My mom will be 82 this month. She is very weak from severe fibromyalgia, COPD and arthritis. She used to be very clean and concious of her appearance, but the pain has made showers a huge undertaking. We did get a walkin shower installed to make it easier for her. But, it has gotten to the point that I can't get her to shower more than once every 3 weeks. I feel so very guilty about this. I don't know how insistent I should be. Because of her pain, it doesn't seem right to be stern with her. But, as a result, she has developed sores on her bottom. She wears Depends and is good about changing them frequently. But, since she rarely gets out of bed, except to go to the bathroom and to eat dinner with me, the blood circulation on her bottom isn't good so it's not healing. I have taken her to her doctor-who referred her to a wound specialist. That doctor prescribed ointment and movement to get the blood circulating....so much easier said than done! If anyone has dealt with this issue, PLEASE give me some tips. Now, they are scheduling a home visit and I am so worried they think I am neglecting my mom. I'm not, I promise! I keep a clean house, I insure she eats her meals and we are close. So, ultimately, I need to get her up and around more frequently AND help her to shower/wash her hair weekly, at least. I am beginning to wonder if I should literally get in the shower with her to help her out. She injured both of her rotator cuffs 20 years ago and it is very difficult for her to wash her hair...she can't raise her arms up very high. Ok, so to be very frank: I am VERY stressed about getting in the shower with her....it will definately affect her self esteem and it just seems wrong to invade her privacy like that. Please, does anyone have insight that might help me? I love my mom so much...and the LAST thing we want is for her to be placed somewhere. I know she would just give up if that happened. It is breaking my heart to see my mom age and become so weak..she was such a vibrate, independant lady! Ultimately, how do I improve her quality of life?? For those of you who have read through my ramblings, thanks so much for your time :)
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This way she can sit and bath only problem is filling tub is really really slow perhaps you can add a shower head from the ceiling to help w filling you would have a spout and a head over the legs 2 ways to fill tub otherwise it takes forever but sitting would b easier for her you could help her in and out or someone could and she could sit and bath or someone could help her bath you might need a day helper for her or a live in
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During the week, she will not sleep unless her teeth has been brushed so I push her to the bathroom first after supper to brush her teeth and then take her to her room. I have a big bowl with warm water next to her bedside and I will hand her the face cloth and tell her what to wash. This works for us.
It's important to have everything ready ahead of time, so it goes really quickly and smoothly.
Hope this helps...I worried for a year before I got this worked out. She still doesn't really like showers, but I tell her she has to. She doesn't really give me any grief over it, and there are some things she understands just aren't negotiable- like not putting a half roll of TP in the toilet and wearing underwear with pads.
Another tip for teeth brushing. I got her an battery operated tooth brush which I get ready each evening before bed and bring to her while she sits in her chair, along with a cup to spit in. Her teeth are much cleaner now.
As I've said in another similar post re hair washing I now only use water or if really dirty Apple vinegar. This can be sprayed on rather than having to get head wet in shower or sink.
My mom was washed thoroughly by a home aide, and she said the aide was so quick and professional that she wasn't embarrassed.
Right now, she has home health care....due to end shortly. No showers for her; but every week a lady comes to give her a very thorough sponge bath at the kitchen sink in her wheelchair. Even washes her hair. She's able to stand up briefly supported by the kitchen counter so she gets squeaky clean. Powders her down . . . puts fragrant lotion on all over . . . For shampooing her hair, the aid uses a very wet washcloth and a Turkish towel for around her neck and shoulders. The aid talks to her nonstop, coos at her, reminds her how good it feels to be clean . . . mom hated it the first time; now? No problem. I'm sure I could do it myself, but I've chosen to keep the aid. She charges $30 a week, one visit.
The shower would be absolutely exhausting for mom . . . AND she'd be afraid she'd fall. That's her greatest fear right now.
I hope this helps.
Just had our second great Saturday shower, with some modifications. First, Mom sat down right away, so I used the long handled thingy to start washing her, starting with her hair and washing as much as I could. Then I rinsed same and had her stand up so I could wash and rinse the same.
Common denominators that work: the long handled scrubber, starting the shower on low volume to keep the stress down, and having somewhere to sit down. I might mention that I have french doors on my shower so Mom could sit down more easily if she needs or wants to. Also, my sister has a good plan for using a shower chair, putting a soapy towel down first; this would be good if you don't have a bench or she can't stand up.
Some notes: I got the long handled scrunchy from K-Mart; it has a long plastic handle and oversize netting
It seems to make a difference to Mom that I have the volume turned way down at the beginning so it doesn't come at her.
If you don't have a bench a chair would work.
At this point I have to get at least part of the way in the shower with her and leave the door open, so turning the volume down also helps keep water off the floor, too.
I just ordered a thick hooded cotton terry robe for Mom so I can just put that around her. Hopefully that will replace a towel and she can just wear it back to her room and finish drying herself with it after she sits down.
Right now we're washing her hair over the kitchen sink. She either leans on the counter or drives her walker right up to the sink. I put a towel around her neck before we start, then dry her with it when we're done. This lets her spend a little less time in the shower and breaks up the cleaning, but we'll try it in the shower and see how it goes.
All of us would like to be SuperCaregiver, but, come on, we really do not have the powers we wish for. Some things are just plain out of our control.
If you can keep your mom safely at home, you are doing wonders for her quality of life. Don't beat yourself up that you can't perform miracles.
Work on each challenge, one at a time -- which is exactly what you are doing here. Be proud! Get help! Celebrate the good moments you have left with Mom.
We recently had an assessment which resulted in getting a Personal Care Attendant for my husband. I warned my husband ahead of time that I would be telling about his bad days, not what he can do on his best days. (I hate to describe his impairments in front of him, but sometimes it has to be done.) At the end of the interview the nurse thanked me for being so candid. She said she often deals with seniors who keep claiming nothing is wrong and they have no problems, and then can't figure out why they don't get help. I think many fear that if they admit they have problems they'll be placed in a nursing home. But the truth of the matter is, providing in-home care is cheaper than NH placement and the county isn't about to force NH placement if they can figure out a way to make in-home care work.
Please do not hesitate to be be candid with the person who visits. Don't worry about them judging you neglectful. They just need to figure out how they can make Mother comfortable and safe living at home.
The aide uses a very dilute solution of Johnson's Baby Wash for bathing, and a no-rinse shampoo for her hair which she manages to lather and rinse just using well-soaked washcloths and a basin of water. She's remarkably fast and efficient and gets through the entire process in less than twenty minutes, minimizing the time my very modest and often reluctant-to-bathe mother spends undressed.
Prior to having the aide, my mother was in a real fix since she wouldn't allow me to do anything for her of such a personal nature. If they're scheduling a home visit for your mother, maybe they can recommend something similar. I hope you can get the help you need — it sounds like you're giving her exceptional care and you certainly deserve some assistance!