Why do I feel so overwhelmed with care giving when I know that others have a far more difficult time than I do? I know that is the case - I read lots of posts here on Agingcare and don't know how some of you do what you do.
I know that stress is perceived. How do I perceive it differently?
My family says to 'just let it go' - 'don't pay any attention to what she says' - 'you can't do anything about it' - 'stop worrying about it.'
Why can't I?
I have changed from a very caring person, happy person into someone who is uptight, stressed out and feels like crying a lot. Some days I manage OK and some days I don't. Is it ME or is it just that my hubby and kids don't understand what I deal with? If I were to explain my day - MOST would think I have it pretty good. Why does it FEEL like PRISON?
I do the care-giving. I don't feel that I get much understanding from my family. I know my husband 'cares' but I am not so sure he 'understands.' My MIL gets visits and caring phones calls - no one ever asks how I am.
I just feel that it is easy for others to say 'let it go' - because they CAN. Of course, they can also LEAVE. They have jobs and lives. :
I am even looking forward to a REAL break in a few weeks. Friends from and our kids are going to look after grandma while we go away for a while. The visiting nurse says 'go for it.' 'Don't worry' I spent 3 weeks enlisting help for twice a day visits and 5 evenings of meals and company for her. I should be thrilled to be able to leave. What's wrong? Am I dreading coming home before I even leave?
Maybe it's the gloomy weather :-( Guess this is just a rant with NO real answers required.
36 Answers
Helpful Newest
First Oldest
First
My advice is this -- go on your break. Try not to think too much about the situation at home, although I know that is hard, but just try to get a break. At some point, you might want to think about whether there's any way you can change things. It's not about how hard you do or don't have it, but that you are being weighed-down. And, honestly, the grey weather does make us feel this all the more keenly. Try to be really honest with yourself whether you'd felt this down during the sunnier weather, too. If that's the case, you probably need more help than you've had, maybe more breaks than you've had.
I was just looking at Medicare and supplemental insurance about visiting nursing care, just in case I need a nurse to help with my mother. It does say it's covered but doesn't say how much, but maybe an option is to get a nurse or a senior-sitter more often, if it's covered or if it's cheap-enough for your situation.
Also, I know it might seem cruel to ask if you have outside activities. Your reply would be that you don't have time, quite likely, but you really need something to look forward to to help give you some breaks. Each person is different, where some find they need to get out, maybe going to something like art classes, others just hide in the back room and listen to relaxing music to get their breaks.
Also people probably don't really understand what you're going through, but they're probably trying. When my mom took care of my grandmother with Alzheimer's, it was in the days when we really didn't understand it, yet, and none of her siblings would ever help out. My parents are from the era where men worked and women stayed home and my dad wasn't a particularly feelings-oriented sensitive type, but even he realized my mother needed a break.I think he pretty much "made" her go to ceramics classes, once a week, while he watched her mother. I'm pretty sure it was mostly his doing. Young as we were, even my brother and I thought she was going to end up being carted-off somewhere, because she was obviously totally stressed-out.
ADVERTISEMENT
If you'd like more input, I'd suggest starting your own thread (post a link here), so more and more people will respond. DO keep us posted and let us know how it goes!
*hugs*
LadeeC
My mother's personality has changed so much I can hardly see my real mother in her. She has become extremely demanding and sometimes she can say mean things to me. My dad is quite most of the time, but he is the wild card from time to time.
My home has never been the same, I had a small episode of a nervous breakdown and then my husband went through a short period of depression. I love my husband so much, and he has been such a gentleman and so helpful, but I think he is at the end of the rope with this situation. I am not the person I used to be; from a happy, sweet, caring, outgoing, full of life, I have become irritated, sad, anxious and insecure and I even sometimes have a mean answer to my parents. I am trying to cope with everything and to go back to whom I used to be, but it's a constant battle.
I had to leave my job because my mother would call me 10 to 18 times a day with anxiety attacks or panic attacks and would drive me nuts. I had to leave the office and come home to find her better because she knew I was on my way home.
I feel my parents, (specially my mother), breathes because I breath. I do not know what to do anymore. I feel I'm inside a prison with no escape.
This is the first time I dare to express my feelings and let them out.
A desperate caretaker.
I take care of my mom, she is a wonderful mom. But even so things get harder as they get older, and it sucks the life and health from you.
I commend you for taking car of your MIL. I hope your husband realizes what a fantastic wife he has.
I also hope you go do something for "yourself" when she is gone. A nice vacation where you can be pampered for a change.
Keep us posted! Hugs !!!!!!
I'm so sorry this transtition period is so painful for you, but I assure you you'll survive it and even blossom and thrive again.
Thanks for keeping us updated.
But after we left she wouldn't speak to us for 3 days and hasn't been very congenial since then. Had another horrid day yesterday when she spent an hour telling some friends of ours (I was not in the room - but listened) many, many unkind and 'inaccurate' things. I cried 3 times yesterday and once already today.
My MIL hasn't a clue as to why she must move. It isn't as though we haven't discussed it. But everything here is MY fault. I told her that since she is so miserable and unhappy here - this was her chance to 'get rid of ME.' I don't think she saw the humor in that.
I am just trying to get through the days until her interview and we can find out when she will move. This has proven to be much more traumatic that I ever dreamed and would love to hear from anyone who has been through something similar (I have crashed and burned). I hope there is something of myself to salvage after this is over. Right now, I want to run away - but I can't. I can't sleep, concentrate very well, I feel like I might have lost my mind. Will I find it again?
I am a spiritual person and if it were not for prayer - I would not still be a caregiver - I know that. I pray for more patience every single night. I pray for all caregivers and I pray for all the elderly who are facing such loss - they have lost their health, independence, mates, some have lost children. I try so very hard to be a caring person.
We have added our next door neighbor to our 'Lifeline' list since he is almost always home on Sunday morning - and we are now able to leave her and attend services on Sunday and have lunch out. When she is up to it - she comes with us - but this year she hasn't done that very often. We never refuse to take her if she wants to go. So, if her health issues are fairly stable - as they are right now - we can get away for a couple hours now and then and we are grateful. So, I try to appreciate the time 'between crises.'
I hope you all didn't get the impression that my hubby doesn't care - he does. He tries to help as much as he can - mostly with 'intervening' - standing up for me when his mother gets weird and nasty - which is a fairly recent phenomenon - since her stroke in December. This is a side of their mother that her other two sons have never, ever seen. My husband didn't even totally believe me until he actually witnessed one of her 'episodes.' He now is a believer :0) She was always pretty amiable - so I think the stroke must have left a 'mark' on her personality. She pretty well recovered - just a tiny bit of residual weakness on her right side.
Thankfully, we were able to get a ten day break in April and went to the beach. Of course, I spent 3 weeks PRIOR to the vaca soliciting helpers - Scheduling everything you could possibly think of. I have to laugh - because you would think I was asking for the moon when I would ask someone if I could PUT THEM ON MY LIST to 'give her a call' or 'stop by and say hi' or 'bring a meal.' But, I have to give them credit, they came through and I pretty much FORGOT I HAD A MIL for about 8 days. Dread crept back in a couple days before we came back home :0(
It also just happened that she was between crises - seems she has something go wrong about every 3 months. Shortly after we got back, she got into a friends car - we were going for a drive - and twisted her lower back - so we have been dealing with that since May.
Her other sons aren't much help. The youngest especially is just a JERK. He manages to travel the world, visit his wifes parents near the beach several weeks a year - but only calls his mom a few times a year and visits for a couple hours. Spends 6 hours driving here - 2 -4 hours with mom and then leaves. She has been with us 7 years in May and he has never invited her to his home to give us a break.
One repeating theme I hear from your replies is that I need to ASK for help. What do you do when you ask, ask, ask and no one cares? Her other two sons just don't help. The youngest won't even answer my texts, emails or our phone calls! I told my hubby we should mail him her obit AFTER the funeral. We won't, of course, but a person does wonder why only one son and DIL must do it all and why they wouldn't feel any obligation to offer us a break. Seven years is a long time. I know some of you have done this longer - but it does feel like forever.
All for today :0) Thanks again. Hoping you are all well and not suffering too badly with this intense heat.
I have a million things I need to do and I want to do. I have weeds to pull, dog poop to pick up, nothing grand, just the day to day things that normal people do without giving it a thought. Have lunch with a friend, walk with a neighbor, take the dogs out on the back property for a good romp and breath in the fresh air that I use to so enjoy. So many little things that brought me joy. My garden, etc. I can't do any of these things now without having someone here. I can't take a shower without backup.
My husband is retired, but he still works part time and his hours vary. We do have a caregiver that comes in a couple of hours on MWF and that's a big help, but it's not a life.
I don't feel like I have a home anymore. It's just a place where I take care of my dad and people come in and out. Our previous caregiver, who we really liked, just left the agency and now I have one care giver coming on MF an another on W. So I have to go over everything with them and be close for questions until I feel comfortable that they understand what my dad needs. Starting all over with that feels exhausting to me.
I'm sorry that you feel your husband doesn't understand. My husband does understand and he can feel very sad that so much of our time has been taken up with my parents care. He feels for me and I feel for him. My husband, God Bless him, will take the night shift. He gets up and checks on my dad. Even though we have a bed alarm, my dad can't quite get out of it the way he use to. Instead, he gets part way out, legs and feet, and then is stuck in that position. As a result, the bed alarm doesn't go off. So we check on him during the night several times to be sure that he is warm or take him to the bathroom as needed. Thank God he doesn't (knock on wood) have BM's at night. That is a plus.
My dad is 89 and a very sweet man. He suffered a major stroke last July and now can do nothing for himself.....He can still feed himself and I am grateful for that. I spend many hours just waiting for him to have a bowel movement. That is kind of a high point, because I really want to get him to the toilet in time so I don't have to give him a shower too. So today, he had breakfast at 8:am, and at 2:30 pm he had his BM. Now during that 6 hour time, I could have gone outside or colored my hair, or whatever, but I didn't know he was going to sleep all that time. I never know what he is going to do and when. It changes from day to day and he is a major fall risk. So I am on watch. It's only when he goes to bed at night that I feel I have time off. I don't have to carry the video monitor with me and check it every few minutes while I'm in another room.
If you can, put some distance between you and your mil. I don't know if she can be on her own for a bit, but if so, get out as much as you can. I know from your previous posts she has diabetes, but not sure from memory what else is wrong with her.
Either you are going to have to learn a way of detaching from her, or there needs to be some serious discussion about putting her in an assisted living environment. Of course that takes money and I don't know if it's feasible for your family.
Not sure how old you are. I'm 63 and started this journey with my parents at 56. I'm a very kind and capable person, but I'm not sure I would do this again if I had it to do over. I'm ashamed to say that, but sometimes that's how I feel. It's not my parents fault, it's just a very hard job.
Maybe you and your husband could get some counseling. He needs to get his head wrapped around this and have a better appreciation for what you do for his mom. Maybe that's the most helpful thing I've said so far. I hope you will push for that. Love and Hugs, Cattails
Peeweedeb said that it looks like the novelty of care giving has worn off. You've been taking care of your mil for 6 years. That's not a novelty. I know PW is a kind hearted person, but maybe she is a born caretaker and the rest of us are just doing our best. You don't need to compare yourself with her or anyone else, myself included.
You have every right to want your life back. I bet you can't even remember who you were or how you will adjust to a new life if your mil is not in the mix.
Maybe it's time to think about doing things differently. God Bless You. Love and Hugs, Cattails.
I just feel like everything would be so much easier if I, too, could 'give it up' or 'just let it go' of the resentment but I just can't seem to do it because her care is now part of every aspect of my life. I feel like I'm suffocating. My siblings live out of state so I'm doing this alone too. I don't seem to enjoy the little things that I used to enjoy and I've totally lost my sense of humor. (I'm also lucky enough to be going through peri-menopause right now! Oh boy!) I miss our privacy and, like TNLADY, I just want some time alone with in husband in our own home. Unfortunately, I can't figure out a way to make that happen so we just trudge-on each day.
So, OldCodger2, I totally understand how you feel and wish I could give you a hug. I don't have a solution but wish I did. I just want you to know that you're not alone and your feelings are very valid. Hang in there.
Some caregivers have things a lot harder than you do (on certain levels) and some have things easier than you do. Some people are not caregivers at all. Some people who should be helping with caregiving don't. None of this has any bearing on what you "should" feel.
Everyone on here is right, if you feel tired and all, then you are tired and all!!. Ask for help, it is hard to do, but key to your own mental and physical well being. And leave as often as you can.
I too dread coming back and I realize it is because I am done being the all and everything. I have been doing this mostly alone for 5 1/2 years now. I have no spouse or nearby siblings. I have finally asked repeatedly for help. For the most part, my siblings have stepped up to the request. But because they live far away, I will still be the one to be there for his final months, weeks, days, and hours. I dread it.
Stay strong by getting help, good meds, exercise, and friends who will listen.
You maybe dreading coming home to the problem but maybe you are feeling that the vacation is unearned??? That is so wrong, don't let others take your joy or deprive you of an earned vacation!! Good luck! Keep us updated, share 'cuse it really does help! It helps you and does help others!
Something I learned, the hard way, is that if you are not voicing your needs to everyone and anyone that could be helping... They will not help you... If they know that you are doing the job and are not complaining or even if you are complaining and the definitely realize that you are not going to put your MIL in danger by just leaving her alone or or not caring for her... Well they will continue on there merry way. Even go out of their way not to be in contact during certain times of the week. You have to assert yourself and let everyone know where you stand, or you will end up continuing to stand alone!!! I have been there and know exactly how you are feeling.