Mom-in-law moved in with us last year because she desparately needed back surgery, and could no longer live at home with her diabetic husband. Now she has recovered. She is essentially normal mentally, in her early seventies, but has limited mobility due to several fused vertebrae, substantial arthritis, and osteoporosis.
She continually shops at places like Walmart and online stores, even though she has covered nearly everything in her bedroom and bathroom with stuff. She gets several magazines a week, and collects items normally considered worthless like paper cups and plastic soft drink bottles. A stack of empty boxes reaches the ceiling, and another stack is growing taller by the week.
Even her bed is almost completely covered, there is just enough room for her to lay on her side. We have to nag her to let us change her bed linens, and then it takes her hours to make it possible. She's using disposable pads on her bed as a stopgap. She has limited mobility, and can just barely navigate the mess.
My wife and I are the homeowners, and are becoming increasingly frustrated. Mom-in-law is outwardly oblivious to the problem, and frequently shows us the latest bargains she has discovered. She even buys stuff for us, often inexpensive and redundant. We are trying to simplify our lives and remove old stuff that we have collected, so this is the opposite of helpful.
We recently emptied a large closet and offered it to her. We included plastic containers to help carry and organize her stuff. She hasn't even opened its door.
She used her bathroom shower curtain rod for hanging clothes, until there was so much clothing it pulled the bar off the walls. I had to shift shoes and clothing to get close enough to re-hang it. She has fallen in her room more than once, but she claims it is because she lost her balance; not because she stumbled over the obstacles littering the floor.
This year she decided she would rather eat most of her meals sitting on the edge of her bed. She does not see well enough to do this neatly, and can not easily reach down to the floor. She keeps containers of snack foods in her room now, and treats to feed our cats.
We have considered moving her to an assisted living facility, but she can't afford it an neither can we. That would cost over $3500 per month in our area. We both work full time plus, but do not want to spend our retirement money financing hers. She pays a modest amount towards our expenses each month. She would like to move back with her husband, where they lived with this kind of mess for many years. But he was recently diagnosed with congestive heart failure and does not seem to be doing well. He's very private and rarely talks to any of his children.
So what to do? Do we invade what has been "her space" in our home, and attempt to organize her belongings? That seems dramatic and risky, but what other options are there?
So far we have only done this on a small scale - removing obvious trash, vacuuming the floor space we can reach. Would interfering to a much greater extent open us to accusations of elder abuse? Theft? We do not know whether she would physically resist such an intervention. Every time we even hint at the topic, she becomes very evasive and dismissive.
I have read a lot about people who are compulsive "collectors", and have found no effective solution. Most of those are people doing it in their own homes - not their daughter and son in law's!
Has anyone found a good way to handle this? What are the steps?
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The step we are taking right now is a shorter one, for various reasons. I didn't have much room to go into more detail in my already very long description, but masquerading as any kind of regulatory inspector would be hard to do. My mom-in-law was a registered nurse for fifty years, and worked in home health as well as hospice care during her long career. She's well versed in the regulations and inspection processes, or at least has been. Why she does not apply those rules to her own living conditions is something we don't understand at all.
As far as having her move back to her home, that seems very unlikely. Her husband's health seems poor right now, to the point where we worry about his ability to live at home. He is a retired veteran and fiercely independent. His family has tried many times to get him to make improvements to their home and get better medical attention, nothing has worked. He was occasionally abusive to his wife when she lived there. No amount of good wishes is going to make that option any better.
Our near term fix is to try bringing in a housekeeping service. We told mom-in-law that we've been wanting to do this for a while, and that the improved cleanliness and reduced workload will help all of us. We did our best to make it sound like it wasn't directed at her. We said it will help reduce allergens too, which helps since we all have allergies. And we made the point that the floors have to be cleared so that they can get in with the vacuum cleaners.
It remains to be seen whether a housekeeping service will run away scared after seeing those rooms, so we have our fingers crossed. We have time off during the holidays so we'll be helping "get ready" as much as we can.
Thanks again for the advice and good wishes. Please don't hold back if you have more ideas, we're pretty sure this is only a holding action, at best!
I know I have a bad habit of speaking out when I think someone is being a smart "alec", I have gotten into trouble before because of it, but I do not seem to learn from it. Sorry to those I am offending, sorry I cannot shut up when faced with people like this.
Planeman, perhaps you could start a Philosophy thread for we caregivers so we can understand what it means to be "Illusionary". Or maybe you mean "illusory"?
Up, Up and Away in your Beautiful Balloon, planeman.
If your WIFE doesn't want her mom to move back, that's another story. I think some med like elavil, which can help with OCD, could be in order. I love the idea to stop sugar-coating the hazards of the condition of the room ... But that will take your wife standing up to her Mom. Having an inspector (real or otherwise) come in may be a good idea.
Good luck to you!
planeman - you do not kick ur elders out in the street !
scott - u could slowly get each items out of her room , each day one by one . if she gets upset u could tell her its in the other room for safety reason . etc , or you have to be the bad guy and tell her youre not alowing her to live like that . sometimes we have to take control
dad calls me the boss lady . which i am , take ur meds , here come sit at the table to eat . go wash ur hands , etc . and it is also our job to make sure they have room to walk or use wheelchair , the house will have to be clean in case a home health nurses comes in , which that will hapen one day , best bet is to take control , if she gets mad well she ll get over it ,
if that fails you may want to talk to the doctor about it .
big hugs to u scott .
You don't kick someone out of the house who is mentally ill, and you don't change your own healthy behavior to "match" the disturbed behavior. Let's be realistic and helpful with practical advice. Thank you. Christina
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Good Luck.