My Mother has Dementia, Osteoporosis, Scoliosis and we believe cardiac problems. She cannot accept the fact the doctors tell her not to drive although she wouldn't feel like it if she did. She has sudden onsets of pain, nausea and blackouts along with confusion. I'm sure it is a result of losing her independence, however, she is upsetting me with constant talk of suicide. This evening it was lashing out at me saying no one wanted her around so she began to threaten again. I do everything for her and she has Hospice. Her pain is under control but her mind seems to be getting worse everyday. She said so many cruel, hurtful, cold hearted things to me this evening. My heart was racing so bad (I have a heart condition). When I told her how I was feeling she responded with 'that's your problem, I'm going to bed' as she turned out the lights. I was in shock since this is not like her. I stood at the door with tears in my eyes when she screamed at me to shut the door because she was cold. I left but drove around a while. She did call me and said that I left so fast, she wanted to know if I was mad at her. I told her no and asked if she was mad at me. She answered no but her voice wasn't right. There have been times growing up and after that she has behaved this way. 'I'm sorry' was never in her vocabulary. She could be very cold and hurtful but never thought she was because she couldn't accept doing something that was wrong. I'm not sure how to handle things now since she told me she didn't need me anymore and wanted to change her will, bank account, cancel Hospice, etc. I told her I didn't care about her things but she what she heard was I don't care .... about you. I've spent 19 years looking out for her and the last 6 months taking her daily food (or she wouldn't eat) paying her bills, driving her to appointments and caring for her night to night while she was vomiting non stop. She takes a time released morphine that has her pain under control and less nausea unless she insists on doing more than she should and then suffers or she forgets to take her med's I have on her nightstand and in the kitchen. Tonight's outburst was extremely difficult for me as we have always been very close and she showed no feeling or compassion towards me and my health. I have a heart condition and am under doctor's care. I don't know if she will forget everything tomorrow or be confused about the things she may remember. It was so stressful I just want to stay away for a while besides preparing her morning and nightly medicine although I can have someone else do that so I can just stay away. I am so hurt and stressed more than my cardiologist would be happy with. Any suggestions on what to expect tomorrow? Is the morphine causing this personality change or is it the dementia and losing independence? Why talk of suicide constantly when she lost her youngest that way which devastated her and she blamed herself although she had nothing to do with it. Should I tell the Hospice RN about her comments? I guess I needed to vent while I'm still in tears and trying to calm down.
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So glad your Dad is feeling better with the structure and routines in the facility and that you are also getting a much needed break after 11 years in your home. Bless your heart.
My Mom would never move in with me. She has always been so independent and head strong. She has had to be during her life but now it is becoming a curse. She hasn't threatening harming herself in quite a while now so you're right, things have settled down in some ways - that being one of them. At the same time, being so independent she wouldn't allow for the aide to assist her with bathing. This was to also look her body over for wounds, bruises, etc. A few weeks ago she asked me to look at something on her tailbone. I was horrified when I saw the wound. The aide came and almost cried when she saw it. Told her it wasn't her fault nor mine seeing that Mother flatly refused help in that way. The Dr's and RN's all call it a bedsore even though she isn't bedridden. It was 3.5 cm, infected and dark black crust flesh. Hospice began treating it from a script the Dr ordered. I took her for debridement last Monday. She has made it ok with little pain. She seems to be losing smell, taste, hearing, feeling and sight at times. There are times when I sit in front of her and she tells me she sees a silhouette but she doesn't see me. Did this to an RN last week also. When she can't see, she will walk right into me and say I need to get out of her way cause she doesn't see me there. She's had eye surgeries to the point there is nothing more they can do. She does sleep a lot, but usually in bed when she needs to nap, like they suggested to her since she rolls on her side. They suppose her skin is just so thin and broken down that it didn't take much for a wound to appear. Going to take weeks for it to heal but it is making progress. Each day is a new day for her ... and me. She is so very confused to the point that she thinks she is fine and wonders why Hospice comes, that she doesn't need them and talks of working in the yard. I just let her talk because I know she will forget in a couple of minutes. When she feels bad she can be so argumentative then can change in an hour and be so appreciative of me and my husband checking her off and on all day and taking care of things. She doesn't accept or realize that her health is very bad a lot of the time. Other days she will say that she doesn't think she will ever get any better. Her oxygen had been 81 for several days until she did some deep breathing. I don't understand why being able to write down 95 is important when we know it will go back down in a few minutes. I have been very patient with her until I am a little stressed or tired. Sometimes I have to walk outside to give myself a talking to. Hospice told me they had seen a big decline the past week. She isn't eating or drinking so she isn't using the bathroom. She'll complain about severe pain in her stomach and side but in 5 minutes she has no idea why we are asking questions about the pain. Mother forgets so we're not real sure what is true or not. Her BP stays on a rollercoaster. Being so tiny, around 74 pounds fully dressed with shoes, she doesn't have much to fight with. Hospice has some great people for me to talk to. They have been great and they tell me I talk and react so much better now than when all of this first happened. She continues to pray that the Lord take her. I tell her that I understand but things will happen when He says so and it isn't on our time. I don't get upset anymore. She will be so frustrated of not being able to remember things and starts getting depressed. I've gotten where I remind her she has Alzheimer's so she has a reason but I forget things and have no reason. It usually makes her feel better and sometimes laughs. I'm so thankful she isn't having horrible pain. I pray that when the time comes, it will be like she wants and leaves this world in the home she loves. Thank you all for commenting. I read each one. Blessing to you geolin6 and everyone that commented also. It's been a great help to me.
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Blessings to you and yours!
The AL around here are not that great. I'm really want to try and keep her wish of staying at home until the day her mind is completely gone. Hospice is a huge help. After making them aware of what had happened, they have spent some time with her talking. Course, she forgets everything within minutes but something seemed to help. If it wasn't for my husband helping me when I need rest I would be forced to place her somewhere. I know I will never have my real Mother back again and she can't help what she is going through. We've all seen it coming for more than a year.
I knew she would forget that the family was with her Thanksgiving after she fell asleep with us there. She has one, so called friend, that loves to call Mother and brag about everything her kids do for her and make Mother feel bad. The woman gets off wanting to out do everyone. Sure enough, the woman called and Mother told her about all of us being there. Mother told me she was glad I reminded her. Thank goodness she had the conversation just right after I called her.
I agree that it is suicide is a cry for help or really for her, it's more of wanting her family around more often even though I'm there everyday. With her it's also a rebellious act of losing her independence and not accepting it so she'd rather not be alive than to live this way. Jessie, thank you for the hugs and words. I hope the best for you in your situation also. Hugs back to you.
I have really enjoyed just reading things in this group. Everyone is so supportive and just a good place to learn, hear other people's stories and yeah, vent.
I appreciate all of your help. Thank you so much. Hugs to each.
I don't know if your mother will agree to AL or having a professional caregiver come in, but it is worth a try. I realize it is easier to say to do something than it can be to actually do it. Let us know how it goes. Big hugs and good luck.
I agree with Standing Alone, if this is too stressful for you and you're not able to deal with your mom's dementia, then get her into a facility or get some 24X7 help in her home. It's too much for you.