Is there any social support for caregivers? I have found myself completely alone!

I urge you to find a local support group for caregivers. A general caregivers group, or even better if you can find one locally, a group specifically for caregivers of Pikcs disease. It is amazing how valuable it can be getting together with other people who understand your issues. Online support groups are good, too, and have the advantage of being available 24/7. But if at all possible, find and attend local support meetings.

Well Capital and renee1967 You have both come to an excellent place, this web site. I feel a mutual understanding here myself. I myself try to bring a positiveness to some of the horrible issues we face through this. Don't worry about scaring people away with your care giving worries and complaints, there's always someone with answers or a story in their own experience to share and it all let's you know you are not alone in fact some people you will find in worse condition and helping them helps you. So welcome to the Group new Friends you belong with the "caregivers" with the biggest hearts!!!
P.S. I want to Thank You all on this site, because, I never told you all that's how I feel. You all "get it" when nobody else does.

Click on the person's name on the left and it will take you to their profile. You can write them there in the box. Good luck. I hope it works.

i am not sure

I could be a friend to both of the above writers. How do I post my email w/o the whole world knowing it?

Hi, I just wanted you to know that you are not alone. I too have no friends, well you have a couple I have none. It is hard when almost all the time you have is spent on taking care of everything, it hard to make friends or keep them. They don't understand you can't make plans cause sure as you do something happens and you can't make it. Or they tell you WHY don't you just put them in a home or this or that.... Friends can be demanding sometimes too. If they are not going thru this they just don't get it. I quit trying cause I don't know when the next time will be that I will be able to call or go by. My life is not the same everyday I never know what is really going to happen I plan to do this and that but everything gets throne up in the air. I'am just trying to survive and keep breathing and tell my self I'm going to make it and it won't always be like this one day maybe I will be able to think about my husband and my children and grand children. I don't live around my children anymore I too had to move. Now I live out in the middle of no where . I would not even know how to make a friend I have been so isolated for so many years. I don't even know who I am anymore. I'm sorry I'm venting alittle. I know how you feel and if you would like to be friends or need someone to vent to I would be glad to help I can't tell you about any groups or answer your question I wish I could. But I feel for you and understand . We are doing what we want to do take care of those that took care of us because we love them.... It does not mean that it is easy thats for sure. But at least we know that they are being taken care of with love and understanding not being hurt or mistreated in some home some where that is some piece of mind for me. I just found this web site today myself and posted my question about the same time you did. I'm kinda scared to just start talking with some one out there on the web. but you are a care giver too so I will at least let you know I'm here if you need someone. I would like to give you my e-mail but I don't know if I put it here if everyone would have it sincerely renee