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SueQ2013 Asked May 2013

How do I share with other family members about my husband with Dementia?

Often their upset & worry, or desire to swoop in & fix things doesn't help. Sometimes I need to share about what's currently going on in our lives, what developments there have been in my husband's behavior. He has Alzheimer's-type dementia. I deal with it on a day to day basis, but when I share, sometimes all I need is a listening ear. But some behavior is very bizarre and upsetting for someone who isn't dealing with it on a day-to-day basis. Heck, it's bizarre and upsetting to me too, but because I am dealing with it all the time, it doesn't come as such a shock to me.
Maybe I need to be communicating with people more on an ongoing basis.

ChristinaW May 2013
{{{Hi Sue!}}} Vent here all day and night! I understand the need to also vent in real life. The other day I ran into the chaplain with hospice at my Mother's care home and her ears almost fell off. Some days it's too much:(
Call your local " big church" for support groups ( where I live it's Saddleback. Very big) I have seen groups listed in the Penny Saver on first inside page. Google your area for Alzheimer's support, or simply the organization itself.
I would refrain from dumping on neighbors at weak moments. Once a neighbor sneaked up behind me in my garage as I was trying to escape a couple of years ago after a night of no sleep with Mother on a UTI. I was a raving maniac. Never saw her again. Lol! Vent Vent Vent!!! xo

KatZen May 2013
It is a natural desire for people to want to reach out and help when they hear about someone in trouble. When you talk to your family explain somewhere in the beginning that you know that nothing really can be done, but you just are just looking for a shoulder and you really appreciate their shoulder and support. That will relieve them from feeling like they have to dive in and save you. It is all about communication but also telling them what you are looking from them, they just might not realize you are looking for support not necessarily help.

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Eddie May 2013
SUE,

You came to the right place, and I'm so glad you're here sharing -- and venting -- with the whole AgingCare family. Caregiving tears families apart sometimes; other times it brings them closer together to share such a huge responsibility. As we say in Portuguese, bemvinda.

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