I've been taking care of my boyfriend for the last two years, he's paralized from the chest down, before the accident he was abusive and now it's even worse, because i'm the only one around everyday, how can i be there for him and myself? sometimes i feel like giving up but my heart won't let me and he's so low down that no other family members would come around what should i do?
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If he isn't dealing with the normal reactions of grief over what he used to be able to do, anger over the prospects of the future, and limitations on what he can do as far as providing for his family, finding any enjoyment in life, he has to deal with the effects of being on Fentanyl patches and break through oxycodone pills. All of these contribute to a person who is very unhappy, and who could blame him?
I have been married to him for over 20 years when this occurred, at the same time taking care of two teenagers, and my mother, who has Alzheimer's. It was and still can be a very difficult period to get through. I can tell you that I have thought about other options, but just as in caregiving for a parent, you can't give up the responsibity, regardless of the cost to you. I will be honest and tell you that I am not happy a good part of the time, but I have found some wonderful resources that have made me grow and find strength that I never knew I had.
Learning became my biggest escape. I earned my B.S. in Health Care Services to learn how to use the health care system to my advantage and my familiy's advantage. I also started seeing a therapist and went through a training program to become a Peer Support Specialist, which is a volunteer that listens to other people in crisis. A PSS is a person who has been through the mental health system and knows what the other person is feeling like and can provide support, even if it is just to listen.
I learned how to become the strong one in the relationship, develop skills to fix broken items in the house, learn how to be patient, and also learn when to walk away when the abuse got to be too bad. I knew my husband wasn't really yelling at me, it was his life and part of the grief process. I still go through the grief process too, but I know that I am a person who can be counted on to follow through on what needs to be done when a loved one needs you. You need to keep that in the back of your mind. You are developing strength and character and taking care of the infirm, just as Jesus wanted us too. The pay-off doesn't seem to be worth it, but I think that is because we are looking at just today, not the future.
If you need to get away, do so. I read a lot and that helps. I live on a creek and often go down there to get away from the turmoil. I am turning all of my negative experiences into a positive experience by using what I learned to write a book to help other caregivers. All that it takes besides a little strength is a will to see the positive side. Since you aren't married, it is a serious step to decide how long you will stay with him. Being paralyzed will either cause him to become a bitter old man, or hopefully decide to find out what he can do to enjoy life and maybe help others. Whatever he decides, you can't let his reactions ruin your life. Easy words of wisdom to give, but very hard to practice.
I do pray for you and hope that you can get through this period.
Recovery.
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