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hepi22 Asked September 2014

Mom with dementia is now a feces painter. What do I do?

Our mother of 92 doesn't seem to know what her feces is. She has a bowel movement anywhere in the room. Last night it was in my sewing basket. I had to throw away all my sewing and spools of thread. It was also all over the floor and she had picked it up with her hands and spread it on another bed, all over her own bed, on the furniture, on the floor (everywhere).
It was difficult to walk in to clean it all up without stepping in it. When I asked her why she did that, she just put her hand on it again and said "this? this is nothing..."
It was 2 am and I had to clean everything with bleach and put her in the shower. I'm not sure what to do. She seems to have all her bowel movements in the middle of the night. So we would have to stay up all night watching her if we don't want this to happen again. This was the worst I've had to deal with, but she does this every night on her bed and spreads it all over and on the floor.
I'm sorry to be so descriptive, but it was just something I had never seen before. I have had 6 children, but never gone through anything of the sort. The smell is what woke me up. My whole house smelled.

pamstegma Sep 2014
Buy the one piece "onesies" pajamas that button up the back, so she can't remove the pajama or the depends. Stock up on Febreze.

Countrymouse Sep 2014
Hepi, on the contrary, *thank you* for being so descriptive. Truly, it is far, far more helpful when people explain exactly what is going on. Forewarned is forearmed, and none of us knows what we might one day have to deal with. Thank you.

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Helensw Sep 2014
Hopefully you have your mom in adult diapers ALL THe time. If she doesn't know what she is doing at night, she does not know what she is doing during the day. Keep diapers on all the time. Secondly, try and have her last meal earlier, walk her and try and get her moving around if possible in the evening.. Get her to walk around during the day, if she is sedentary. NEXT, you cannot continue cleaning up messes during the night. So, do whatever it takes, whether it is getting an aid a few nights a week so that you can have a break. Secondly, you can buy from Poses.com hand/arm wraps (it is that just keeps mom from being able to bend her elbow so that she may have difficulty pulling off her pants, and diapers that she is wearing . I would put on the diapers with strong adhesive tabs, not the pullups. This problem will be resolved. Also, there are hand mitts you can purchase that put mom's hand in a round sleeve that makes it difficult for her to grab, and slide her diaper off. These are used for people who pull out their IV.s, This all works. My mom sometimes became very agitated and we used these hand/arm sleeves at times so she would not be able to pull out her feeding tube. They were not restraining aids, they were just to prevent mom from being able to grab. Of course mom will need to be check on at night, and if possible, make sure mom has lots of desitin and A&D ointment on if she has a bowel movement in the diapers. Changing a diaper is much easier than what you have been facing.

JessieBelle Sep 2014
hepi, this would be a game changer to me and I would have to look at placing my mother in a nursing facility. You can't stay up all night to watch her. I don't know if there is anything you can do to deal with the confusion she is feeling about the nighttime "gifts" she is making. I know many of us want to keep our loved ones at home, but sometimes it becomes too much to handle. This would be that point for me.

stamp4fun Sep 2014
My mother and I share a house. Seemed like a good idea when she was 73. She is now 96, hard of hearing and nearly blind. She is becoming forgetful. I sometimes think I have the weight of the world on my shoulders. A quick read of others problems makes me realize how lucky I am. I am of no help to you, other than to tell you, you must be one fantastic person!

Veronica91 Sep 2014
You have a good number of solutions. i would add with the taped depends theat you reinforce with duct tape if the jumpsuit/ mittens agitate her too much.
A lock on the door is a nice idea but probably illegal. how could the fire dept get to her? Use an alarm that sounds loudly in your room if she opens the door at night. Striip the room down to bare essentials so there is less to clean up. remove carpet and put down vinyl or ceramic. Anything on walls should be out of reach. Strip wallpaper and paint with heavy duty washable. You can do a few stencils just to break up the monotomy, but don't make it busy if she has dementia. Keep all the bedding easy care and have 2 -3 sets available. Having a comode is good but you probably need to use it all the time. if you think her medications may be adding to her confusion discuss with Dr and give early in the evening. get he up to the comode before you go to bed and if she takes a sleeping pill give her that after the last potty. Leave a light on in the room. My sympathies go out to you.

dcoach Sep 2014
Talking scheduled bathroom breaks during the day and just before bed might also help her have fewer bowel movements at night. Does she get out of bed frequently at night? If she typically only gets up to go to the bathroom then an alert/alarm device might be helpful so that you would know she was up.

mar126 Sep 2014
Look at Abena Abri form 4 series diapers. (Amazon) My husband can hold his urine all day then pee while he is sleeping. I've found these diapers to be the most absorbent, however they are expensive and a little difficult to put on. I think they are designed for fecal incontinence.

Eyerishlass Sep 2014
Is the stool what wakes your mom up in the middle of the night?

Talk to the nurse at your mom's Dr.'s office about getting your mom on a different bowel routine. It can be done but she might need some medication initially.

I can't imagine awakening to such a thing. What a mess! Just reading your post I felt so bad for you!

Stafford Sep 2014
I bought anti-strip jumpsuit - zips from top to bottom on back of suit - Vitality medical - from Amazon. Washed it umpteen times. Problem solved. Search transitional clothing.

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