First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I believe that that was Gods sign to you that He's got this and for you to just rest in His presence.
Hang in there. You've got this! Sending love from a beautiful and warm sunny day(77 degrees already with a high of 81 expected)in NC.
Gen 9:13
Then I saw another mighty angel coming down from heaven. He was robed in a cloud with a rainbow over his head; his face was like the sun, and his legs were like fiery pillars.
Rev 10:1
Lea,
I am believing with you with all my heart that the snow rainbow was a beautiful sign just for you! Sending you a bazillion hugs today 💗.
The glory of The Lord.
He is surely with you!
I hope you'll be home soon and relaxing...and taking in all the positive news from the doctors ...wishing you continued Blessings!
I just woke up from a 4 hr nap and boy am I nauseous. Ugh. Woozy too.
Thanks for all the support ladies. NHWM those scriptures are perfect.
I'll be back tomorrow when hopefully I'll be feeling better.
I had an auto immune issue a few years ago and I was amazed at who God put in my path.
We continue to hold you up in prayer and pray a blessing for your medical professionals as well.
Sleep well!
Glad that you were able to get some rest. You got through your second treatment. You have inspired all of us with your grit and determination.
You are a busy woman in spite of what you are going through. You’re a shrewd business woman who has an eye for beautiful and unique objects.
You are a creative designer, which you sell on EBay. You’re a wonderful mother to your children. You’re an amazing and supportive wife. In spite of the challenges, you took great care of your parents.
You have true faith in a prayer. It is most certainly comforting to believe that there is a divine being, our Lord, who is greater than ourselves.
Please know that you have an entire forum of admirers and cheerleaders that are here to help in any way that we can by praying and sending you lots of love and encouragement.
You’re thoughtful of others but I hope that you won’t mind me saying that I have always loved your sass! That’s the New Yorker in you!
Keep the faith, Lea. We all want to celebrate your victorious outcome of this dreadful situation that you are bravely facing.
If you feel a need to cry at times, or sometimes afraid of what lies ahead, that’s okay too. We understand that this is a heavy load to carry.
Suddenly, I am reminded of the poem Footsteps in the Sand. Gosh. I haven’t read that in a very long time. I think that I will read it in honor of you.
Take care, Lea.
(more funny ones from Proverbs... just to show that the Lord has a sense of humor and is a realist)
“Better to live alone in a tumbledown shack than share a mansion with a nagging spouse.”
- Proverbs 21:9 (The Message)
My own ancient bible is a revised Standard Version (last revision 1901) of the King James and puts that verse which I am quite taken with as:
It is better to live in the corner of the
housetop
Than in a house shared with a contentious woman.
I wish I had an old old old King James, and I love the poetry of it all.
You had me looking that one up again, in my poor old bible whose leather is giving up the ghost.
Thanks for that du jour.
Lea, I think no nausea last time???? I know you said appetite is supressed. Are they suggesting any supplemental stuff at all and is the weight holding with this? I hope today is better. If like last time I am afraid some days now of hunkering down and letting your immune system punch those bad cells out. Thinking of you.
Nhwm.....ty for your kind words. I'm busy doing nothing these past 6 weeks, truth be told. Chuck is doing everything. I haven't posted items for sale since December. This last infusion is kicking my butt hard. I've been in bed since yesterday at noon. I really can't move, I'm that exhausted and weak. Chuck is bringing me a cup of soup bc I can't even go to the kitchen. I don't feel full of grit and determination right now, just pain in my right side and sheer exhaustion.
These past weeks must feel like an eternity for you. You have been through so much, both mentally and physically.
Underneath, I still see your strong spirit shining through. I love that you are able to have hope in spite of your odds.
Of course, no one would judge you if you occasionally experience times of doubt. It’s so easy to become discouraged when we are suffering.
I am not only praying for you but also for the medical staff, doctors, nurses, etc. who are caring for you. Your husband received wonderful care during his time of need and I want the same for you.
I wish there was a way to speed up this process and lessen your misery but I know that isn’t possible.
I am so happy that you have a loving husband who is so supportive.
💜
Scripture du jour (more timeless wisdom from Proverbs written by King Solomon):
"Like a gold ring in a pig’s snout is a beautiful face on an empty head."
- Proverbs 11:22 (The Message)
If you have any spark at all the atheist trying to start World War III on the site this a.m. in Discussions (the one who doesn't want good-two-shoes on his doorstep) will likely draw your fire, hee hee. I can't wait! Honestly!!!!! I almost hope the admins don't take him down so you can have some fun with him. Or her. I don't know why I so feel it is a him.
Speaking of having some fun, Need wrote you that you might be feeling like this is all an eternity of time in terms of suffering. I know you are dealing with this stuff, major! But to me you almost have never seemed more alive than you are now on this Forum. You aren't just STILL so Lea. You are even MORE Lea. You are full of joy and hope and determination, and even amidst the pain you are alive with the wonder and beauty of life. It's how I see you, anyway, and I know today your teeth may chatter while the sweat runs down your chest. Speaking of WWIII, your body is engaged in it.
I too am longing to see that vintage jeweled bouguet. Glad she can't throw it; folks might not survive it.
And just to say, I never knew you so well as I know you now. I always loved you, but I never knew there was so much MORE to love.
Hoping to hear your update. Thinking of you so much.
Pecansielli, thank you for your prayers, they mean a lot 😍
Geaton...lol....love the past 2 scripture.
Llamalover, thank you my friend.
NHWM.....the odds are quite good for my life to be extended here. I'm not doubtful or feeling hopeless, I'm tired and feeling more pain in the past 6 weeks of my life than all the rest of the yrs of my life combined. Nobody is strong 100% of the time, including me. Nobody SHOULD be strong all the time in such an intense situation, its not rational. I haven't laughed the past few days. Nothing strikes me funny. I'm more focused on this miserable constipation that I can't seem to get ahead of, even with Miralax daily. 🙄 It's just one MORE fly in this ointment to drive me crazy!
Thank you for your prayers.
My friend sent me a mass card from Rome yesterday, where 10 masses will be said in my name. That was a comforting card to get.
Thank you Bandy, from your lips to God's ears.
I am delighted to hear that your odds are mostly in your favor 😊. You will be so happy when all of this is behind you.
We are so fortunate to have modern medicine today. People in the past didn’t have the opportunities that are available today. I marvel at what can be done these days.
Between you and your husband, you’re getting quite an education on how to treat serious medical issues.
I am glad to hear that you are feeling a bit better today.
How thoughtful of your friend to send a Mass card to you. I have done that often for those in need of prayer, along with burning candles before or after Mass.
I miss the days when churches were open around the clock and I could stop in anytime to kneel and say a quick prayer and burn a candle.
St. Louis Cathedral is open throughout the day due to it being a historical church in the French Quarter.
My mother was christened at the cathedral because my grandparents lived in the French Quarter for a while.
I do stop in there to burn a candle when I am in the Quarter getting my cafe au lait and beignets at Cafe Du Monde.
Lea,
Here is a scripture for you and your dear husband.
Two are better than one, because they have a good return for their labor: if either of them falls down, one can help the other up.
But pity anyone who falls and has no one to help them up.
Also if two lie down together, they will keep warm. But how can one keep warm alone?
Ecclesiastes 4:9
I understand what you are saying. I went on to say that Lea has a serious medical issue.
I was delighted to hear her say that she has a good chance of an extension to her life. That is a plus in my book!
Yes, I agree that having faith is important.
Tonight’s prayer is for something to help with the 💩! Been there after surgery. Whoa, Nellie! It’s sure a predicament!
Hugs from Fl.!
NHWM I understand your verbiage. Nobody wants to use certain words when cancer is at play, but play UP the "good news" that may play out instead. I accept the outcome of all this, whatever it may be. If God thinks I need to live another 10 weeks or 10 years, I'm on board w that decision 😁.
There are no mistakes in God's economy. The actual quote is by Bill W, founder of AA and is as follows:
"In God's economy, nothing is wasted. Through failure, we learn a lesson in humility which is probably needed, painful though it is."
Which doesn't really apply in my case NOW, but I like the part about nothing being wasted in God's economy. Bill Ws words applied to me big time when I was getting sober the 2nd time after falling off the wagon due to ego. "Oh some WINE won't hurt, for petesake!" says the 9 year sober alcoholic one day before going to Italy. Sigh. 7 years it took me to get back ON the wagon with a giant lesson in humility attached to it, painful as it was. It was a failure that I needed. I've been sober now since June 11, 2008. With no desire for a drink nowadays when one would think I'd turn back TO it. I'm grateful to God for no cravings, too.
I've been up all day in my new recliner and in my study a bit too. Almost feeling human except for the pain 😑. Chuck baked giant cinnamon rolls from scratch today....each one would feed 2 hungry people 🙄. The man is baking bread and becoming truly domesticated, its amazing lol.
Your house must smell like heaven, today!
I do think the cinnamon rolls were the ribbon on the gift of Sat 2/25/23. I love that image.
Yes Colleen, but the kitchen looks like hell! 😁 Who cares? I've had a super clean kitchen for 44 years, but nobody baking cinnamon rolls in it. The housekeeper comes next Saturday. Chuck has always loved to cook since I sent him to cooking school for a few lessons as a Christmas gift when we first got together. I've kept him at bay to a degree bc he's a big slob in the kitchen and before all these health crises, THAT was my focus. A clean house. That and $5 will get you a cuppa Starbucks, in reality. My kitchen will be here after Chuck and I are both long gone, let's at least take some good food out of it. Like the homemade 3 cheese ravioli he made in Dec from scratch that we're the best I've ever had, bar none!
I did wind up laughing today after all. Honey my dog jumped up on my recliner and positioned her face in mine to lick me seriously with great intent, on my face and mouth which I HATE. She had me pinned down (she's no lightweight either, thanks to Chuck constantly "dropping " food on the floor) so I had no other choice but to endure The Licking. Which had me laughing. 🤣
Thank you for your PM.