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PinkLA Asked January 2014

Is anyone's loved one taking Donezepil and Namenda?

I took mom to the doctor today. We discussed many of her issues including her instability walking (she uses a cane and a walker), her sleeping more (she went from 11 hours to 14 hours), and her occasional delusions. They received back the bone density scan and apparently her hips are very porous. He said that she could suffer a spontaneous fracture just walking. Yet one more thing to worry about. The doctor put her on the generic Fosamax and I bought her vitamin-D and calcium supplements.
There are so many things that she neglected earlier in life that they seem to all be catching up to her now.
Mom is middle stage verging on late stage dementia, she flips back and forth between childhood memories and memories of when I was a child. She sometimes forgets that she ever lived in NM. She is taking Donezepil and the doctor suggested Namenda. Is anyone’s loved one taking Namenda and did you see any benefit from it. Since my mom has been on the Donezepil her delusions aren’t as frequent but her memory loss seems to be progressing more rapidly than I would have expected with this disease, catch-22.
Curious about the responses on the Namenda. Did you find that it helped?

Nikki99 Feb 2014
My mom's been on Namenda for about 6 months now. I haven't seen any real change. I think the script helps the pharmaceutical companies more than mom... But it's hard to know for sure because I can't expect "improvement".... all I can expect (from any drug) is stagnating the inevitable decline.

MamaBug Feb 2014
So many medications can't be good for anyone. My MIL is on I think twelve different medications, two being the Aricept and Namenda. She's also on a narcotic pain pill as well as valium. So much to keep up with. It seems like I'm constantly calling in refills.

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PinkLA Feb 2014
My understanding is that these drugs can "possibly" slow down the progression for a short period of time (possibly 6 months or so). Then the individual will progress again in the disease. I wonder if putting someone on multiple medications is good for the liver? These drugs have side effects that can cause the individual to die from the side effects rather than the disease.
To me it is all confusing.

mgcarter Feb 2014
So, how do we know when Namenda and Aricept have ceased working? I haven't found a list of signs.

patfalk Feb 2014
Follow up from what I wrote above;I,don't like Aricept. Two days was TOO many!!!!
Bladder infection,probally came from that.I,like Namenda

patfalk Jan 2014
Mom,took Donezepil ( Aricept) for 2 days.She felt sick to stomach&All,she does is sleep.I,took,her off of it.She,only took it for 2 days.I,hope,mom will be better today.Or,she may have the flu.

MamaBug Jan 2014
My MIL takes them both. I did see some improvement, she seems more alert, more aware of what's going on around her. But that won't be the case for everybody. It depends on the person.

agilitees Jan 2014
Re: Namenda...it has occasionally been mentioned as a possibility for my mom, but nobody--including a very well-known Boston geriatrician--showed much enthusiasm for it.

agilitees Jan 2014
My mom is 90, living in AL memory unit and relatively "happy" but definitely declining in behavior--with no short-term memory remaining. She's been on Aricept/Donezapil since 2007. I've asked her doctor, the medical supervisor at the AL and other "specialists" whether it still makes sense to continue giving those meds. Nobody has an answer, because there's no way to determine whether she will get even worse without the meds. I'm sure it benefits the drug companies, but does it really make a difference after seven years? (I'm planning to stop the meds when this refill runs out.)

jeffrey20832 Jan 2014
On to those who don't know Donezepil is the generic name for Aricept. I forgot to mention that. I couldn't remember for a minute. I am sure I will need it someday too, huh?

jeffrey20832 Jan 2014
My mom was on Aricept, and she was having stomach troubles and they switched her to Namenda because they felt it was easier on her digestion. I haven't see that Namenda has hurt, but neither would I say there was any improvement. After she titrated on Namenda 28mg then, then also got her started on Exelon Patch. Again, if there is any improvement, I don't notice it. I talked to doctor and they said these are really to keep them from getting much worse, too fast. Inevitably nothing works.

LoveMyMom2560 Jan 2014
Interesting about the vitamin D! Thank you for that information as my Mom has some of those symptoms with no explanation as to why. She has a deficiency and takes 50,000 IU weekly and an over the counter daily.

Anyway, regarding the original question, I believe my Mom has been on both medications since she was diagnosed with dementia four years ago. My input is that she was diagnosed four years ago and is doing as well or better than she was four years ago! Of course I cannot definitely contribute any of that success to the meds cause who really knows, but I can say that it did not harm her!!!

Good luck!

PinkLA Jan 2014
psteigman, my mother is not supplementing with any VitaminD at the moment. The doctor recommended that since her bones are so porous that we do start supplementing with it and calcium from now on.

patfalk Jan 2014
Mom,has been taking Namenda,;when we found out she has dementia(2 yrs)
It's suppose to slow progression.Mom's dementia has begun to get worse,at times.
I,don't see any harm in taking Namenda.It's just so hard to know how condition will
progress,with or without pill. show love&do your best.I,try to write down,any new weird things that happen&I will tell,her DR.Also;I let long distance family,know.In,case they need to visit,while memory still good enough. HUGS

pamstegma Jan 2014
Some side effects of taking too much vitamin D include weakness, fatigue, sleepiness, headache, loss of appetite, dry mouth, metallic taste, nausea, vomiting, and others. I suspect you need to cut it back.

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