I'm caring for my 87 year old mom who has dementia. When she can't have her way she calls social services and lies about her treatment.
My mother is not nursing home material because she is too combative.
How do I protect myself from these people.
I have full POA. What questions should I not answer due to my rights.
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Look at NH facilities which are overseen (albeit poorly) by the state. They also receive both state and federal funds. As a result said NH are required to provide a certain level of care including a designated amout of activities. You can good NH regulations federal and you will see what a NH is expected to provide. That can help you determine where you could be lacking (likely not).
If they are indeed asking you questions it would be interesting to know what they are and how this squares up with your civil rights as a citizen of this country caring for a parent.
By and large I believe APS is looking for the things that I mentioned at the beginning. They might also want to know who cares for your mom if you need to go out of the home for an appointments, grocery shopping (safety)--in other words is your mom being left alone for periods of time (which could very well be unsafe). Are there physician reports about any bed sores (not re positioning a LO often enough) is the perineal area kept clean and dry (it should be); is she forced to take a bath/shower (these tasks can traumatize someone with dementia). Do you have a fire exit emergency plan/smoke detectors, gas shut off valve and wrench. How do contain/prevent infection? Is there an odor in the home; is the home clean and safe? Are throw rugs and other tripping hazards removed? Is your mom supervised long enough to light the stove/microwave and start a fire. Do you have fire extinguishers in the home?
Medications and how you keep them away from her/how is she monitored for medication.
I think if you follow what is here and adhere to what is expected of federally funded and state funded regulations you will be fine; I make that assumption because I don't have a clue what questions they would be asking.
When mom came to live with me any household item from vinegar to XXX was removed and placed in a rubber maid 30 gal trashcan which I placed right out my back door. My mom wasn't told what I was doing and didn't have a clue what the can was for; she never asked and I never reported what it was used for. I removed everything that was unedible in the bathrooms and kitchen/washrooms . Clothes soap in the form of those pods appear to look like candy to children and therefore could do the same thing to someone with dementia. Things like dish soap which comes in very pretty drinkable colors was place out of sight/out of reach for mom. Safety proof your home.
I'm sure you are fine.
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First if all, if it weren't true fat mom wasn't nursing home material, would you want to have a ride home with you? It's fine if you do but I asked the question because there's no such thing as "not nursing home material" because someone is combative. There are licensed, locked Alzheimers, dementia or memory care facilities that take people just like your mother. The workers there know how to handle them and if they are two out of line, the doctors prescribe medication to calm them down. I'm going to address the rest of the issues as if this question is answered that, at least for now, you WANT to keep mom home with you.
APS is charged with the responsibility of investigating ANY reports of senior abuse, usually referred by a mandated reporter such as a doctor, psychologist, nurse or other hospital worker, just about anybody if they know who you are and they're suspicious, or as in your moms case, the person herself. How advanced is her dementia if she can use the telephone. My mom couldn't for a very long time, she lost the ability to figure out the electronics of the buttons (hint: remove the phone). Or does she still have enough wherewithal that you leave for home alone or she would need it? Just things ti consider.
APS investigates suspicion but they're not out to get you. They're trying to benefit the elder not injure you as long as you're not doing anything untoward. But that doesn't mean you don't want to protect yourself from any allegations your mother may make. So you don't need to protect yourself as much from "those people" as you do from your mom.
I did a little research barely over a week ago because I have recommended nanny cams, nanny cams, nanny cams. I found you can get a mini alarm clock nanny cam for about $65; there's something extra called an SD card they said you needed that I don't know how much that is. it can be set on continuous recording or motion sensing recording. I would suggest you get one of these, set it up facing sure that your mom likes to sit in, sit off to the side making sure you're not blocking the view, and when she's in a good mood, engage her in a friendly conversation and eventually ask her about why she gets mad at you enough to call social services. My and had alcohol dementia and she could get downright nasty sometimes but when she was in a good mood we would talk about it and she laugh about when she was being nasty, she thought it was funny and she knew she was doing it to get her way. Of course you want your nanny cam "evidence" to be just right so you won't really be trying to record her in the beginning when she's in a snit. After you get some good stuff supportive of you, showing that she's having an enjoyable time and it made it to her bad behavior, you can then record some snits. Off camera, after you've done this, you might also begin to inform her that as much as you like her to stay with you, if she continues to call and falsely accuse you, "they" are going to remove her from your house enforcer to be in a facility, is that what you want mom, etc.?
If you get a good response in a good conversation out of that, you can have it again a couple of days later and getting her to admit on camera that she called falsely. THAT is how to protect yourself from mom. You shiw that to social services, APS, the doctor or the police and you're covered.
When you say you have full POA, I infer that you mean you have both the general durable power of attorney, GDPOA, for financial matters, and the durable power of attorney for healthcare, DPOAHC, for her medical needs, and that these were set up prior to her dementia or in the very early stages, right?
That's good but meaningless if somebody decides you ARE abusing her, they are required to take you to court and a judge will set aside your POAs, appoint another family member or a public guardian. Good reason to protect yourself.
- Very important to have support of your mother's primary care doctor who is aware of her condition and have knowledge of your efforts in caring for her. Doctor may provide helpful advice along with her official diagnosis plus that from specialist involved, as to your mom's condition plus tendencies.
- Neighbors are a good resource as to being able to vouch for the care you provide and you need to make them aware so they are not falsely alarmed should your mom acts out.
- Should your mom dial 911 or somehow get police involved (via social services or other agencies she calls to complain), I have been told by police that they may have no recourse but make an arrest first and up to individual to prove innocence incurring lawyer/court costs, embarrassment, and so forth.
- Which is why my neighbor (ex police officers) directed me to immediately file non-emergency police report to let them know elderly's behavior of filing false accusation when not getting their way. Officer will be sent out to make inspection/report, so good to show dementia diagnosis from doctor and proof of care provided. Thus, if/when your mom inadvertently or otherwise involve police, you are covered.
- Ask local Alzheimer's caregiver support groups/agencies on how to properly proactively approach social services, Elderly Protective Services, and other local agencies to explain elderly's combative and false reporting behaviors. NOTE: Important as you need to be aware that it may be opening a can of worms for yourself if not properly prepared to prove adequate care being provided and so forth.
Was very traumatized by the experience as to how vulnerably exposed caregivers are when elderly with dementia or otherwise cries wolf. So do take the time to carefully go through the info by respondents to help you put together action plan to protect yourself when your mother acts out.
Hope this helps and Best Wishes to all us caregivers...
as far as aps, i havent found them to be overreactive at all. dont let paranoia eat you up. aps has seen it all. theyve heard it all. answer their questions with an air of self confidence. they were nice to me. id like to bite the younger one on the ass. i always wondered if women could sense that desire despite the visit being so formal and unrehearsed....
This is only one instance, I could write a book about how ignorant they are when it comes to the behaviors of dementia and Alzheimer's patients! I feel like we need to crash their meetings/seminars and educate them...oh wait they are on the golf course!
I'm going to have to get a doctor to send a letter advising against such an action. She has admitted that dad has not been mistreated by us, that in fact, he has been treated very well.
I'm not sure, but I think you, rcuthbertson, and I need an attorney.
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