Follow
Share

My 34vyr old daughter helps me during the day and night. I used to get up and back in bed by myself, but about 40 days ago edema got worse AND I also experienced a groin pull so, now need help every 4 hours at night. My daughter is getting exhausted by night help she has to provide. We are working on getting lower bed and a power lift recliner for living room. So I can do more myself. My husband is 72 and cannot provide the liting up I need at night. The bed frame I bought from mattress firm was redesigned before delivery and the one they gave me does not adjust lower as the one I originally ordered and paid for. They will take it all back give me different bed frame and mattress, but the groin pull and edema makes it hard to go pick out a new frame and mattress. Already switched out once. Frame has no ability to go lower. I am too tired to go try out beds and power lift recliners. My husband is slow moving and takes long time to do things.

Find Care & Housing
Rather than a "lower bed" get a Hospital Bed.
The bed can be raised to make it easier for your daughter to care for you.
The bed can be lowered to a positions where it is easier for you to get in and out of bed.
And I have to say, and this might not be what you want to hear...
Use disposable incontinence underwear at night. that way there is no urgency to get up and to the bathroom. This may be a temporary solution or a long term solution take each day as it comes.

You can get a caregiver for nights is that makes you more comfortable. You can pick the time the caregiver is there. Overnights might be a bit more expensive. But it would help your daughter particularly if the caregiver is there long enough in the morning to get you up, showered and dressed that is one less thing your daughter has to do. During the night she can do your laundry taking one more task off daughters "to do list"
(0)
Report

Do you have a bed handrail and a bedside commode?
Those are both inexpensive and very helpful.
(0)
Report

There are solutions but all of them come with a monetary and psychological cost. Pure Wick systems or incontinence briefs can be used over night. You can hire caregivers to come in daily or as needed. Or perhaps you could temporarily move into a care facility while you battle your cancer.
(0)
Report

I have lots of doctors appointments with perentisis every 10 days now and Keytruda infusions every 3 weeks in morning. Getting to Kaiser is exhausting for all of us. Especially morning appointments in cold weather. My husband can go 10 minutes early and get the available wheelchair for when my daughter helps me dress and drives me to appointments. So she can go park and come back. Husband and daughter are with me during appointments.
(0)
Report

Start a Discussion
Subscribe to
Our Newsletter