Mom moved two blocks away from me one year ago and was independent, if demanding and clingy. Three months later she started getting sick and this summer had a PEG tube inserted and takes all nourishment and meds through that. The doctors refuse to do any further tests as they are satisfied with "degenerative neurological disease." She can't talk, she can't swallow, she drags her feet, falls down a lot, is intermittently incontinent, but has no dementia (never tested either). I have no POA or access to her money, she still tries to pay all her bills and I have to ask for reimbursement if I go buy her something,like her depends underwear.
I hate caring for her. If I had liked medicine, I would have gone to med school. She is not a nice person and her personality has changed, too. Her care has cost me a side job which I loved, and quite a bit of money in other ways. I resent her.
My sister helps a bit, my five brothers disn't even call her on Thanksgiving. I don't want to care for her in her house anymore, but if I dont go, no one will feed her. I don't even want to be responsible for private nurses because when things go wrong, I will be left holding the bag. I absolutely do not want to give up more of my middle age. I never had children (not by choice) so there's no paying it forward, or karma or anything to make me feel better, either.
How do I get out of this responsibility legally?
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Your mental well-being is just as important, so don't beat yourself up over this and wish her the best. Merry Christmas!
I'm not at all sure that you ever had that responsibility. If you accepted it, it was tacitly, by doing things that needed doing. I'm not sure what kind of legally recognised onus that places on you. But isn't it interesting that *you* feel responsible for her, whether or not the law agrees? I think that makes you a pretty good daughter, whatever kind of mother your mother was.
Never mind getting out of it legally, just get out of it by the shortest route that allows you to know that your mother will be ok without your involvement. Best of luck, and hugs.
If your conscience won't let you the you need to have a knock-down-drag-out family conference and lay down the facts. Spell out the responsibilities and demand support.
You don't say whether your sibs are local or distant and that will of course make a lot of difference. But Honey, someone has decided to let you be the goat and you have accepted it. It's up to you whether you continue.
Take the advice above and get her set up in a care facility.
I'm glad you are able to deal with your situation. This situation, as described, is not one that should be dealt with by non-medical professionals. At a minimum, in-home nurses should be brought in, but it really sounds like this woman needs help 24/7 and that is usually best dealt with in a nursing facility.
Please have some compassion on others in difficult circumstances and restrict your comments to those that are helpful, and leave out the bashing.
She should be in a nursing home with a PEG tube in. The hospital where my mother-in-law was told us that they would refuse to release her to any place but a skilled nursing unit if she had a PEG tube placed after she failed a swallow test. In the end we had her on hospice, which is something you should consider looking into as well.
Also, she can not talk or walk by herself without falling sometimes and therefore is a danger to herself. She needs more care than you can give her. Do not under any circumstances allow her condition to swallow up your life. It will take over and you will find you have no life left. You have already given up a job you loved and are resentful. Time to change the situation before she takes you down with her. I know this may sound heartless, but I see no reason to destroy the caregiver's life for no really good reason, especially since she really needs medical care that you can not give. Her condition is degenerative, meaning it is going to keep getting worse. She actually will be better off in a nursing home where her medical needs will be met better.
Whatever money she has should go toward her care and medical expenses. You should not be having to pay for her stuff. If she is or becomes destitute, you can apply for Medicaid. Many skilled nursing homes will take Medicare and she will be cared for just as if she is a self-pay. Start looking around and asking which is the best nursing home in your area. Then start taking steps to getting her in there so that trained nurses and doctors can be caring for her.
One warning, though, is that they will often try to drug and elderly person, especially if they are not easy to deal with. They gave my MIL Ambien with out the family's knowledge or consent because she did not go to sleep at 8:00 p.m. like they wanted her to do, and they put my father on Haldol because he stayed up late. He was always a night owl, but they labeled him as having "Sundowner's" and started drugging him for their convenience.
So always be sure you know what drugs are being given and why. You can google the drug and find out more about it if they don't give you satisfactory answers.
Contact your local agency on aging, and your local Alzheimer's association. I found that the Alzheimer's association was a huge help to us, even though my MIL did not have Alzheimer's, but another form of dementia. If you suspect there is a dementia like involved, she should have a neurological exam. If she goes to the emergency room for any reason, talk to the ER doctor about having her be transferred to a nursing home upon discharge, as her own home is not a safe discharge. The hospital can not discharge her to someplace unsafe for her and here home is unsafe, unless she is willing to hire 24 hour a day nurses to care for her, which is insanely expensive.
Go, now and contact your local Alzheimer's association (look it up at ALZ.org) and your local agency on aging. Get info. And get her to a nursing home. They can help you figure out how she's can pay for it.
The doctor has refused to write an order for hospice or skilled nursing. He won't help with a state-ordered POA since she is (mostly) right in her mind. APS is no help so far. I don't know what other doctor to talk to since they all know each other in this area. Plus, getting her there...
Yes, I need to get out from under this, and no, I don't feel any more self-absorbed than the next person, but thanks for asking. After she is gone, I still have to support myself and letting her care get in the way of my work, which her situation is affecting, won't help either of us.
Luckily she has enough pension and money saved up for a nicer skilled care facility for at least a couple of years. Trick is to get her into it. I am talking to a lawyer today to adjust a financial POA that would take effect immediately, not upon mental incapacity, and I was planning on asking our bank to provide a notary. That doesn't help to get her in a nursing home, but she is going down so rapidly, I'm worried about her being to sign her name in a few weeks.
And yes, if she goes back to the ER, which will happen eventually, that is a very good time to have her transferred.
Thank you again, I am feeling a bit better about my situation and a tiny bit more in control for now.
PS - 10 kids, four of us are still communicating with her. The other six are ignoring the whole thing. One went to Vegas for Christmas and another just sent out a breezy Christmas email talking about his trip to Spain this spring. No mention of mom at all. I wanted to scream. Instead, I just hit delete.
Blessings on all.
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