My mother is in a Rehab/Conv. hospital because she fell three times within a month's period at the AL where she she had been living for a little less than a year. We were hoping to move her back to her condo after her stroke a year ago, but her health has been steadily declining. She needs a walker; she has aphasia and dysphasia, and an MRI showed she is permanently impaired cognitively. She seems somewhat alert in the a.m.; but sundowning takes place in the p.m. She has hearing difficulties, and has not been involved in activities outside of her immediate family for a few years. She always eats her dessert first and refuses to eat her vegies which has resulted in constipation problems; we used to take her to the ER on a regular basis. She has not had problems since being at the Rehab because they do not give her coffee and have had her cut way back on the medications she was prescribed while at the AL. She has a new doctor that makes calls to the Rehab/Conv on a regular basis. So the Rehab/Conv is a good match at this time and probably for the long-term.
Everytime we come to see my mother she asks us when she will be discharged and be able to go home..We try to disengage and redirect the conversation; not always an easy task. The Rehab/Conv. costs $1500 more than her AL and we think it best to rent or sell her current home, and use the assets for further care.. But should we talk to her about it? Will it make her more depressed? agitated? When she was at the AL she became agitated and left twice without checking out and wandered about asking strangers to take her home. We do not want to be the cause of further agitation. I do want to be honest with her though in all of our dealings with her. Is there a right answer to this? I feel strange renting or selling her property without her involvement and going behind her back. Thanks for your input.
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but, tell her and let her know. temporary anguish will pass. tell her it is what is best and why.
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p.s. Expect a negative response......and rightly so.
As far as the sweets, I would let her eat what she wants. If she is to the point that you say, then let her find pleasure in what she can. My dad loved his chocolate milk and Little Debbie cakes. My husband's grandmother loved her Yohoos and chocolates. As long as she is not diabetic, I do not see any problems. And even though my mom was diabetic (due to steroids she was on for the brain tumor), I still took her to out for Chinese - which is loaded with sugar and carbs. I just adjusted her insulin accordingly before and after. There are other ways to treat the constipation. We used Senacot and lactulose among other things. There are also juices that have veggie juice in the fruit juice, which she might accept better.
Best to you and your mom.
Alzheimer's Hero
by Valerie Stephenson
You entered my world extending your hand,
Reaching for the “me” that I had lost.
You helped me remember who I am
With kind and gentle reminders
Of the memories composing my life.
You took the time to know me
Beyond the intricacies of my disease—
You helped me find my way, each day,
Easing my fears,
Helping me feel that I still belong.
You overlooked my daily confusion,
Understanding the rage, giving me comfort.
You walked along with me, not for me,
Helping me face the day
With a sense of dignity and a semblance of pride.
My memory fades,
But I know when someone cares.
And I know when I look into your eyes
That you are my hero.
For you are faithful, you are strong,
And you respect the best of who I am.
And I know that your belief and steadfastness
Have allowed me to rediscover
The strength and courage
Of the hero that lies within me.
Thanks again.
I think we all want to be in control of our lives. As we age, these moments become fewer. I would hate to be "blindsided" if I were in your Mom's shoes, even if you are doing it for the best reasons.
If you can get any "buy-in" from your mother, that would be great. If not, at least she won't be left in the dark.
Good luck...these decisions are always so hard. Bless you for protecting her assets and using them for her care.