First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
You are so strong and to a degree timing worked to your favor last year. The timing of your mother passing,being able to be out of state with Chick not to mention with such a positive attitude needing strength.
Now you have the quiet times you need to heal and not to attempt stressful activity be it physical or mental which could sap your strength. I have faith in your strength.
I am amazed that you weren't wallowing in self pity and depression, but instead you stay graceful and positive. Lea, you're a beautiful person.
"Taste and see that the Lord is good; blessed is the one who takes refuge in him."
- Psalm 34:8 (NIV)
(...and on the "lighter" side):
"Better a bread crust shared in love than a slab of prime rib served in hate."
Proverbs 15:17 (The Message)
Have a blessed day (love when someone says this to me)
P.S. Pecan, can't respond to individual posts on Discussions. Wish we could.
Constipation!!!! The truth of my mastectomy? . The worst of it was taking the ONE vicodin and the resulting constipation. Honestly I went cement. I was miserable and still remember it as the WORST part of my cancer surgery/recovery. I thought I would have to go to ER for disimpaction. Try some stool softeners, like colace, over the counter. If it goes all cement the only answer I ever found was a fleets OIL retention enema, and boy are they a mess leaking out on everything for days (cover that reclining chair!).
Sorry to go all nurse-ie this a.m. Thinking about you and laughing about the dog all kissie- facing on you. My Mom used to swear their saliva was full of antibiotics and the best thing for us kids. I just posted our co-foster on facebook yesterday; Jeffrey is a big boy who thinks he is a lapdog, and jumps up on me on the recliner. I swear he is going to bust every bone in this old body.
I am real jealous about the cinnamon buns and would accept a filthy kitchen for a pan of them.
Your dog sounds so precious! I can see how you would giggle at her behavior.
I personally think dogs saliva is filled with residue of butt licking and other assorted germs and yuck 😂 Jeffrey sounds like a big mush! Oh and the kitchen wasn't in terrible condition after the cinnamon rolls, either, thankfully!
NHWM Honey is stretched out on a blanket across my legs and I've lost feeling in my left leg as a result. 🤣
PB: I had some crying jags and moments of self pity and pure terror when I first met w the Oncologist, and in the ER that fateful day, and some times in between too. I'd love to say I'm graceful and positive at all times, but I'm not. Sometimes the untreatable pain gets to be too much and I feel despair. That's when prayer kicks in to help. I figure we "die" every night when we go to sleep and lose consciousness. But death will just be passing from one state of consciousness to another. That day when I won't wake up in the morning after going to sleep. Not something I dwell on, but my idea of what transitioning may feel like.
RD, you are right about the timing of everything. I remember when my cousin was dxed with breast cancer and her dh with esophageal cancer at the same time about 13 yrs ago. He needed intensive chemo which he had a very poor reaction to, needing to get a daily IV of fluids at the hospital for, and she needed a double mastectomy. Her son took care of dad and her daughter took care of mom. They're both ok today, cancer free, but closely monitored of course.
JoAnn, thanks for checking in.
Geaton, I didn't think they knew about prime rib in biblical times 😅
Feeling pretty ok today, some fevers on and off, nothing major. Bad pain in my right side, again unresponsive to pain meds so what's the point? The doc said "who knows?" when I asked about it. With THIS much abdominal stuff going on, I guess it's impossible to pinpoint what any one pain may be. I just hope it's not something like appendix or anything that would require surgery 🙄 The doc did say the immunotherapy tends to attack ARTHRITIS which I have a LOT of, and that's why the pain in my feet is gone. He had no explanation for the GERD going away bc it's usually amped UP with immunotherapy. I'll take my blessings where I can.
One day at a time. We're running out of my stepsons great food so I'm gonna text him to hop on it mister! Lol. He's been asking and now's the time to get cooking again. What a blessing.
In honor of JoAnn, I hope you all have a blessed day
The Lord is my shepherd; I shall not want. [2] He maketh me to lie down in green pastures: he leadeth me beside the still waters. [3] He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. [4] Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. [5] Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over. [6] Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.
Lealonnie, I know you are feeling the truth of this Scripture right now.
May HE continue to touch your body and exalt your spirit and faith.
God is still on HIS thrown and by HIS stripes we are made whole.
It is a done deal. Believing this for you with all others lifting you up in prayer.
I love your dog’s name. ‘Honey’ is a sweet name.
Sometimes, I take my daughter’s dog to the dog park. There is a man who brings his solid white retriever there. He named his dog ‘Sugar.’ I think that’s a cute name for a white dog.
Dogs show us unconditional love.
My grandfather had a great sense of humor and he named his black lab, Snow.
Glad everything came out ok🤣🤣🤣
"What a gift life is to those who stay the course! You’ve heard, of course, of Job’s staying power, and you know how God brought it all together for him at the end. That’s because God cares, cares right down to the last detail."
- James 5:10-11 (The Message)
May you and Chuck float on a cloud of prayers today!
Prayers of thankfulness for the cooks in your life, your warm dog, your leather chair, and that you’re still feeling well enough to come here and share your story.
May God supply your every need today!
Daughter, thank you so much for your kind words.
And ITRR, yes, those words are comforting.
Sunday my grandson turns 2. He likes wheels and taking things apart to see how they work. He loves wires too 🙄. Anybody have any ideas for a gift?
Today I'm having some incredibly bad itching in a spot no woman wants to itch in. 😑 Which apparently is common too with immunotherapy. Just for sh!ts and giggles. Why does the Amazon truck always have the item you need most scheduled for delivery last? ARRRGGGGGH
If that's the worst of it for today, oh well--at least a common problem for us all once in a while in life. If maddening.
CX, worried about the eye. Hope you will update us here.
Lea, so glad it is a good day.
Does grandson like legos or are they too small for one so young? My grandson was mad for them and at 24 won't give up his collection of creatures, which are in my poor daughter's attic to this day. He keeps saying worth money!
So glad to hear you are OK today, and always love to check out this thread.
Just checking...
Are you drinking enough water, along with so many prayers for you and Chuck?
I am learning a lot visiting your thread daily.
Love the chair, the cooking lessons, and Chuck cooking some cinnamon rolls for you!
Also, love the coming together of many who believe!
SendHelp, I'm constantly thirsty so I'm drinking tons of water and other fluids, yes. Along with itching, fevers, nausea, sweating, constipation, mood swings, and severe pain in my right side, it's just another day in immunotherapy land waiting for the "really bad" side effects to add to the list. Urine is tainted with cancer cells that are being killed off and coming out that way, so output is decreased but very STRONG. Which probably leads to the massive itching. Skin is greatly affected by these treatments in general and why a grade 4 rash is what stops many from being able to get thru all 4 (only 50% do). So far this round, no rashes for me, thank God. Yes, it is nice to see the coming together of many believers in one place.
I am thinking that you know a whole lot about liver function because you cared for Chuck through his transplant. You both made it through that!
And you will get through this too, I am praying!
"ACV has antibacterial and antifungal properties and can help kill bacteria and yeast on the skin related to conditions like acne, eczema, and dandruff," Gathers explains. ACV's high acidity level may also help some skin conditions, but its high acidity makes it necessary to dilute with water."
I will do that, ty for the suggestion
There are so many causes of itching, even your doc would be surprised if you were not itching at this point.
Magnatiles are my grandson’s FAVORITE. He builds in 3d in his room, and also 2d on the fridge/dishwasher/garage door, etc. There are starter, as well as add-on packs, all on Amazon.
Alva,
So, I have dry eyes. I use single-use vials of drops a few times a day. If I get up to use the bathroom in the middle of the night, I have to put some drops in, so my eyes even open. 🤪
Well, a couple of weeks ago, in the middle of the night, I apparently didn’t gauge how far my eye was from my hand, and caused the dumb abrasion! Rx-antibiotics. Patch for 2 days. 🏴☠️
A week later, the eye seemed worse. Doc took a look, and there was now herpes simplex virus in the abrasion! Gaaaah! 🤨
Oral and topical antivirals (5x/day) to the rescue. 👩🏽⚕️ 🏥
Today, all clear! Phew! 🎉
Thinking of you today and always.
This is not meant to make light
Hope that your pain level is at bay
May God hear your plight = nds, 2/27/23
Save me, O God, for the floodwaters are up to my neck!
Psalm 69:1
"But you, Lord, are a shield around me, my glory, the One who lifts my head high."
- Psalm 3:3 (NIV)
LL, may He lift your head (and eyes) high to see beyond your circumstances of today.
Lea, hoping this is a good day. Thinking about you this early and rainy day. We are so lucky in California to be getting rain and snow pack after such a long drought. But it's a bit dreary. I comfort myself with my rain gauge readings.
Looking forward to your daily update for us.
DD wanted to get Magnatiles for my grandson but they're for 3 and up. He's 2.
JoAnn.... I thought it was acidophilus that helps with yeast? The Vagisil numbing cream is working fine bc it doesn't seem to be yeast. But I ordered Monistat if needed. It's like playing Whack-A-Mole with these stupid side effects.
Thank you NHWM and llamalover 😍
Today and yesterday afternoon and evening I've been very nauseous, but my pain levels have improved. I'm hoping for a good day today....my diaphragm feels a LOT better, like I can fill my lungs now w/o pain. Definitely a blessing.
My goal was to go to 1 estate sale as of March 1 which is tomorrow. Not sure I'm quite there yet (due to back pain only), but getting closer, thank God.