Sorry to be so wishy-washy, but I'm so terrified this is the wrong decision, but I'm also terrified for him to come home, I don't see how I can handle him. He's very difficult, but sometimes acts fairly normal, but not totally. How do I make peace with this decision. I'm afraid he will insist that when the therapy is finished at assisted living, which will last approx. 4 - 6 weeks that he will insist on going home. From all the advice I have received from family and friends, the vast majority are convinced that he needs to go to assisted living, minority either stays neutral and the other minority is against it. I've prayed and search my brain, heart and soul and still......this seems like a lose-lose situation.
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My husband and I both are victims of Lewy Body Dementia. He is the one who has abnormal protein deposits in his brain, and he is the one who has the diagnosis on his medical chart, but my life has been irrevocably changed forever by the diagnosis, too.
I don't know your situation -- I don't know how old you are, your financial situation, whether you have health issues, what your husband's diagnosis is, what his major symptoms are, etc. etc. But on one level I do know what you are going through. I offer you my empathy, my hugs, and my tears.
I Hope I helped some. :) god Bless U
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I hope this helps. My heart goes out to you.
What are you telling his physicians? Are you telling them doc: He says he is going to drive with or without your blessing. That shifts the decision off of you and places it on them. You are saying: If he were home he would demand to drive! But have you tried it? Give the man a chance. Before you have him committed at least see if he will comply. It is hard for some men to admit they will comply. They will even brag that they will not and will go to the Mall whenever they want and so on. Since I complied I rather enjoy sitting in the back seat now with my grand children. I actually feel better letting go of the reiins. But I resisted at first. Boy do I remember arguing with my counselors and I had a Palliative care Psychologist with a PHD and he set me straight in one session. He laid it all out to me. Your children are grown and they love you but if you are going to act like a child they will treat you like one but if you act like a criminal you will be treated like a criminal and if you get behind the steering wheel thats what you are; a criminal. It was his blunt honesty that opened my eyes. He also counseled my family. He told them at this point your father is not at the point that he cannot live in the home. That day will come but it is not today. You are adults and you will have to make some adjustments like locking the keys up, putting alarms on the doors so he doesn't wander off. If he becomes too bothersome or a threat in any way all you have to do is call and we will come get him and you can say you tried everything and it will be the truth-because you have! You will not ever have to wonder again if you did the right thing or not. No guilt, no regrets. only honesty and integrity. I have had the privilege of a long marriage and I went thru cancer myself. I was given a window od 6 to 20 months to live-that was about 4 years ago. I do have slight dementia or early alzheimers. My Neurologist doesn't use labels. I misspell words and happily found this forum. I like to think that people are good and I know Nursing homes and Hospices and assisted living are important tools for us elderly. I do not believe they should ever be used for the convenience of our children unless we become a financial burden or a danger to them and our selves. Skid70 for your own peace of mind and health you need to get some counseling for yourself before you make your decision. Not counseling from the home he is going to . Counseling for you! I am afraid that as soon as you put him in you are going to want him out and if you take him out he will say he won and be that much harder to deal with. I hope this has been a helpful answer. Everything you said tells me there are control issues going on here and I think counseling-independent counseling would be a good place for you to start before you make that final decision. We all procrastinate-I have a prescription for eye glasses that is 11 months old. Just this morning I said to my daughter hun-if you don't take me to the hobby lobby I'm going to walk and she said dad-I have 3 things to do before I can take you so keep your shoes off and watch t.v. until I can take you-if you walk out that door say goodbye to your grand kids cause your not coming back-she means it-so I had a fudge sickle with my little friends. My grand children Isn't life wonderful I thought as she wiped my chin and little amys and christies...I know the time will come when I will have to leave home but today is lovely and no one knows what tomorrow will bring
costs but I don't know if it covers rehab in AL. Financial concerns are always an issue. But, you definitelyhave to consider your feelings and how his illness is affecting you. As others have mentioned. talk to the Elder Care experts. You should also check with his Doctor for his advice and opinion about it. My Dad has ALZ and Mom took care of him as long as she could, a home health aid came 3x a week for 2 hrs but he refused to bathe. My Mom was a nervous wreck taking care of him and trying to do her daily chores. I helped out a lot, but never for 24 hrs a day like Mom. He was 90 when the kids felt it was time for him to go to an ALZ place and, as hard as it was for Mom, she agreed. That is where he belongs, where he can get the care he needs. It is still hard for Mom to think of him there and she went to an AL a week after he went to ALZ. She gave up her home of over 50 years, her life, many of her belongings to go AL and misses him and their home and life dearly. But she is somewhat content with her new home and the kids visit and call often and I take her to see Dad about every 2 weeks. The more help you get from experts, the better you will feel. Try not to feel guilty because you have his best interest at heart.
I want to personally thank you for the expressions of both love and regret that you have shared. I think I will always remember your words, which are so honest and heartfelt, and I hope you continue to share them with others.
When your wife passed, she held your hand, looked into your eyes and said, "I forgive you." I hope you can accept the love she felt for you and the forgiveness she wanted to you have. You would honor her and your many years of marriage if you could forgive yourself.
Your wife is with God now and she can see everything for what is was; decisions that were made thinking it was best for her and the pain that all of you feel in retrospect. If she could say you are forgiven in her last moments here on earth, think how much more she forgives you now.
Please take the years you have left and spend them loving your children. I'm sure they need your love and forgiveness now.
You are a good man, a good husband and a good father. Let your children feel forgiveness so they can pass it on to those in need.
Sending you love and comfort, Cattails.
Would you explain what the surgeries were for and did you have any reason to believe that your husband had dementia prior to April 12 of this year.
You don't explain what his medical issues were and are currently. I think it would be very helpful if you shared more information. Does he actually need more "therapy" or is that just something that is being bantered about as a story to tell him about assisted living?
I think there is more that you should share so people really understand what they are responding to. I will watch for your next answer on this thread. Please respond. Cattails
Hugs to you
Unless I am missing something give a hug has not said what illness her husband suffers from. Maybe I missed an earlier thread? I am reaching the age where I will someday soon ask for assisted living. But isn't it odd that my grown children now say they will not let that happen? Simply because they realize we cannot put someone on the shelf until it is absolutely the only possible way. They watched their mother die an angry 6 months because she felt betrayed bu us all. When our children needed us we cared for them. Why is it different with an adult? My father died at the age of 97 in his home with me mother who was 95. She had good insurance that allowed for a nurse to come in once a week and a in home care taker 3 hours a day to bathe and tuck him in and they watched the tellie together. But as sure as rain if she'd a put him in a home he would have resisted and the sedatives would have come out and he would be labeled demented. If it is possible for give a h-ugs loved one to stay in the home she should in my most humble opinion give it a try. He must have some wits to be thinkin about drivin-if thats the issue sell the car. But I don't think you want to give up your independence do ya? No. Of course not. This is why I don't think he is ready for the assisted living. He seems to be thinkin too much for a man so bad off. Is he a handful? I'm afraid you will regret your decision to put him in their care because you will lose him. He will resist and the drugs will take the sparkle out of his eyes
and those places are nice but they will sedate him if he resists. There is a lovely short book titled If Only I knew by Lance Wubbels. A wonderful book of If Only I knew. If you look back over your life from the day you said I do to now-think of that day-if someone would have told you the day will come when you will be convinced by others your man must be put away-what would you have said on that day? There is your answer. As long as he can hear, see, taste, touch, smell he is only a little worn. As long as he is not a danger to you or himself he is just a little confused. As long as you can love him and let others do the lifting and the cleaning, he is still the man you married. Sometimes the easy way is the hardest. Whatever your decision I pray you do not trick him like they want you to do. Be honest and forward. The time for trickery has passed. Honesty is the only way when we are in the twilight years. God Bless you, dear
THAT IS EXACTLY what you do here. And if you do need to actually take steps to prevent him taking the action, you get the pros to be the bad guys. That is part of what they are paid to do, and they have done it a gabillion times. Draw on their expertise, and ask for their help.
Good luck to you, love.
That was the last time she ever spoke to me and I remembered the promise we made over 50 years ago at our wedding. I truly believe I made a mistake and should have hired an in home care-giver. When our doctors tell us we have a choice I believe in most cases he or she is telling us we can put our spouses away out of convenience or keep them with us to the end With help, of course.
All the best