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JimL1953 Asked May 2015

How do we deal with a new behavior?

My mother in law lives with my family and has dementia. We have seen things like constant pacing, lost focus, and lack of hygiene. Over the weekend a new behavior manifested itself. We had some family over for dinner. Normally my mother in law goes to bed around seven thirty so we ate a bit earlier to accommodate her schedule. She would not go to bed and kept insisting she had things to do in the kitchen. This went on for close to two hours. My wife kept encouraging her to go to bed and my MIL would say goodnight only to appear again in the kitchen. The last time she pulled out her teeth and started washing them in the dish pan. My wife attempted to redirect her to the bathroom at which point my MIL became very agitated yelling she would wash her teeth wherever she wanted. She never gives my wife any trouble so this was an eye opener. This went on for about ten minutes. Yesterday we had another episode because she insisted she was going to do the dishes which we don't let her do because of the hygiene issue. This episode didn't get to the level of the prior night,but it is worrisome. Normally she only balks at bathing and hand washing. This new behavior has us concerned and we are not sure how to handle it as redirecting her didn't help at all. Evenings tend to be the most difficult times as my MIL is sundowning. Any suggestions ? Thanks.

ChicoCare Aug 2016
my mom is constantly causing disagreements between3 sisters, she talks negatively behind our backs. major gossiper. This causes so much tension and she wont stop. what can I do/?

JimL1953 May 2015
My mother in laws physician specializes in geriatrics. When not in her office she is attending patients at the adult day care facility. We understand behaviors will change as the dementia worsens and do the best we can to keep her schedule the same. My MIL has exhibited some anger issues over the last month though not to the extent you describe. There are issues here that I have talked at length about so I don't want to rehash them. Suffice to say it causes a great deal of stress in our home.

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sandwich42plus May 2015
I'm going to sound like a pushy gal here, but that's never stopped me before.

My mom's GP was aware of her dementia but could not help treat it properly. The GP was not trained on dementia or aging, so a lot of red flags went unnoticed and went from bad to worse. It wasn't until mom got to an actual Geriatrician that she got effective treatment. Changing doctors to a geriatric specialist made a huge difference in care. I'm just sorry mom didn't get to see one from the get-go.

The geriatric specialist had other meds to try for behaviors. Took mom off some the GP prescribed that were contraindicated for people with dementia. Changed dosages on others. Was a big help to me to understand what was going on and what to expect next.

Regular, unchanging schedules are really important for dementia patients. Eventually, every day must be like every other day. You and your wife will have to determine if you can live that way as long as it takes. The way I recognized and had to come to terms with this in my mom's situation is that small deviations to the day sent her into a temper tantrum that was unbelievable. Swearing, stomping, holding-her-breath, yelling, screaming tantrum like you'd get out of a mad toddler. Her emotional control was going, going, gone.

Her PJs were in the dryer a little bit longer than necessary, and she had a holy meltdown. Scared my teenagers to see that. We were on the way to the hardware store and she also wanted apples, so I decided to go to a different store that had everything in one place. She tried to cane me in the head while we were going over 60 on the highway. Once we got her moved into a senior facility, if I didn't get to her apartment exactly at the time she expected, she started threatening to pee on the floor in the hallway.

Dementia is going to change your MIL's personality in ways nobody will see coming, so what was the norm will no longer be possible. This site has a lot of very knowledgeable people who have been through it all, so don't be afraid to ask a lot of questions to the community.

JimL1953 May 2015
I have read all the responses and thank you for each of them. My mother in law has been seen by her doctor and they are well aware of the dementia. My wife is able to get her to bathe once or twice a week though she will balk at doing so. We do have an plan in place,but in the evenings we care for her. About six months ago we started her in adult day care three days a week and now five days a week. We have an aide that picks her up from day care while we are at work. On the weekends we watch her or the aide comes in if we are working. Early morning and nights we care for her directly. She is not on meds at the present time. My wife tried her on some and it knocked her loopy. Her blood pressure dropped and she had a lot of dizzy spells so my wife discontinued the meds after consulting with the doctor. The question on whether we expected my mother in law to go to bed with guests still there. Everyone had gone by eight that evening. This went on after the fact. My mother in law is an introvert and normally would go to bed if there are people over. When my wife has her book club once a month my mother in law will go to bed. As for the dishwashing first and foremost she never washes her hands after using the bathroom and her idea of washing dishes is to rinse them and immediately dry them and put them away. We used to let her put them in the dishwasher,but then she decided they don't need to go in the dishwasher when she did them her way. It was easier for us to do them ourselves. We will look at the videos on Youtube. I'm sure they will help. Thanks all.

sandwich42plus May 2015
Use a non-ammonia dish soap and pour 1/4 cup bleach into the dishwater (because you don't mix ammonia & bleach!) Let mom wash as much as she wants to. Especially if you can trick her into using a brush and then helping her to brush under her nails too. The soak will help get her hands cleaner than before. Dish cleaning is not the objective with this activity, but you don't have to tell mom that! She might like the way the warm water feels, so use that to your advantage.

Mom might also like to have her hands rubbed with lotion. If so, wipe her hands down with a Lysol wipe first, then maybe some moisturizing hand sanitizer, and then a hand lotion. You might have to do it to yourself first or with her at the same time so she will copy you, if she won't let you do it for her.

Look on Youtube for Teepa Snow videos. There's one with a bathing technique you might like. You put them in the shower in their clothes. Make sure the room is quite warm. Like too warm for you. Get them wet with warm water so they will want to take off their clothes. Cover with a towel any part that not being washed. This towel will be soaking wet, but warm and the person won't feel so exposed or cold. Make sure the room is brightly lit as well. Hand mom a wet washcloth to hold while you/your wife washes her. She might want to help wash herself too. If not, it keeps hands busy at least.

Good luck and let us know how it's going!

xxxxxxxx May 2015
Oh by the way. While mom was still able, we would let her load the dishwasher even though her hands are always nasty. It is a fight to get her to wash them after going to the toilet. But I figured the dishwasher was a good job for her. You might let her wash the dishes by hand and put them in the drainrack and then later you rewash them, if you don't have a dishwasher. Anything they can do to stay active is a bonus, even if you have to redo it later.

xxxxxxxx May 2015
I want to ask, the night of the dinner party, were you hoping she would go to bed while the guests were still there? My mom will stay up til midnight if there is company. Schedule be darned. She might miss something!!

However, yes, dementia progresses and the first time you see a different behavior is just another page turning in the book of dementia. Sometimes the pages turn slowly and sometimes you skip forward to the next chapter.

The answer that sandwich42plus gave is very good advice.

sandwich42plus May 2015
Dementia behaviors are part of the decline. It's only going to get worse.

You will need a lot more in your toolkit than redirection.
Sundowning may be part of it, but you will find answers working with your MIL's neurologist and geriatric doctor.

If she isn't seeing one of them or both, you need to get her seen ASAP. Depending on the type of dementia it is, treatments do exist. It may be time for MIL to have something for anxiety and sleep. DO NOT attempt over the counter meds for this though. Seniors have a very different physiology than non-seniors, just like children under 12 have pediatric meds and doses.

It's time to get some help in the home to get her bathed once a week.

What is your plan as this spirals downhill to more manic behaviors, up all night, raving, ranting, accusations, paranoia, combativeness, aggression? You need to put a plan in place right now because you cannot afford to wait for "the right time" or in the middle of a crisis.

I would suggest you talk to the area agency on aging and get a social worker assigned to come do an in-home assessment lickety split.

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