That just sounds horrible does'nt it. My husband and I have been caring for my father for 15 years. He has lived in our home in an in-law suite that we built on for him. I have two brothers and two sisters and only one of them has just recently started helping us. My father has had 12 cornea transplants, has diabetes, arthritis, is depressed and sits in his part of the house all day now doing absolutely nothing but trying to watch tv and listens to the radio. I have tried to get him outside help by having someone come from the office of older adults to talk with him and offer him transportation options during the week so he can get out. He refuses. My husband and I work full time. I have to schedule all of his many doctor appts. late in the day or use vacation to take him. We have no real time for ourselves. He makes us take him shopping every Saturday whether he really needs to go or not. I understand his need to get out but he refuses help outside of ours. How do I approach the subject of assisted living outside of our home. He gets angry at everyone and everything that is not done the way he wants it. I want my life back. I have sacrificed 15 years for him with no appreciation. Maybe it would be different if he were a nice old man but most days he is not, at least not to us. When he is around other family members or out in public he is a totally different person.
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Carol
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I always recommend that caregivers take time out for themselves because you will be able to give more in the end that way.
One suggestion is to get a home health aide for all of his or her waking hours.
Many elderly parents do not want to go to an assisted living facility - until they get there. It's freedom for them
FYI, In my experience as a nurse working in LTC, 9/10 times, the older they get, the more they revert back to child-like behavior. And as with children, boundries need to be established and followed through with. Most of the caregivers commenting in this thread are being manipulated to the fullest extent. Your loved one is using the love and obligation you feel for them like a weapon. You are being bludgeoned over and over by the "guilt" mallot. The loved one is the Puppet Master and the caregiver is the puppet.
My second best advice for the caregivers struggling in this thread is this; Do you feel as though your loved one is getting the BEST possible care living with you? Are all of their psychosocial needs being met? Are they truely happy? Do you provide activities for them on a daily basis? How much time do you have to spend with them? It's not just the safety, nutrition, and medical needs that need to be met. It's so much more. Like children, they need A LOT of attention. Your loved one will kick, scream, manipulate, and guilt trip you all the way to a LTC facility but in the end, they will adjust and be happy because they KNOW, deep down inside, they are a burden to you but are too scared for any kind of change. Therefore they would rather torture you and live in the condition they are in because the alternative is too terrifying to even consider.
So, sit down, communicate your intentions with your loved one, visit several LTC facilities and include them in the process, then let them pick which one. It will provide them with the empowerment they need and put the decision in their court. The only decision on the table will be which LTC facility they have chosen. YOUR HOME is off the table! Be Strong and Good Luck Caregivers!
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