My mother lives in an assisted living home where she gets excellent care, she gets medication every two hours and an assistant will come within 5 minutes of Mom pushing a button suspended around her neck to assist her in going to the bathroom and getting in and out of her recliner.. She has Parkinson's with severe mobility issues where she is confined to a wheelchair. She also is incontinent and wears diapers. She is almost 86 and has started having memory and judgement issues. My brother, sister, and I get frequent calls from various caregivers that our mother forgets to use her call button and tries to walk or transfer herself which results in a fall, The facility where she lives will not allow an alarm that alerts the caregivers to when she stands up as it will disturb the other residents. She fell again yesterday and her physical therapist told me that she needs 24/7 care. My sister figured it out that she has enough money to live where she is for 5 more years. Where she is now, she has her own furniture, planned activities, and three meals a day in the dining room in beautiful surroundings. We have moved her several times to increasingly more assisted care and she cries and is miserable when this happens. Should we move her into a convalescent care facility where she will only have the money to stay for two to three years or leave her in her present situation where she is now basically happy.
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She could fall in a care center. There are no guarantees.
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If the ALF where she is now feels she is beyond the care level they can provide, they may insist on some other arrangement for their own liability reasons. You should discuss this in detail with them. Are they willing to respond to a silent alarm? Could you bring in a PCA to provide supervision for at least part of each day, (and reduce the funds available for the facility)? What would make it feasible for her to stay there?
I'm afraid that my views about safety are something of a heresy. Definitely, we all want our loved ones safe. But does that come ahead of happiness? Here is a bitter truth. No matter how "safe" we keep them, our loved ones are going to die, and probably long before we are ready to let them go. Once I accepted that, it was easier for me to try to balance "safe" and "happy." My husband would be "safer" on the dysphagia diet prescribed for him after a swallowing test. He would also be miserable. And would it be so much more terrible to die by choking or from aspirational pneumonia than live a little longer and die a lingering gruesome death from his dementia? Yes I want to keep him safe. But my number one goal is to safeguard his happiness as much as I can for as long as I can. I told you it was a heresy -- but I hope it is at least thought-provoking to help you clarify your own goals.
Please let me know if I can provide further assistance. Thanks
Thank you for your input, it is really appreciated. Although lucid (but not all) of the time, my mother just does what she wants to do whether it is going to the bathroom or rearranging her dresser drawers. She even wheeled herself to the laundry room around the corner of her room with her laundry and hand soap on her lap. She managed to start the load, but of course couldn't change the laundry from washer to dryer--luckily my sister happened by to see her. She just doesn't get it that she cannot do what she used to do--talks about getting her driver's license, baking a turkey (she only has a microwave), and walking to the shopping center which is about half a mile away from her assisted living home. The silent alarm that you mentioned sounds like a good idea--where can we get them? I am not sure that the assisted living home where she lives will allow it, but it couldn't hurt to ask. Thank you again,Holly