Memory issues - stroke weakness, I am in tears today. He has dementia and Alzheimer's, he had 6 strokes in 3 days in 2013 and has been in my care for over a year now. I simply feel like I cannot go on. I work full time and spend all the rest of the time with him. I feel ashamed and selfish but I am worn out.
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When you find the right care situation for him, whether it's a small board and care home, Memory Unit or Nursing Home, there will still be LOTS of caregiving and advocating for you to do. You just get to do it with a good night's sleep and some peace of mind. Be well, and post back.
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At my support group a couple of weeks ago a very wise man who had cared for his dad for many years shared these wise words, with the group of caregivers...
"You've got to take care of yourself and your relationships. At the end of the day, your parents will be gone and what will you be left with? " ~Wise Man
It's not being selfish. You cannot advocate and care for him if your cup is empty and you have nothing to give! That's burnout and it doesn't help him. I wish I could reach through this computer and give you a BUG hug... Listen to the wise words of the people on this forum and keep reaching out for help!
Don't feel guilty about finding working full time and caring for a senior stroke victim--you are one person. I kept my father home but he needed me and home health aides to make it possible and to allow me to continue working for income for the household. He had a small long term care policy and that assisted as well. Still caregiving is a lonely road to walk and the caregiver does feel overwhelmed. If caregivers are not feeling overwhelmed then they are not too in touch with the situation they find themselves.
You can only do your best. Your know your dad, his likes and dislikes, try to get him the help you both need. Be persistent with the professional medical folks who are always to busy to spend time on your issue. Don't allow them to "blow you off" as you investigate in home health care programs and nursing homes and the quality. Hang in there.
Do you have any siblings? Perhaps you can talk to them & get some temporary help until you figure out what to do.
Who takes care of him when you're working? Is he left alone? Or is there someone there with him?
You need help. Alzheimers/dementia & stroke weakness are tough to handle on their own, but you're dealing with a combination of all of them. Try home care agencies to see if Medicare/secondary insurance will pay for any of it. Discuss it with his doctor & find out what the best avenue is to handle it. It sounds like you don't have anyone else to lean on, & that is important when you're taking care of an elderly parent.
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