My daughter was diagnosed with MS, Multiple Sclorosis 4 yrs ago at the age of 23. I have been her sole caretaker. I get so tired even though I know she is in worst pain and more exhausted than me. I feel so guilty when I do not want to go to another 4hr neuro appt. The ER is my worst nightmare. I feel my body get drained, mind numb, and again GUILT. I go on walks,swim(well maybe just bob around in pool). I do get some time alone, just very little. When I get away on a rare lone vacation, it very seems long enough. All the other 23 hrs it seems I am doing the dish, laundry,cooking, shopping,feed dog,pick up dog poop,walk dog,. is this the I want out syndrome
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Why is it draining? It's because you were put into a full time job that you weren't trained to do. Depending on your daughter's ability to do things, it's like an extension of her childhood except this child is older, taller, and weighs more than she did as a child. I know it's easy to say don't try to be superwoman, as you want to do everything you can. If possible get your daughter to help you out, if she can. It would make her feel good, too, to feel helpful.
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