well no wonder they cant keep people .
anyway it was nice getting away . too bad time just flew !
got to thinkin last night i need to sit down and have a herat talk to pa . does he wants the feeding tube ? or he realy has no choice ? its makin me sick .
s.s when time comes we could meet half way and go find bobbie !!! i live past indy indiana . ridng in bobbie s boat will make my dreams come true ! i never been to michgian but that gps will take us to bobbie !! :-)
xoxoox
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lhardebeck, a feeding tube is an awful way to go! FIL had one, but we stopped it. He chokes on each bite, but it's better than liquid "nutrition" pouring into his belly. Ugh!

tennessee, sorry for your troubles!
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Grandfather Carer here, on grossed out venting: I have had to leave the table after coughing fits sent his dentures and bits of food flying at me, the food and spit landing on my plate and arms and face. The picking up of food spillage and re eating it has me almost gagging. He tries to give my dog chocolate cake if not watched, or when he thinks we are not watching. I will not eat anything he has touched and spray Lysol like it is going out of style on every surface he has contact with. We have been at the "doesn't wash, doesn't flush" stage for a while now and have had a few curious incidents of "stomach flu" in the past four years. No one expected this to go on this long...
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welcome jsomebody . you came to the right place .
yes i do the same i try to sit with dad durin the meal time but then i got parniod that he will do something to my plate , i end up walkin away with my plate , poor guy sits alone and eat . sometimes i wait till after he s done eating , i be oding dishes or cleanin up stuff around him so i can watch him and make sure he doesnt choke .
yesterday his throa t dr said that his muscles in the back of throat isnt workin right anymore . so i guess it is a blessing to watch him eat now than never again . i m not sure about the feeding tube .
i am going to have a talk with dad after he s done eating . i need to know what he wants ....:-(
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lhardbeck, yes I have discovered great interest myself in dishes while he is eating...wiping the counter down...putting away dish towels, I am there but not there you know...I think the throat muscles not working may be part of what we have going on here. He will cough and try to hold it in to the point of turning purple, never thinks to wash it down with water and then tries to blame the food, it is always.."something green in that salad, gravy, sauce" what ever it is, and it is things he could eat say a month ago so it is getting worse.
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I'm with you on the eating habits! My siblings said I should at least sit at the table with Mom when she eats. I told them they could take turns if they were so worried about her eating alone. The things she does, make me gag! She constantly plays with the food on her plate, and uses both hands to feed herself. She needs a bath when she is done. Then there is the spitting out of food that is half chewed, or the stuff she will hold in her mouth forever! She is in a wheelchair most of the time, and will constantly push herself back, away from the food. We must push her back to the table at least a dozen times at each meal. It's very frustrating when you are dealing with it day after day!
Linda, sorry about your dad. Mom has Parkinson's and will eventually not be able to swallow her food. Right now, she only has problems when having an anxiety attack.
Jsomebody, Mom complains about everything I feed her. Too hot, too cold, not enough salt, or "not that crap again!" Got to love it!!! We all know they can't help the way they are, but it doesn't make it any easier to deal with.
Must be the heat, because I'm feeling depressed today. I don't usually let things get to me, but I'm feeling it today. Guess I'll get to the housework, and endless paperwork that I have let go. Maybe getting something accomplished before Mom gets home from daycare will make me feel better.
Take care everyone!
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I am laughing at this mishap! I am frustrated at things my mom does and in my world it is just terrible. There are others out there going through the same stuff and it makes me feel like I am not alone with the issues. We do need to vent, get it out and let it go. Take the toothbrush, buy a new one(hide it) and hug our parent or loved one even if they do not like us much. Wow that all sounds so good written down. I will try my own advice and keep smiling at the adventures of Mom!
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good morning sailors .
hope everyone s doing good . im feeling down in the dumps thinkin maybe depressions is my pblm . i wake up in the morning and thinkin blah another long day . dont wanna do this dont wanna do that but creep my lazy hindend to go do it . i miss my hubbly hyperactive hindend .
i need bobbies coffee .
deefer , we sound alike . maybe its the weather ? maybe its same old sh## everyday . maybe its time we hop in the car and just keep on driving till we find bobbie s boat . i realy believe that once we get on bobbie s boat we sure will feel brand new person , of course that coffee ! lol
ok what to do today ? take care of pa , he s still in bed , think i am ready to go wak ehim up and hear him waaa waaaaaa wa aaa .
i tried to get him to walk but nah its waaaaa. if he wants to answer me he will say yes or no .
i talked to him yesterday about the feeding tube . pa when ur muscles in back of ur throat quits working , do u want a feeding tube ? he said no no feeding tube .
mmm thats another thing to be depress about . knowing im gonna be facin the horrible way to die . :-( l=hear him gurggling and gaspin . ohh lord nooooooooo.
why do we good caregivers put everything on hold to care for our parents and yet having to face the worst ending ?
xoxo
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I had a "day off" yesterday. A new caregiver to help out is here. I did the finances and figures out how much money my mom will have, for how long to cover the cost of taking care of her. I feel good one day and the next, well depressed, blah whatever creeps back in! So, it is a crap shoot,,,,how long will the money last, well I do know that if we stick to a budget (she still has been able to go into the bank right next to where she lives and take out money, $1000.00 in the last two weeks, it is in her purse) how long will my mom last? Will the money hold out? This is depressing. I am trying to get away for a few days, regroup in my head and looking forward to it. I do have guilt for leaving, I have it all worked out to be in constant contact (is that a break?) We are so feeling the same feelings and I am glad I can vent, discuss here in this forum. I am so grateful for this as I have yet to find a "support group" Hi my name is Laurie and I have a demented mother....hi laurie............
Hang in there fellow depressed beings. We are doing this and take some time for yourselves, I know this is importatnt!
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When he can no longer swallow, he'll slow, and won't feel the pain. It would be hardest on you. You have his word on this. Sad. Sweetheart, death is a natural part of existence. You know that. We can't hold them indefinitely. Only God knows what breath will be the last. He will be there to comfort you. Your dad knows what he wants, and sounds like he understands the implications. Just love the fire out of him the rest of his days (I know you do). You are his blessing, and his angel. God bless you for caring for your daddy.

One day, the boat will be a nice refuge. We alI know you won't leave your daddy right now. But a nice cup of coffee sounds wonderful. I'm having one with you as we read and write together. Can't wait to get on that boat some day. But I know that means my dad won't be coming with me. UGH! So the boat is bittersweet.
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