We are meeting with neurologist on 3/3, but primary care dr thinks she has vascular dementia, and so do I.
I see a lot of correlation on the internet between strokes and VaD.
Do they HAVE to go hand in hand?
I have not seen evidence of any strokes, or smaller TIA's...
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Let me try to answer all this.... as far as kids helping. Not much. Can't really blame them. Son is 17, it's an "online" world in his world... he's even attending an alternative school because he screwed around Freshmen and Sophomore year in HS.... only NOW is he "getting it" that he needs a damn diploma. He is definitely an "indoor kid" I mean you wouldn't know he was here. He can take Grandma in very small doses... if she needs bags carried from the car to the house across the street he always helps... he'll pet her little dog, hug her, and come home.
My daughter is 13. Her life is her friends and horses. Grandma will let her and her friends swim in the pool she has in her enclosed screened in area (yeah like we need the pool my mother has never put a toe in) but only upon conditions of things like "help" and crazy stuff. It's not direct either. It's like the ESSENCE of "if she hugs me and gives me time I will allow her and her friend to swim"... she never outright says it, but she's not one of the grandmas who bakes cookies with you or really enjoys time with you if you're a kid. I know this because while she was a good mother, she never played with me. And she was a stay at home mom. Always cooking or something.
So no the kids are no help and frankly I don't want to make them.
I have a long-term boyfriend. He works long hours. He tells me his problems so it's not like I can really get an ear to tell him mine because when I do he wants to find a solution for me of course, so he says, get her in ALF. But here's the thing. Mom told me if I were to even suggest it BEFORE she can no longer walk (I guess she feels if she can't walk anymore she would accept an ALF) if I were to do it before then? She told me she would sell the house and move 5 hours away to live near her twin sister in the same condo. Talk about the blind leading the blind. Please. I have to do my mom's checkbook and bills. I have to count her pills, for crissakes. I cook every night for her and bring it to her like the galloping gourmet. i entertain her because I drive. GRANTED she DID buy me the car, so I don't mind that so much but sometimes I can't get my own crap done, you know? She's always "waiting" for me and I HATE THAT I FEEL... Angry and then guilty for feeling angry!!! Today her hairdresser called me. We are friends, she and I. Well, we USED to be friends. Apparently mom (who goes weekly) told Gina she didn't have any money with her; where could it have went, did she leave it home, yada yada.... Gina calls me. Says just come in and pay for her. I parked to do that and mom walks out, "I found my money. It was in my purse." Well no kidding. I knew. I took her to grab $300 cash 2 days ago from the bank.
There is NO WAY she could live 5 hours away. Her twin, Lucy, is worse than she is. She has an in-home cook and caregiver for 2 hours a day that family pays for. They pay themselves out of pocket because Lucy has them in the will. What a mess.
Anyhow, mom isn't incompetent, and if she decides to "sell the house and move" I don't know what I will be able to do. I know it's crazy as she relies on me a lot, but she told me until she's in a wheelchair or can't walk, she wants to stay in HER HOUSE. ok then. Like everyone else says I guess we have to wait for an accident.
I am frustrated, tired, guilty, loving her, hating me sometimes.
I just know I am worried about money and no, she told me if I get a job, she WILL move.
I can't allow that. I really can't. She will sink mentally I know it.
Right now she is ok.... seriously I am going to have to wait for her to fall and break something before I can get her into ALF... unless her memory declines more...
I know how you feel as ive no money no job and hate this shitty town so am miserable all the time?
Lucky your kids are grown up and can take care of themselves but having no money on top of this is very stressful. I dont even have a car since last year and thats tough BUT i hope there is a light at the end of the tunnel as i am waiting for money to come through from a court case as i had a very bad accident and am suing them. Pray i get this sorted soon and get my life back on track.
If i were you i would try and get back working and maybe get your mum into a ALF we cant give up our lives like this its so depressing as ive said before i dont even know who i am anymore.
I went shopping with a friend yesterday and she just annoyed me so i snapped and went home. Seems everyone is pissing me off lately and i know its me as im not happy and seem to have nothing to look forward to week to week just even enough to go out every weekend and feel normal again?
I live in a small town and jobs are very scarce gosh if i could work i would this is not living i feel like i am just existing but 5yrs now is too much and if i continue like this i may kiss my life goodbye.
Do you have a husband or boyfriend even? Do you get out with friends? so important not to make her your whole life she will drain the life out of you.
Seems your mum is same as mine at the moment my advice get a job asap as she seems to be coping now then when she gets worse she will have to go to ALF and you will feel alot less stressed and more independent?
Do your kids help at all? so important to get support from anyone its the pits as much as we love them this is very hard on us. I know my mum would live longer in a NH but she wont go i can see us getting a court order she just wont do anything shes told to keep safe and well its sucking the life out of me.
Well all i have is hope that money will come soon and ill be off and try and get my life back again.
You need to set boundaries work out how much care your mum needs get her all she needs then walk away from her and do your own thing if she complains or tries the old emotional abuse crap just ignore her im telling you the more you back away the less shell bother you!
My mum gets up at 1pm i cook her lunch then im gone even for a walk or go to town for coffee i come back around 5pm then cook her dinner and am on this site when she watches what she wants. this is my "groundhog day" i spend as little time with her as her negativity just drains you.
She goes to bed around midnight so then i watch tv then go to bed and this is my life?? I do go to a friend 3 times a week for the night just to get away.
Basically im doing all i can to survive each day until things pick up!
And now since I have smoked these, I have chest pain, which I don't know its cause... is it stress ? (I think so) or the e-cigs? Regardless, I am weaning myself off them completely.
The chest pains feel like anxiety. My money situation is AWFUL right now due to having to live here in a house bigger than what I can afford, because it's across the street from mom's.
The money situation is going to get $1200/month worse very soon when that payment stops, and it is due to stop within a few months.
Can I get a job? Nope.
Mom says it's because of the kids. But it's not. The kids are 13 and 17 and are fine on their own here. It's her. I can't "tell" her that, but of course she's the reason.
I tried to get a part-time job a couple of years ago. She called asking when I was coming home. The job lasted two days.
I'm just very tired, feeling trapped, guilty, awful. I want out. God forgive me but it's too much... and we are not even at the point yet where she needs me for hygiene or anything.
I cook for her, get her pills out, ENTERTAIN HER every day, and basically just spend time with her. Right now that's all she needs.
When it gets worse, I will be forced to make a decision for ALF which will actually free me to sell the home and get a job.
It's really a lose-lose... there is no easy answer.
Off for a coffee now and a choco bar would kill for a smoke!!!!!! LOL
Nikki good for you for stopping smoking im struggling its very hard when mum stresses me out i was doing ok having maybe one or two a day then i overheard her on the phone to my sister when i came home and she said in gaelic "oh here comes bigs ears i cant talk to you now". so she and my sis were bitching about me i was so mad i went and bought a pkt of cigs???
I dont care what mum says about me but my sister listens and believes everything she says as shes quite stupid and dosnt really understand dementia and cant be bothered to inform herself.
My mum also threatens me with the "taking you out of my will crap" dont listen i told my brother and he said that if she did that he would make sure i get my share?
We get all the abuse and thats just what comes with this illness they need someone to bitch at my mum was never like this so i know its the illness but shes getting worse if you disagree with anything she turns into monster and will hurl abuse i just learn to walk away then she sucks up to me by asking me if i need money??
I tell you this illness should come with an "idiots guide to caring" handbook thankgod for these sites as not one professional has ever given me any advice since she was diagnosed last September!
Nikki vodka and cranberry is my fav drink!!! vodka bad for liver cranberry good for liver WIN WIN!!!
I have to say i dont drink much now since stroke maybe just a few glasses of red wine which is suppose to be good for blood thins it apparently. My fags were my best friend!!! good for you to give them up when youre under so much stress thats shows that you can get through anything.
Ive seen a nice blouse and skinny jeans (in baby blue for spring) if i dont smoke i can afford them im going to treat myself every week? Pray that i get to stop smoking as its very hard even if youve had a stroke they say its easier to give up heroine??
Roll on easter when mums away just to have to do nothing for 12 days but ive been here before and when mum did go into respite i would just sleep and watch TV all day even that was a treat!!!!
The stress of worry about my future consumes me. THAT is what consumes me. I gave up my career when Dominic, my 17 yr old, was THREE. That means I have no career. I have nothing. When she dies, yeah sure. I'll have the inheritance. If it isn't gone to ALF or Memory Care. She will hang on, let me tell you. She has grandpa's genes, and he lived to be 99, God bless him. I worry every day about tomorrow.
Ashlynne my mum needs a NH but hell will freeze over before shell go into one i spoke to her doc and he said she cant go if she dosnt want to???? like alot of us "We wait until she falls or worse" this is insane but if you try and tackle the professionals this is what you will hear if she wont go theres nothing i can do she also refuses to sign POA so i give up its not worth the stress on me. I know i will have to leave soon when this money comes through sometimes i really think FATE has trapped me here i feel mum wont be here much longer and maybe thats why my life has put me here now IF i get the money to leave soon then ill know i was meant to leave.
Its a desperate situation but when you have no more cards left to play all you can do is pray and hope.
I dont know why your mum is falling out of bed all the time?? do they not have her in a secure bed with side handles? sorry im just shocked that shes falling out of bed ALOT?
Mum asked me tonight why was she paying for TV?? its my TV why am i paying for it?
Shes getting more and more confused and asking some pretty scary questions its just heart breaking to watch i just answer her then run to the kitchen and cry what a horrible cruel illness i am prepared for this to get worse i dread the day i would have to leave her in a NH but for some strange reason i dont think she will survive that long its wierd but i just have a very strong feeling. I always had this feeling along time ago that my dad would die around xmas and he did so my gut feelings are usually right or maybe i just want her to go before she ends up in a home?
Please God there will be a cure soon for this awful disease soon and we never have to witness it again EVER!
I can recall years ago maybe 20yrs i met a guy who was looking after his mum with ALs i remember thinking what a great guy to do this then thinking how lucky i was that "mum" would never get anything like that?? Its still hard to believe she has it as there are days when she is so alert and "sharp as a tack".
Ive let my cat out and its late and now i want him in again i just let him out to toilet as he dosnt like to go inside (little pet) i am so tired and hope he comes in soon.
I have taken myself off Stilnoct (sleeping tablets) four days now but have realised who am i kidding? i aint sleeping i suppose ive become an addict i will try again tonight and if i dont sleep quickly ill be down at dawn banging on my docs door for another months supply? well at least i tried?
When i was a baby i was the best sleeper slept all night and more before my accident ive gone from 10 hour a night sleeps to 4 hours so had to take something now i cant sleep without them.
Has anyone ever come off these i wonder how long it takes i know that they are addictive but we need sleep have tried KALMS they were crap.
If i dont take a tab for sleep I just worry and think about mum and whats going to happen to her. Even in sleep we are stressed!
Cats in and not happy but its for his own good! if only i had same control over mum!!! LOL
I swear I have had chest pains for a week now.
Needless to say, we got in the car and went shopping....that made her feel better...for now.
This particular type means that they can change day to day she can be "competent" one day then "mad" the next which is why they can manipulate family as they seem totally normal to them but then she will throw her depends out the window?? its a very subtle "dementia" but spend enough time around them and you can see the illness better BUT my family never spend enough time to see the "crap" that i get. The horrific mood swings,the aggression,the way she speaks to me like a "slave" the clutter,the money hoarding,the hygiene issues,the mess everywhere and then some!!
Mum has all of the other posts health issues. HBP,HC and diabetes and heart "stents". I am in utter shock that shes still alive ive looked after her now for 4 yrs and ive had a TIA?? just goes to show how stressful this is to deal with. A surgeon once called mum "cat oh nine lives" but as we all know her ninth life is almost up noone can be that lucky with thier health but then mum has outlived most of her family as they all passed away in thier "60s"? so sad and so young. My fathers side are the opposite they lived well into thier "80s" oh god whos genes have i got?
I think all we can do is eat well and excercise and "refuse to get stressed" LOL
You can't stay awake or sleep with one ear open in case she gets into trouble. My paternal grandmother used to have all four stove burners on high with nothing on them and get up at 3 a.m. so she didn't miss the milkman. From what I've read here some dementia/Alzheimers folks leave the house and wander the streets in their night clothes, other wander the house at night. Thankfully during the years I cared for her my mother never did those things, though she did some really bizarre stuff at home.
I so know how you feel about your cat. I have 4 plus 2 dogs, Sue and Ashley - that's Ash, from rescue last spring, in my avatar - and a big old goldfish called Ralph and without them I'd probably be in the looney bin or worse by now :)
Re the calls from the NH it's their policy. Last week she got out of her wheelchair and they found her on the floor, no harm done. Christmas eve night I had 4 calls. 1) she tried to get out of bed, found on the floor with a cut finger which they bandaged; 2) it wouldn't stop bleeding so they send her to the hospital 4km away; 3) would I come take her? Nope, I can't lift her, call transport; 4) they can't get transport, should they call an ambulance and I pay for it? Frankly I don't care if you send her by helicopter or flying carpet, just do it! Now you know why the phone goes off the hook a lot. In fact it's 5.30 p.m. and I'm about to feed my critturs and get my own supper so off the hook it's going until tomorrow.
Please let us know how you're doing and if you can make some plans to end your nightmare and take your life back. I'm so worried about you. God Bless.
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=161
How does vascular dementia develop?
To be healthy and function properly, brain cells need a good supply of blood. Blood is delivered through a network of blood vessels called the vascular system. If the vascular system within the brain becomes damaged and blood cannot reach the brain cells, the cells will eventually die. This can lead to the onset of vascular dementia.
A number of conditions can cause or increase damage to the vascular system. These include high blood pressure, heart problems, high cholesterol and diabetes. This means it is important that these conditions are identified and treated at the earliest opportunity. Effective treatment of these conditions may significantly delay or stop the development of vascular dementia.
Types of vascular dementia
There are different types of vascular dementia. The difference between these types depends on what has caused the damage in the brain, and which part of the brain has been damaged.
Stroke-related dementia
A stroke occurs when the blood supply to part of the brain is cut off. This interruption in blood supply causes permanent damage to the brain. A stroke is usually the result of a burst blood vessel (known as haemorrhagic stroke) or a blood clot (known as an ischemic stroke).
The symptoms that a person experiences as a result of a stroke depend on which area of the brain has been damaged. For example, if the area affected is responsible for movement of an arm or leg, paralysis might occur. If it is responsible for speech, the person might have problems communicating. Equally, damage to particular areas in the brain can cause the symptoms of dementia.
The most common type of vascular dementia is called multi-infarct dementia, which is caused by a series of small strokes. These can be so tiny that the person might not notice any symptoms, or the symptoms may only be temporary.
When vascular dementia develops after an obvious stroke, it is sometimes called post-stroke dementia (or 'single-infarct dementia').
Sub-cortical vascular dementia (small vessel disease or Binswanger's disease)
Sub-cortical vascular dementia is sometimes referred to as small vessel disease. There is also a specific form of sub-cortical vascular dementia called Binswanger's disease. Sub-cortical vascular dementia is caused by damage to the tiny blood vessels that lie deep within the brain. Symptoms may include difficulties walking, clumsiness, lack of facial expression and speech difficulties. Loss of bladder control early on in the disease is also common. These symptoms, however, are not always present and may come and go. Some people may experience sub-cortical vascular dementia as well as stroke.
Mixed dementia (vascular dementia and Alzheimer's disease)
About 10 per cent of people with dementia have a type known as mixed dementia. A diagnosis of mixed dementia means that Alzheimer's disease, as well as stroke or small vessel disease, may have caused damage to the brain. The symptoms of mixed dementia may be similar to either Alzheimer's disease or vascular dementia, or may be a combination of the two.
Factors that can increase the risk of vascular dementia
Many of the factors that increase the risk of vascular dementia are the same as those that increase the risk of cardiovascular disease (for example, smoking). This is because the cardiovascular system (made up of the heart and blood vessels) is responsible for delivering blood to the brain.
Factors that can increase a person's risk of developing vascular dementia include:
a medical history of stroke, high blood pressure, high cholesterol, diabetes (particularly type II), heart problems or sleep apnoea (where breathing stops for a few seconds or minutes during sleep)
a lack of physical activity, drinking more than recommended levels of alcohol, smoking, eating a fatty diet, or leaving conditions such as high blood pressure or diabetes untreated
a family history of stroke or cardiovascular disease
an Indian, Bangladeshi, Pakistani or Sri Lankan ethnic background - differences in vascular risk factors (such as heart disease) in these communities may contribute to the increased risk
an African-Caribbean ethnic background - more research is needed to know why African-Caribbean people have an increased risk of vascular dementia.
I cant understand why the NH feels the need to annoy you all the time that cant be right? Surely they should only call you in an emergency?
Can you tell her doc that you need the NH to stop calling you unless its urgent? thats not fair.
I hope youre getting better. I feel like doing nothing lately thankgod i have a cleaner that comes in for 3hrs a wk id be lost without her she just whizzes around and cleans the whole house and does ironing of course my mum thinks we dont need her????
This week im just so drained and fed up. First my cat got a bad attack from another cat and his poor little head has a bald patch break your heart when they get hurt.
then the toilet broke (yep mum again 200 euros)
the washing machine broke down then (yep mum again putting her washing in with rings,diapers you name it a call out now and maybe a new machine?)
I cleaned the bathrooms then mum decided to poo all over them a friend called for coffee? I didnt open the door and pretended i wasnt home?
Im not getting out of bed tomorrow unless there is some good news to get up to??
I was constantly on edge, strung out, stomach churning and my hair was falling out. Two weeks ago I had what I suspect was a TIA and stroke runs in the family so it terrified me. I've changed my phone number, made it unpublished and the NH has strict instructions not to give it out. As the NH calls me for every little thing I also take it off the hook overnight and also during the day if I nap.
For the past two weeks, apart from basic chores, I've done very little, always tired and sleep a lot. I've only visited once and that was awful, however my mother's dementia is just about full blown and she won't remember if I was there yesterday, last week or last month. It will take a while to recover from the years of stress but I have to take care of myself before I'm really ill..
My mom was actually IN the Nurses' Health Study that showed those lifestyle habits we almost take for granted today can make a difference. And yes, they can. Now I've got long-term care insurance for myself going in case everything I do isn't enough and I end up needing it, but I lost weight, got reasonably fit, and have held type II diabetes at bay for myself going on 6 years now. I move more and eat less as much as I can, and what I do eat is good stuff almost always. My mom's generation just did not believe in physical activity for ladies and thought butter, cheese, ice cream, and steak were health foods. I feel angry too that Mom was never able to learn or think differently and change her health habits, which would have added years to her life and life to our years...and when I get those Omaha Steaks offers in the mail with her name or mine on them, I make a little ceremony out of tearing them up into little bitty bits and dropping them in the recycling bin.
I myself have had a ministroke and had zero sympthoms which is scary to think i had it unknown to me. they found 3 spots on the brain. This is from the stress of looking after mum and i am very worried that i may develope this "dementia" when im older.
Yes all the omegas lots of fresh air,give up smoking eat lots of antistroke foods,Blueberrys,oranges basically the same old same old eat healthy and get lots of oxigen to the brain.
I am know considering getting mum a "shrink" as she wont do as shes told and i cant do this anymore she wont listen to me and does what she likes? Im drained and can see this ending in her dying of a massive stroke or heart attack and soon as she does nothing to help herself. Diet and excercise can slow down the progression of this dementia but thats not going to happen thats why she would live longer in a NH where she would be monitored better than I can do.
Dementia and diabetes is incredibly dangerous i have to make sure shes taking the correct dosage of insulin if she takes it when im not here as she forgets it could kill her.
I am taking Krill Oil which i am finding quite good they also say virgin coconut oil a couple of tablespoons a day can stimulate brain cells.
What i fear the most is genetics both sides of my family have heart and strok ae issues BUT als or dementia is a first here with my mum as that is mainly down to her badly controlled diabetes so sad that this could have been avoided?
I still hope that its not too late for me have stopped smoking and eat all these foods that are good for the brain etc... but as my doc said you can do all this but stress can still cause a stroke? I need to find a solution now to mums care as the stress of looking after her could cause another stroke and i have to now think of my own health.
My mum had been on meds all her life which i find frightening her health issues could have easily been controlled with a good diet and excercise but she would never listen. Part of me is sad for her but another part is angry with her to have all this at 76yrs is just so sad when it could all have been avoided.
I am confused to this dementia as some people say they dont completly lose thier memory while others say they do? My mums short term is going but her longterm is better than mine?
Does anyone know just how this dementia progresses or is everyone different? My mums geriatrician said of all the dementias this one is the better one to get???
My mom had this, and the degree of atrophy on her MRI was suprisingly severe; later on she had more definite large vessel stokes, mostly posterior circulation and had vision loss and aphasia from it. We had her on anti-platelet agents but she had some resistance to them, they felt it was too dangerous to use warfarin (Coumadin) and she absolutely would not take a healthier diet. We got a little better control of her diabetes but eventually nothing helped unclog things in her brain or her heart any more and we lost her a few years ago now. But, with this type of dementia rather than Alzheimer's, as bad as it was, she always recognized us and had long term memories to draw on...wish this was not happening to you, and I wish you a better time of it than we had!