My mother is 76 years old and lives in senior housing and does fairly well on her own. She sometimes needs help in going to the store or doctor's appointments, etc. Her frequency in wanting my help is increasing and I can see she is deteriorating somewhat, which I know is to be expected as she ages. The change I have noticed the most is that she is becoming a sort of hypochondriac.
She complains of one ailment and is certain she has something serious that will require surgery and fixates on what she thinks is going to happen to her. She sees the doctor, has several tests run-only to find it is nothing of consequence. Then a week or so later she will come up with symptoms of another ailment and she starts the cycle all over again.
On things that have been found (for example she had hip pain that she was sure needed a replacement, but what was found was a bit of arthritis that the doctor said was not abnormal for her age) her doctor has suggested things like physical therapy, but she wants no part of suggestions such as these.
Has anyone experienced this with their aged parents or loved one? If so could you give me some advice on how you dealt with it? I do not want to discount her complaints but am getting confused as to what could or could not be something serious.
Thank you!
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She does have some ailments, but nothing even as major as diabetes. She just won't hear how good her health really is!
My mother's ailments were easily "cured" when her doctor retired. Her new doctor was not so much to her liking, so she didn't want to see the doctor so much anymore. Your mother likes the hospital, though, so retiring doctors wouldn't help. The only thing I can think of is to say no, she doesn't need to go. The ER is only meant for emergencies, like heart attack, stroke, or trauma. Lesser things can be treated at Urgent Care if they need treating at all. It's a lot cheaper and faster.
Of course, the cheapest and fastest remedy is to say No whenever you know she is crying wolf. You'll probably worry that something may really be wrong this time, but most likely it won't.
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She starts every morning telling me everything that's wrong with her. She demands that I (or the paid caregiver who covers me when I'm at work) take her to the hospital at least three times a week. We've tried everything - at least four kinds of anti-anxiety/anti-depressant medications (most of which just made her loopier without correcting the hypochondria), giving her hobbies, taking her out to places, etc., but she doesn't enjoy any of it because she can only obsess about her imaginary ailments. She'll wake me up in the middle of the night and tell me I have to take her to the hospital RIGHT NOW. I have a very hard job and can't get by on four hours of sleep a night.
I can't take much more of this. She's lucid enough (no Alzheimer's) that she would know exactly what's happening if I put her in an assisted living facility, but her paid caregiver and I are just at our wits' end. Sometimes there's just no easy answer.
I feel bad about wasting resources with endless doctor trips (we are quite rural and she prefers a doctor in a neighboring state so getting her there is a project indeed. My sister in law used to handle the doctor trips and unfortunately started the precedent of making them a holiday with treats and meals out . I think much of Miss P's hypochondria is attention seeking and part of her power and control issues where my husband and I are concerned. She resents and dislikes me for my relationship with her son and tries to drive wedges between us. Still she realizes we are all she has left.
I have tried to address this problem in several ways:
First if she has what is obviously a minor complaint we do not make an appointment with her doctor. We go to the local urgent care clinic and see a PA. It is not an occasion for treats and shopping and meals out but all business there and back. In balance we try to create outings for her not related to doctor trips. If she's stewing on something and refuses to go, we go without her.
If she has a bad fall or something that might be serious we go to the ER. If she's bluffing she'll decline to go but that is the only choice we offer. She sees her regular doctor for scheduled appointments only.
I always catch the nurse or PA privately and warn them to beware of med seeking. She takes what I think (informed opinion: i worked with drug addicts for 25 years) is an excessive amount of benzodiazepenes for "anxiety" -- will not participate in biofeedback or CBT or try any strategies to manage her anxiety. So she continually complains that her symptoms "make her nervous" in hopes of getting more benzos. If I dont watch her she tries to get others to give her prescription meds and feels,a pill is the only answer to a problem. She will not follow doctors orders,unless it involves taking more pills. So part of my strategy is to insist she follow all instructions,yo the letter for at least two weeks before we go back to the doctor. If she doesn't we don't go and i tell her there is no sense going to the doctor if she won't do what he says to do.
We do not let her self-manage meds, but fill a weekly pill organizer for her.
We do not entertain long dithering conversations about minor health complaints. We try to redirect her thinking into gratitude for what is essentially very good health for a 90 year old. If she persists we either change the subject or simply leave the room. Same with gossip or running family members down. When she talks positively and about current reality we are all ears and participate with lots of attention.
We take good care of ourselves and our relationship by talking frequently and helping each other stay out of her manipulation and games. We cant get away -- we farm and are always working and there is no one left willing to provide us,with respite care. It is exhausting living in the middle of a behavioral intervention all the time but I send my husband on hunting and fishing trips with his friends when it gets too much for him and take over his chores,for him. I go to daily Mass and spend a lot of time outside when things get rough.
Bless all you devoted caretakers!
I also think there is the fear of death that comes in. Going to the doctor is maybe a way to keep death from sneaking up on them. When you're old and confused, little things can look life threatening.
It's surprising how many people deal with this condition. I have read on this site that it's sometimes referred to as "thick file disease." My dad had a form of it, with Conversion Disorder for a few months. He went on medication, saw psychiatrist and is doing great. Only a little relapse in 2 years.
But, my mom will not take medication and will not see psychiatrist. She's miserable, with all kinds of imaginary ailments, but I see no way to get her help. She is in denial.
If someone is willing to accept diagnosis and get treatment, therapy, meds, etc. It's still a very challenging condition to treat.
The only thing that I have done is stop coddling and even discussing her ailments. If it goes on and on, I'll say, if you feel it's necessary call your doctor. But, other than that, I won't discuss her ailments. I do talk with her, am positive and loving when she is not discussing her ailments. I'm not sure it matters. It still continues.
If you are thinking that your mom needs assisted living or nursing home, I might discuss it with her doctor. He may have a whole different take on what her actual health is. And I'd have an assessment done to determine just what her needs are. That would let you know what type of assistance that she would need.
I do think that my mom's ailments are less pronounced when she is around other people, talking, engaged, etc. If your mom might be more active, it might help, but if she contends that she is too sick to be active......that's a problem.
!!! Still, this is difficult, as my mother said recently, "What I had was much worse than a cold!"
( SHOCKED THE H OUT OF ME because she dosent really care ) as soon as I started to tell her she said speaking of golf I called the drs this morning blah blah blah. Its HARD. I have no answers. Its sad and maddening at the same time.
I have an aunt who became a part time elder companion after she retired. She hardly ever complained about her own life. I wonder if being with others in need kept her from falling into that? Not sure where to go with this but it's food for thought.
I take his blood pressure first, then if it's okay I give him one of the pills, sit with him and get him to breath deeply to relax and it works. I wonder if a placebo would even work. But I wouldn't do that without the doctor's guidance.
It makes it frustrating for me as I do not know why my siblings have such a disinterest- and it leaves me doing the daily calling, visits, trips to Doctors and store- basically all of her needs, But THAT is a horse of a different color so don't get me started on that; ha, ha!
Tusconlady, my Mom has every testing apparatus available to keep track of these things. They are great things to have but sometimes she obsesses on these and (for instance) takes her blood pressure every 15 minutes and then gets all upset if one of her readings is a hair above normal. She gets sort of OCD at times.
But Tusconlady and Naheaton bring up good points saying to get her interested in something else. There are many activities she has done in the past (painting, knitting, crafts); I will try and think of something that I can get her interested in. Maybe I can start out with it being a project her and I can do together.
I love my Mom so much- she has always been the "caretaker" - for my dad when he was terminally ill 20 years ago and then for her handicap sister for many years. I want to take care of her now that she is older. I am trying to learn how to work full-time (I am only 55 so I have many years left before I can retire) and be there for her when she needs it.
I just feel so alone as all of my friends have not experienced any of this with their parents yet. So just knowing that there are others here that do understand my concerns helps a lot!!
naheaton - right on about helping others - we benefit by it. and chalking up stuff to whatever and moving on.. You don't have to be a pain just because you have a pain.
grannidi, your mother sounds like half of the older women I've known. My mother does it. She complains daily about aches and pains -- I consider that normal. But she goes into the spells where she will fixate on something, then end up having a lot of tests that show nothing is wrong. As a caregiver, it can be hard to know what to do. We suspect it's all imagination, but what if something is really wrong? So we run ourselves ragged, getting them to all the appointments. Personally, I get aggravated because I know that nothing is really wrong.
I think a lot of it is anxiety in the case of my mother. She is a worry wart by nature, so she'll worry and get more anxious about something. In her case, I wish I could find some respectful way to stop the escalating anxiety. I think naheaton's advice is spot on in encouraging them to do something that gets their mind off themselves. (I wish that would work with my mother.)
Or, when she launches into another medical conversation, make sympathetic sounds and then change the subject. If she makes the appointments, try to bail out with your own "911" issues and tell her to call a cab. She needs to get her head wrapped around something else, like favorite TV shows, puzzles, knitting...something!! I can relate: my MIL is almost 99 and now is completely consumed with calling the doctor even though nothing is wrong with her except old age aches and pains. We just keep changing the subject or we just don't respond. Hey! My stepdaughter is 25 and sounds like her grandma....if it isn't one thing, it's another....runs in the family I guess. Hope this helps.