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Mild dementia, short term memory loss. She says that she is OK to fly, I agreed to accompany her back. We've lined up an AL close to us. I'm trying to be very organized about this and wondering what all I'll need to have in place. We've been managing her bank account, etc., already. My biggest concern is traveling all day. One hour drive to the airport in NC then one hour drive to home on the MI end. One stop on the flight. Total travel time with driving, flight and layover would be more than 9 hours.

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awesome update

I think the transport company is the way to go.

Let us know how it goes.

PS. I think flying is hard on able bodied people.
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Wendy, a huge congratulations to you & hugs to your mom. What a trooper she is! Moved & done b4 Mothers Day, just fabulous!

I hope you continue to contribute to this forum. Sharing your experience on a State -2- State move will be quite valuable to others.
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Isthisrealyreal May 2, 2025
Agreed!
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Update, the big move is coming up the end of April. I found a transport company that will take MIL and myself in a specially outfitted van. They have a team of three:2 drivers and 1 medical person to assist. They drive straight through with stops for fuel and food. In our case 15 hours. We will leave after supper and arrive mid-morning next day. MIL will be able to lay down and sleep the entire time if she likes. There is a TV and wi-fi on board. It's very expensive but I think it's worth it. We shall see! Thanks for everyone's input.
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MG8522 Apr 18, 2025
Thanks for the update! That sounds like the best possible solution to a challenging situation. It's good of you to be willing to spend the time and money for her. I hope that all goes as smoothly as possible.
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My husband did this airplane ride with his father with early dementia from Florida back up to the North East near us . However we don’t live in NY anymore , so it was a new state for his Dad . It was horrendous . It threw his Dad for a loop even before the trip . Just the packing up etc . was overwhelming . And he was wanting to do it all himself but couldn’t cognitively manage it . My husband said it was a nightmare . My husband ended up having to pack while his father slept . Put boxes in the car to take to FedEx in the morning to have them shipped , before his Dad got up out of bed in late morning . His Dad just kept wanting to go to all his favorite restaurants “ one more time “ . If my husband let him , his Dad would have dragged this out for weeks , meanwhile my husband was using up vacation days from work .

I don’t understand why these elders wait until they are near or at 90 to “ move back “. It’s too late . An unfair burden to put on the adult children .

Now my mother in law ( divorced ) lives in NY still , 2 states away from us is nearing 90 , signs of dementia , has a lot of mobility problems and falls and should be in assisted living . She has expressed maybe moving near us in “ a couple of years “ . BTW she may have 2 years left to live at most , due to her CLL in advanced stage. My husband says he will not move her near us . She will be miserable just like his Dad was if we moved her to a state she never lived in before . We are trying to get her to agree to assisted living where she is , although she doesn’t think she needs assisted living . She’s in fact overdue for needing AL .
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If you do this make sure that when you book the flight you ask for Wheelchair assistance. They will put you both on a cart and bring you from where you check in to the gate. This makes going through security a bit easier. Not totally easy but easier.
Is there any way to get a direct flight? If so that would make the trip less complicated.
Do expect a melt down.
If you ask for medication to keep her calm just know it may make her more of a fall risk.
If possible driving might actually be easier. 12 to 13 hour drive 2 drivers could do it with no stops other than rest stops. That is not much longer than what you calculate your trip to be.
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I was going to say, go by car. Just about the same timeline. Maybe do it in two days and spend the night somewhere. This way you can make stops. Those suffering from Dementia do not do well in crowds. I can't imagine being couped up in an airplane. Then theres getting her to the bathroom. Two people cannot fit in there.
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waytomisery Feb 23, 2025
I agree . I would not want to be trapped in an airplane if this goes bad . A car trip , stops can be made .
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My MIL, when she flew with family from Florida to Ohio for a reunion, had a meltdown over the security line, luggage inspection and having so many people around her. She was SO not the meltdown type, but dementia had changed that. It was her last plane journey, and was it worth it? She didn't recognize anyone at the reunion and didn't seem to understand why she was there.

Be prepared for the unexpected. It might be a good idea to up your mom's anxiety meds for the trip, if she takes them. If she doesn't, ask her doctor if it would be appropriate.
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I would be very worried about this length in travel as well.
One thing as an RN I can caution you on is that you need to have her get up frequently on flight just to get movement and circulation to legs. Very important to prevent blood clots when flying.

It sounds as though you are getting ducks in a row. You have chosen her ALF already; I am hoping she is self pay because she needs now to establish residency in case she should ever need Medicaid in future. That can be done at local DMV usually with senior ID card, and some have voter registration also. Keep mail when she receives it to establish residency and copies of her change of address notifications to USPS.

Hope you get a lot of tips here.
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One thing people over look in a out of state move, the elders insurance.

Not all insurance crosses state lines. If she has actual Medicare with a supplemental she should be fine, part D might not travel and if they do she may be paying more.

If she has a Medicare Advantage plan you need to find out if it travels, some are only for emergency care (their idea of what that means, not ours) outside of her county.

Another thing, doctors, does the AL have an in house doctor or will you be needing to find one?

I live in a place that you can not find a PCP because of the shortage, is your area the same?

Oh, if she has any dementia, change can and often does cause it to become worse and she may never recover from the step down. Just a heads up.

Best of luck with the move.
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Reply to Isthisrealyreal
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I’d bring another person along with you .
I wouldn’t want to do this alone just you and Mom .
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I know a family who missed a major event because the elderly person with them couldn't walk fast enough through the airport to make the connecting flight, and they hadn't arranged for a wheelchair. They finally got to the second flight at the last minute only to find that their tickets were given away (after they had been paged to see if they were nearby) to standby passengers who by then had already boarded. Because the first flight was considered to be on-time to make the connection, they were classified as no-shows, and it caused extra inconvenience and expense to rebook the flight, especially trying to get multiple seats together. (It was hard to refrain from saying "I told you so" about needing to book a direct flight.)
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Geaton777 Feb 23, 2025
Yes, you cannot "rush" elders: they can't do it and they often won't do it. It stresses them out a lot.
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I would go business class
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MG8522 Feb 22, 2025
That's a good idea. They can board first and get off first, the seats will be more comfortable, and they're less likely to have a line for the restroom. One caution: if you sit in the front row of the plane, since there is no seat ahead of you to store your purse and carryon under, the flight attendant might require you to put everything including your purse in the overhead bin. I learned that the hard way! So it's better to book the second or third row.
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I would pay more money for a direct flight if at all possible. I hope you are her PoA. If not, I would help her put this in place before you travel if she has any cognitive issues. Otherwise, be sure to have her create it once she gets to MI. Have her ID and ticket in hand when you arrive at the airport (you should just hold on to it, don't allow her to put it in and out of her purse). Make sure she uses the wheelchair service offered by the airlines. The wheelchair person should be tipped. Pack plenty of extra incontinence products just in case of flight delays. Airplanes can be very cold so make sure she wears layers and pants. Bring something for her to do on the plane: word search, or help her use the seat back monitor to watch a movie or play games. She may need ear buds, which will be a challenge if she wears hearing aids. Have any and all of her meds on you (so not checked in a bag). Try to get an aisle seat if possible so no one has to climb over other people in the seats. Will she have warm clothes to wear once she steps foot into MI? That's a long travel day for someone her age and I hope she doesn't have any surprise issues. My Mom is 95 and flies to and from MN to FL with me. She pays extra for non-stop flights because it's worth it. I book flights that don't cause her to have to wake up at an obnoxious hour. Mid-morning flights to avoid sundowning. I wish you all the best while moving her!
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You might consider arranging for her to use a wheelchair with an attendant at the airport, since they can require a lot of walking and standing in line, and if you're juggling luggage as well.

Keep her medications in your purse rather than packing them, in case the luggage is lost or your flights get delayed. If she uses Depends, have extras in your purse or carry-on for the same reason.

Can you somehow make it a direct flight? Even if that means driving to a different airport? Just concerned that if your first flight is late and you miss the connection, you'll be stuck for hours or even overnight in an airport which might be overwhelming for her and tiring for you. Or you might not be able to sit together if you have to be rebooked for the second flight.

If you do need to do the connection and miss it, or a flight is canceled, have the airline app on your phone so you can quickly rebook the flight yourself instead of waiting in line or on the phone for the airline to do it for you, while the people ahead of you get the available open seats.
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