And that question is...When are you taking me home to be with my mother, she will ask in 100 different ways but it all means the same. My mom, is 91 yrs old, her mother passed 53 yrs back. No matter how I explain she does'nt understand, I know since I'm the caregiver, I'm the one that's suppose to understand .How do I control my anxiety, level down, how do I not lose my patience. I have done everything, taken her out , play with her, keep her busy doing things, walks, you name it, I've tried it. Everyday seems worst than yesterday. I'm taking med. to calm my nerves down, and if I continue, I feel I'm going to be a drug addict. Yes, I have brothers, but there not here to help besides, they don't call or get involved. We live in, Puerto Rico, they live in the USA. HEPL!!!!
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I believe my mom is depressed too. She takes xanex which helps her keep her cool, but I have to believe the depression from a bad marriage of many years, is what I am experiencing with her now (in addition to her dementia). My sister is due to take her soon to give me a break. Mom will go kicking and screaming because she does not want to go, but I am going to hit the floor soon if I do not get a break.
A friend told me today (she lost her mother to dementia), that our mothers did not have to take care of their parents the way we are taking care of ours today because their parents died when they were supposed to...when their time was up...and not kept alive because of modern medicine.
My mom's heart is not good but the medication is keeping it pumping, her breathing is not good, but the oxygen machine and medication is keeping air in her lungs (so long as she just sits and does not move much), the blood thinners are preventing future strokes, and the anti-anxiety medication is keeping her cool.
Her mind is going though, but she does not know it. She did not take care of anyone at the level I am taking care of her (because of modern medicine) so she has no idea what this is doing to me (us...I am speaking for all of us) because her mind tells her she is my age, she isn't a bother, and I am keeping her here with me when SHE KNOWS she can go home, so it is my fault I have this burden because I won't let her go home. If she could just go home, everything would be ok. And then another day starts all over tomorrow.
My mom, in her right mind, would see that I weigh 20 pounds less than I did 8 months ago. She would see the pain, worry and anxiety on my face and she would be angry toward the person who is doing this to me. She does not see that it is her.
I got off topic. I did not mean to. It is hard to not pity yourself but I pity all of us who are trying to do the right thing. All of us who are telling fibs to our parents to keep them happy all the while we are disappearing. Those of us who are angry and guilty because we are angry, and sad, because we lost a lot of who we were and we wonder if the person we were will ever return.
Sure, we can put them in a nursing home or hire respite care, but the worry never goes away so long as they are alive in this sad sad situation compounded with our own worry of what will happen if this happens to us and how we would never, ever want to burden someone we love...but when the mind goes, there is nothing left...only medication that keeps us alive when the biggest part of us, our mind, is gone.
AM
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