I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
I fully understand this part of the family thing, and also that the caregiver is "chosen", as we did not volunteer or plan on this. I must fully accept it and realize that God gave me this duty, and will be able to do it with His help.
And I often think to myself that the lazy, the selfish, and the cruel are in worse shape than we are in the light of eternity at least. And then I remember to make sure that while I am busy feeling sad for myself I don't end up excusing myself from being the best person I can be either and fall into those traps myself.
I actually started my own caregivers group in my community and have about 25 people who also provide caregiver for their loved ones. We talk about anger and hate all the time and how all consuming and unproductive it can be. Find the joy in the caring for your loved one...that's all the matters right now!
Here is an update to the original thread "My brother and sister don't help me take care of my mother. I hate them!".
My mother took a severe health turn in May of 2016. Hospice had already been in action for about 3 months. My mother was dying.....I contacted my sister. She and my brother finally came out to see her a week before her death. I believe this was mainly out of guilt...I found out to my horror and shock later, that it was to get all of her jewelry and money! WTF! I could LITERALLY care less about jewelry and money....my mother was DYING!
My mother passed away on June 3, 2016. It was the worst day of my life. I loved her more than anyone ever. I miss her everyday. My sister and brother found out my Mom had made me the sole beneficiary of a death benefit. Before her passing, she told me about this (maybe 10 years ago). She did not trust my brother and sister to use the money for her burial...she knew that I would.
I purchased as nice of a niche as I could for her. I am so happy to have it...I am happy to be able to visit her. My brother and sister wanted to know if there was any money left for them! I still hate them, and hope that their children never treat them this way...and "No", there is no money left because I spent the death benefit on the niche burial...I did just what my mom wanted.
I know that my brother and sister are battling with guilt.....I am not. I did everything I could to take care of my mother....they did NOT! I spent well over $45k supporting my mother when she got disabled.....I don't regret it...I have no guilt after her passing. I have wonderful memories of having coffee and lunch with her...hugging her, and laughing with her. My brother and sister did not bother to do anything...I feel sad for them.
Meanwhile, husband's sisters are going on all sorts of vacations with their children and grandchildren all of the USA and Europe. Posting on FaceBook what a wonder time she is having with her "family". Becoming very very resentful. Arguing and fighting with husband. My husband has 2 sisters that have helped very very little. We always have to ask them to take her while we go on a vacation (2weeks) or take our son to College which is 1 overnight. (we were told 2 weeks vacation was plenty for us) We are watching her 24/7/350 days year. They give us such a hard time and it ends up in a family fight! Husband's cousin stepped in and watched Mom for us for a week several years ago. Grand daughter watched her this Spring when we went on our 2 week vacation. But made it clear that this was not going to be a re-accuring event. None of the family calls an ask to take her for a weekend, days, weeks, etc. Oldest daughter takes her to get her hair done once a month, then states this is her time with Mom, 2 hours with driving time, then comes to our house and I end up cooking dinner for her!. I should do a disappearing act.... And this is her contribution. I was taking her 2 blocks away before to hair dresser, Mom manipulated this deal to see her for the 2 hours a month. My mother-in-law is not bed bound. She can get around slowly, she is 86. IN several days she will be 87, not one has called to ask to take her for an outing. The last birthday they celebrated was her 80th. Maybe they are planning something for her 90th! They do not even bother to call her on holidays, thank her for money presents she sends. Of course, Mom will not say anything to girls. She feels bad, Martyr type. I suggested writing letter to girls, that will not happen.
Youngest daughter said we should just get people in to watch Mom and pay them. (Anything so she does not have to be bothered) I really do not want all kinds of strange people tramping through my house. And the expense.....Mom has some money saved but we are trying to preserve as much as we can in case she needs more and specific care. They have already said they WILL NOT help financially, not a penny.
I can see this is going to get worse and worse.
I am now beyond angry, RAGE is more like it, husband says we can not get them to help. He still is working, I took retirement, because I degenerative disc problems, in pain all time. Also have macular degeneration and there have been changes, so not sure what that will bring. I feel like my Time is running out. I want to put here in respite care every few months, but place for mom counselor said it did not work like that. Or a permanent place . I want my life back. My husband has written A letter telling them that the three of them have to work something out and that I am not the responsible one for their mother. He feels the letter will go nowhere and we will be back to square one with making decisions only to be blamed for whatever decisions we make. Which I have no problem with, he does
It is gotten so good I can't even stand to be in the same room with her. I am going to have to go to a counselor you to handle this rage
You are not alone as you can plainly see from all the responses this subject has received. I can relate to many things you talk about. No vacations for me EVER. My brothers and their wives and step parents and kids all get to have their lives and vacations but they certainly EXPECT to get their share of the money, however little left she may have when she passes on. I also have lower back disc degenerative among other issues with getting older and am in PAIN most of the time. I even learned to be a professsional caregiver since I could not continue with working fulltime when Mom had to move in with my husband and I (her wishes) somehow she must have known my brothers would not care for her like I would. I learned so I could save her money since I get billed out at 30 an hour through my company. I did have a career prior to this. This has caused much strife between my husband and I. I feel too my life is passing me by and by the time I will have my life back again (after Mom passes on) I will be in such bad physical shape, I won't be able to enjoy vacations and do things I would like to do because I will be in so much pain. I have been diagnosed with arthritis in back and bursitis in my hips and I am only 46 soon to be 47. I also have pain in foot and knee. Where will I be phyically when she passes? Resentful? Hell yes! I am trapped as well. Nobody ever offers to help. Just because I am in pain does not mean I get a day off. I am still expected to do my domestic duties, take care of Mom and her lymphatic leg and failing mind. My husband wants nothing to do with it either. Instead, why can't I work more? Not pulling my weight financially because I can't work full time anymore, sometimes I feel like I can hardly wait till until it's my time to "move on." Don't think I mean I want to die but I certainly am not afraid of it! If this is enjoying life, all I can say is I am glad I had a lot of fun when I was younger! I do love my Mom and I am glad I can make the last part of her life as pleasant as possible but I too can only spend so much time with her without losing my mind at times. Also, going through peri-menopause makes everything more challenging keeping my patience in check. *HUGE HUG to you* In the end, we can say, "We did the right thing." I think it's too much to hope for that my brothers will regret and feel guilty for doing NOTHING. Instead, they will blame me that Mom put in her Will that I get 50% of whatever money she has left and they get 25% each. I don't think they deserve a damn cent but there may be nothing left anyway. I dread the day because I know her death will end up bringing out the worst in them however, I will finally tell them I don't want to hear or see them ever again. I will end up the big bad meanie. I will tell them they got their freedom and their sanity, can they put price tag on that?
They each retreated into their own lives and ignored me and mom. After l heard was send her to an institution you are the one who took in the responsibility!
How sad sad. I hope to write a book about my family and the human disconnect someday
You are from from alone in your tragic story. As you can see, this post is filled with similar outrageous stories of greedy, selfish siblings not caring about the very ones who raised and devoted their lives to them. Not all parents were perfect but who among us is? The point of it should be when it comes time when they need us, we should step up and do the right thing but it seems more & more common that it falls upon one child who gets to carry the full responsibility. All I can say is YOU did the right thing and you should hold in your heart that knowledge and comfort. Do not waste your time with the siblings now saying their wishes of "Coulda, shoulda, woulda's" too late for that. Let them live with the guilt, it is now theirs alone to carry. My brothers have no concept of what it is like caring for Mom, instead they resent me and think I somehow talked her into and planned all this. No way did I imagine this would be my life but if it were up to them, she would be in a nursing home where she already spent her whole life working in those depressing facilities as an RN. No way would I do that to her but I did give her a choice of whatever she wanted. She chose to live with me and I accepted the responsibility knowing what my brothers would do. Deep down she must have known too because before she was showing signs of dementia, she made me POA of everything. I have already saved her life a number of times because she is here with me. Try not to let it get you down, time to move on with your life in a positive way knowing you did the right thing. *HUGS*
I am having a very difficult time accepting my loss but now l feel l am not alone. We do so much but yet we often feel is never enough.
I always feel like I am supposed to do more even though I am juggling my work, my home life, chores, taking care of Mom's needs, husband, pets, the never ending list of things that need to be done and I just don't have the time or energy sometimes and it is frustrating. I told Mom the other day I would trade places with her in a minute! LOL!!!! She gets to just relax and enjoy and have everything done for her, wish it were me! Yet...........I feel guilty for taking time for myself just to relax even though I realize it is important I do so for sanity sake, I still feel bad that I am not spending it being productive. Must be that darn Irish Catholic guilt I was brought up with that I can't seem to shed! The most important of all is never lose your sense of humour, I find that to be my life saver at stressful times.
Its very sad, and it seems to happen much too often. There are kind wonderful people like you, who care selflessly with little reward. Then there are those who are so selfish they don't even have the ability to feel guilty for their actions or lack thereof. Hang in there. You are the angel here.