First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I missed the scripture du jour today... better late than never.
Because you desire strength, know that you have a Powerful God who loves you:
"Then Moses and the Israelites sang this song to God, giving voice together,
I’m singing my heart out to God—what a victory!
He pitched horse and rider into the sea.
God is my strength, God is my song,
and, yes! God is my salvation.
This is the kind of God I have
and I’m telling the world!
This is the God of my father—
I’m spreading the news far and wide!
God is a fighter,
pure God, through and through."
- Exodus 15:2-3 (The Message)
I know that was for some of you TMI, but if it can help you Lealonnie, it might be worth mentioning it to your doctor.
Anyway, praying that you get some relief!
Maybe Chuck can put his phone on that accessibility feature that causes it to flash when it rings? Maybe it would wake him up, if placed just so, on his night stand? I guess that would also mean that you’d have to take yours to the 🚽 in the middle of the night!
Okay, I will hush and pray, like I said ⬆️. 😎
Sending love and prayers for your continued healing ...we're all thinking about you :)
Colleen, all these types of meds leave me feeling weepy
The wooziness is lifting a bit too. The nurse said I have to go to the gynecologist now to see what the itching is all about. I'm disliking her more and more ughhhhhhhh. Bandy, did you doubt your story about your hospitalization over an untreated yeast infection WOULD leave me feeling anxious with all the rest of the chaos going on???????? 🤯 Here I am w similar symptoms except not ongoing for 6 months. My right side pain is on again/off again.
Hope, ginger ale is my go to drink.
FunkyG, the 2x a day miralax regimen w the rest of it should hopefully keep me regular....if not, thanks for the heads up.
NHWM, the shells weren't intentional. Just a sign of a bad cook of eggs 🙄.....who still insisted on cooking eggs.
I bought a new tablet and the keyboard is SO SMALL it's frustrating the snot out of me. I'm packing the pos up now and sending it back.
Sorry I totally missed the sarcasm in your remark about eggshells. LOL
I have one daughter who loves eggs, and the other one won’t touch scrambled eggs, poached yes, fried yes, boiled, yes but won’t go near scrambled eggs!
I am so glad that you are feeling better. Yay! Everyone had great suggestions!
Childhood memories are funny. Like yours with the eggs. I wouldn’t eat spinach for years because my brother told me that they only served it on the day that they mowed the lawn at our school. LOL I was only in the first grade, so I took the bait! I thought they were serving lawn clippings!
Loved your advice! Nothing like hearing the actual facts. I will say it again. you were a blessing to your darling husband. We are all learning lots of practical advice on nausea and constipation.
Just like Lea and Chuck are for each other. It’s so lovely to see such love and support.
On the subject of dizziness, I can relate, having been dx'd with presyncope a year and a half ago. I am glad that your dizziness has abated.
"Take a good look at God’s work.
Who could simplify and reduce Creation’s curves and angles
To a plain straight line?
On a good day, enjoy yourself;
On a bad day, examine your conscience.
God arranges for both kinds of days
So that we won’t take anything for granted."
- Ecclesiastes 7:3-14 (The Message)
Words from King Solomon, a man who "had it all".
If you struggle to find meds that control your nausea, maybe ask about Stugeron (cinnarizine). IDK if it's available in the US (it is in Canada). My youngest son (the experienced open-sea sailor) swears by it over Zofran. I've not taken it myself, but only putting it out there as something to ask about if you run out of solutions. My son can't sing its praises enough.
I hope today is filled with peace and comfort ~
XO
She never cut school again.
Any of these meds that work so well for one thing can have a depressant affect. Guess you will have to tell yourself you deserve that good cry.
Lordy, now the gyne? Can your regular doc not let you just bring in a swab? Did you try monistat just "in case" it's a yeast. Seems like if it isn't one thing it is another.
I hope this is a good day for you. You are so in the thoughts of us all.
The nurse hasn't called me as if 245pm on Friday, just as well. Alva, the Monistat arrived and I'll begin the 3 day course tonight.
GERD is creeping back in, I was up 3x last night to eat TUMS. I'm not surprised but it was nice to be rid of it while it lasted. I did 10 min of lite cleaning earlier in my kitchen and had to come lay on my heating pad for my back pain.
The wing chair I had to list for free on Marketplace (Which was going to be free anyway). The lady who picked it up this morning said WOW THAT'S BIG which she'd have known in advance had she read the listing. 🙄 She seemed disappointed and sorry she came to get it, so maybe they dropped it off at Goodwill on their way home. Not the situation I was hoping for with a high end carved claw foot chair, but oh well. It's out of MY house anyway.
Did anyone know Jimmy Carter survived stage 4 metastatic melanoma that was in his brain? He had it in 2015 at NINETY ONE and went thru immunotherapy. Has had clean PET scans ever since! That gives me hope.
Thanks all, for the kind words and posts.
I was away from AC forum for some time, just reading your story, so sorry.
Wishing you total recovery.
And I was reading about Jimmy Carter and yes he had immunotherapy in 2015 at age 91. Now he is still alive at age 98! And you are so much younger!
Praying for relief for the itching. It’s crazy-making, for sure!
You are my sort of "Dr Laura" of Aging Care. The one who can read it and size it up in minutes; her callers will sometimes say a quiet "wow. woooowwww. All these years of therapy....". You are able to do what she does, just by nature I think, because no amount of teaching can teach it.
I just love your style.
Asking God for the side effects to ease up, those cancer cells to be destroyed, and for peace to keep reigning in your hearts!
Following Geaton's lead, I offer my favorite scripture verses to bring you comfort:
God is our refuge and strength, an ever-present help in time of trouble. Psalms 46:1
Be still, and know that I am God. Psalms 46:10
I don't post often, but I vividly remember logging on to AgingCare while in the deep pit of "Dad care" in the spring of 2020. Lea, your posts touched me from the very beginning. You were honest, funny and had a keen sense of self-preservation. I needed all three! Still do! You have helped me tremendously and I will forever be grateful for your words of wisdom - and the belly laughs! Keeping you in my prayers wonderful lady!
Hugs, hugs and more hugs. Of course, lots of prayers too.
Ativan is a scary medication for me. Only one pill and I was standing next to myself (out of body) as if I was watching a slow motion movie. You are right to be ever so careful.
Not all of the immunotherapy side effects are from the injection maybe. Your doctor still needs to be aware that, for example, your symptoms could be
gall bladder. Don't want to worry you. Just be aware.
Still, more prayers this will be going better for you, more peace, more comfort.
But so sorry it didn't work for you. Have you tried Gravol for the nausea?
I still pray for you nightly.
Prayer gone up and...haveca blessed day.
I'm glad you've been eating watermelon - hope it helps to hydrate you (and coconut water helped me to hydrate more than regular water).
And just think that the feeling of nausea is the cancer cells are surrendering and leaving your body.
Wishing you an easy day
XO