my dad is in the hospital and is having surgery tomorrow. My mom has dementia and has been staying alone. She needs someone to be with her but is so much against anyone helping her that I am afraid of how she will react to a stranger being in their home not to mention when I tell her how expensive it is going to be. I am so alone in the decision making and really don't know what to do. If anything happens to her I will never forgive myself. What do I do?
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Is there any one else out there that has found themselves in this same predicament?
You may be their POA, but you're not a slave. Call APS and talk to them about the fact that you are trying to get your parents help, but they refuse.
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What is there against a PROFESSIONAL home care giver. We in Belgium need one year of study with stage periods at home as well as in nursing homes in order to obtain our license. We learned a lot about diets, diseases, products and devices you can buy or rent to walk, take a bath, legal & financial aid you can obtain for certain diseases, being disabled etc.. I have been a professional home care giver for many years, and the relationship I built up with my people were magnificent. If my parents would have objected against professional aid at home, I think I would play it that way : first I would invite someone who is doing the job for several years. And not a young girl of 20/25 years, but a woman who has her own family with children, well dressed but not the type of women you see in magazines. I would not trust them either. On high heels, with a mini skirt and full of jewelry : no thank you !! You also can cut down on the things you are doing for them now, because you are exhausted and that therefore you can no longer come on such regular basis, etc... Okay it doesn't look very nice, but it is the best solution for yourself and themselves. And I'm sure that when they have a good care giver, they will be thrilled.
She has a terminal condition yet I feel she is burdened and overwhelmed psychologically with her home being in such disarray, physically unable to get things in order herself due to her vast limitations and chronic illnesses (I have had her at the emergency room 3 times in 2 weeks). Hence, why I finally told the husband (when he FINALLY asked for my professional opinion as to what I felt she 'needed') that until the majority of getting the home in order (which is a profound undertaking for anyone, much less a couple in their 70's) was addressed, I told him as long as the 'chaos' she wakes up to each day continues, that her physical well-being would continue on the obvious downward spiral it has.
He seemed to agree; I felt better he'd asked for my input yet nearly a day or two later, as I told them I would do on the days I planned and we'd agreed I'd be there, I would always call approximately 15 minutes prior to heading over to their home. HERE IS WHAT HAS FINALLY resulted in seeking input from those (#1) kind enough to read if you have made it this far, thank you! (#2) who might offer ANY advice, suggestions, compromises, ANYTHING to help me when (#3) I show up tomorrow with a 'proposal' of sorts, with precise accounting of hours worked, projects completed as well as those still a long way from being done at the rate and manner in which is resulting in not getting done, items I purchased which she needed as the husband either wouldn't or would be out of town, as well as including a few articles after hours of intense research which I thought might help either or both of them come to terms with what is only going to get worse if (a) they won't let me provide the services I have repeatedly offered (b) after not being paid except one time an amount to 'get by with' until a more regular and consistent work schedule is put in place (which was over 5 weeks ago & only 1/4 of what I was owed) and (c) since 'thinking' our agreed time schedule would kick in, I have documented out of 52 days (accumulated by 47 calls to either not come at all on the day I was scheduled, come the next day if I could, leaving me over 23 messages of varying reasons for not calling, changing plans, and on and on to one point I decided to just take a step back and let them 'breathe, live with NOT having me around (however brief my impact improved the situation) and to ponder on what they, as a married couple for nearly 50 years wanted to have happen and ultimately, by having no communication between us for I believe, almost 9-10 days straight when I got a voice mail from 'my patient', 'my friend', literally crying as she profusely apologized (for things she did not need to - in the sense I KNEW by now what/who was causing the entire caregiving plan to fall apart even before it had the chance to truly make a difference) and saying, "I so hope you are not angry with me or just hate me for all that's happened but I really REALLY need you here to help me and hope it's not too late and that you'll call me so we can talk." Talk about pulling heartstrings.
Of course, her message was not a surprise to me (after having had some very open and honest discussions about what she'd been through, how certain family members felt/acted towards her and even sharing far more information than a caregiver would normally want or need to be privy to -- on the emotional side of things, that is. Yet, I am a professional who takes what I do very seriously. I pride what I do based on providing genuinely loving and compassionate personalized care, wanting to make patient's lives as healthy and happy, as I believe possible with their given limitations. And...that is why -- after getting down on paper, realizing the magnitude of just how much I allowed to (NOT) let happen, resulting in hours lost and wages I had expected and (rightfully?) expected to earn, even though I came to expect either no contact or just before leaving to head their way, getting a call saying, "she had a bad night, so no need to come. Maybe tomorrow."
My utmost apologies for what must read like ridiculously redundant rambling. After having been just an 'observer/reader' of caregiver posts and the many different situations caregivers and those receiving care go through, many times responded to with wonderful and positive suggestions, answers, comments, encouragement, etc. -- I knew that after ONCE AGAIN -- scheduled to be there today yet hearing nothing from them (as I was told I would) and leaving yesterday after asking if I could please be paid, only to leave empty-handed (because the husband after coming home from an overnight trip decided to stay in the room where her checkbook was & she said there was "no way she could go back there and have him find out she was writing a check to me". REALLY? I thought.
That comment was unexpectedly backed up by a phone call received earlier in the day while she was still sleeping. It was from a very dear friend (who she lived close to in their previous hometown) who told me actually called her at least every other day, if not every day to check on her & see how she was holding up. When I'd answered the phone and explained that she was still sleeping (near noon), she asked, if I was in fact the 'caregiver' which she had heard "so many wonderful things" -- which led to also an unexpected and rather lengthy discussion (of which we both, sharing common interests of the well-being of her friend -- mutually agreed and cemented with absolute assurance -- that what was spoken between us would remain confidential -- period. And I was hesitant at first to share what I have come to be seriously concerned over - which is the state of mind I fear she is falling into. The worst kind. You can imagine what I'm referring to without me having to say it. Ultimately, once the conversation had to come to an end, I knew even more than I'd already made up my mind about -- and which I'd stayed up the entire night I stayed over with her unable to sleep due to what has turned into a very sad, and I fear untenable situation that I may have to remove myself from, even as much as I have come to truly love and care for the woman in need. Even her husband (on a day I had his wife at the hospital) shared with me over the phone how very much she adored me and how incredibly grateful he was that I was there for her.
He, as I learned from the friend -- not only does not believe much of what her physical limitations are (even though officially diagnosed) and that of which he does believe, I was told he is merely tolerating, if even that. He belittles her, and has done so even in front of others, only to turn around saying how sorry he is for having moved her here, etc. but then she tells me verbatim, "I never know who I am going to wake up with -- Dr. Jekyll or Mr. Hyde." And when he phoned the day he was due back to let her know when he would be home, when she hung up the phone I turned around and she was crying. I asked what was wrong and she said, "I'm so unhappy and I just do not want him coming home. I know it's going to be miserable." I comforted her as best I could, he showed up sooner than expected (after she'd told me he wouldn't be happy if I was still there when he arrived) I mean, the 'family' decided she needed in-home care -- WITHOUT consulting or including her in the discussion yet ultimately, after meeting me and now having spent enough time together, she truly realizes that she does need the help, is more than willing and wants me to be there for her yet the husband has made comments stating, "What is it exactly that she's doing, anyway? Every minute she's here, I have to pay for it and if I'm out of town, you will just need to get used to being alone because I am not paying for someone to sleep." That was the last straw. My intelligence insulted, my feelings hurt (yes, we have those too, don't we?), after I worked SO HARD cleaning that house and doing what I have no doubt other caregivers would not consider doing without extra pay -- I did JUST BECAUSE. And left, hurt, insulted and empty handed (no pay) for what amounts to over 50 hours of work and an amount I now wonder if I will ever see. Some have suggested I go to the son who originally hired me, yet the mom has shared his horrible attitude with her, threatening to put her in a home (how well he hid that from me), so I promised her I would not go behind her back to him and share what is going on in that household (apparently the family dynamics between father and son are unhealthy as well; the son fears he will end up having to be the caregiver, his wife simply cannot take on the responsibility due to 3 young children at home) and after the talk with the close friend yesterday, stating the husband has displayed 'deplorable' behavior which she said utterly dismayed and shocked many of their close-knit friends, and how he simply was not going to pay to have someone care for her while he was gone, stating she would be fine.
Well, she is not fine. And she is getting worse. So I have typed up my so called-proposal (the father and son are both attorneys) assuming putting this in writing would at the very least, spell out what is expected of me and what I expect in return regarding compensation and a work schedule I can count on.
Does ANYONE -- have any comments, suggestions -- ANYTHING -- to possibly help me resolve my conflicted thoughts about how to handle what I have been faced with? I know there are other jobs available (and I have even been considering a couple on the days I found myself 'off' when I was scheduled to be 'on'.) Yet the biggest issue with me is I KNOW as a professional caregiver that this woman DOES ABSOLUTELY REQUIRE and NEED the HELP I can and am so willing to provide for her -- not only because it's the right thing to do but because I am so fond of her and she just does not deserve the pain I see in her eyes whenever I leave. When I am with her, she is alive and positive and even has some good days -- and then it all falls apart when the one who promised to stand by her, does stand by her but in a cruel and uncaring manner.
I will stop now. It has worn me out. I truly want it to work out to where I can continue being her caregiver. With hope alive, I pray someone will have actually made it through all this and be able to offer whatever they deem useful to help me deal with tomorrow. I plan to just show up without calling. I need at the very least to be paid. If it is over, then so be it. I just cannot believe or understand why -- it has to be this way. And the biggest fear of mine is if he opts to not respond then put her through one person after another based on him willing to pay pennies for her care.
My humble and profound gratitude for those who allowed me the opportunity to get down in writing what I have at least taken the first step in resolving. Dealing with it! Many, many thanks with many, many smiles (yes, I still am smiling in spite of it all). God Bless You All!
Several years ago, my Mom objected when I tried to hire a caregiver for a few hours a week....she wanted me to do everything for her and I was exhausted. I found a really good agency through our hospital's social worker. The manager came out to talk with us. He assured Mom that he would "handpick" the perfect person for her (she prefers a more mature woman). They found a really nice lady who Mom really liked.
We moved recently and are now hiring privately. Again, I asked around and found two really good caregivers. One comes in for an hour during the week, the other for 2 on the weekend. It just gives me peace of mind and a little break, and gives Mom someone else to interact with.
I found that Mom's most strenuous objections were when I was present. When the agency manager came, she was as sweet as could be. Maybe you could try that with your Mom. Tell her that this person is just coming in to do a little housework.
At some point you will just have to insist that she have a caregiver. I understand the part about not wanting a "stranger" in your home, but you have to weigh that against personal safety. The only alternative is for her to stay with you until you can make other arrangements.
good luck