
So I’m 28 years old and my single mother who raised me is 53 now and is suffering from a very early but rapid bout of Alzheimer’s. My grandma of 75 and my aunt of 56 are her primary caregivers for the most part (there is this agency that helps some days) Any suggestions on how to cope with it and be more understanding about her condition? I feel like I’m still in shock and can’t grasp the reality of this.. any advice helps.
i found this forum and the wise souls guidance when my Dad had vascular dementia.
i certainly found the shock of becoming a carer and what was before me hard and all the tips and points in the directions needed helped me no end. I bought a book - the 36 hour day - on many recommendations and followed Teepa Snow. it all helped as did being able to talk to people going through similar things, I learnt so much to help get my dad showered!
im sorry sorry for your mums diagnosis
take care
The earlier the case in terms of years, the often more dramatic the progression it seems to me. And sadly, because the body itself is young, life goes on.
Please start with videos such as all of Teepa Snow you can find. And know the internet is your friend. Facebook has support groups for family members and Alz.org will have information for you to access.
I am so sorry. I am glad you are on the Forum and will have access here to our own search bar at the top of the timeline. Also lookup Early Onset Alzheimer's specifically and either join or consider STARTING a support group.
I think Geaton777 has given you some good advice.
If you add a little prayer in there it wouldn't hurt. Accepting what you cannot change or control might help you deal with this terrible disease that has no cure.
Sending support your way, keep posting it will help!
So the best thing you can do is to educate yourself as much as possible about this horrific disease so you'll be better prepared for what is to come.
I always recommend the book The 36 Hour Day and Teepa Snow(a dementia expert)who has lots of videos on YouTube and has written many books as well.
And because Alzheimer's is actually the slowest progressing of all the dementias, the fact that you say that your mom is rapidly progressing(which is NOT normal for Alzheimer's)makes me think that perhaps your mom was misdiagnosed.
So I hope you're getting second and third opinions from reputable neurologists before you're accepting the diagnosis of early onset Alzheimer's.