My son is 24. He has cirrhosis & hepatopulmonary syndrome. He has never been a drinker or drug user. We are currently going through the process of getting him a transplant. I live 3 hours away from UAB, the only place in Alabama that does transplants. He is currently on medicaid. And he is at home now. I work from my home also, but my work is wanting to let me go because of the time I have to take away to take care of him. If you can direct me in any way I would greatly be appreciated. We are on our last legs here.
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First, if you have to continue to take time from work, losing your job will be an issue. So if you can find ways to minimize that time, or continue to do it while caring for your son, then you address the second issue, which is loss of your job.
I would also demonstrate to your company that you're trying to find solutions. Talk to the HR person or your supervisor ask what suggestions they have for reaching a compromise, such as working part-time for awhile until the transplant has been made.
You might also call United Way helpline, 211, to ask about other sources of support if you do lose your job.
I can't speak to the Medicaid issue; I'm not that familiar with it, but I assume you have a Medicaid caseworker you could call? You can also search using the search function. Try "Medicaid, payment for care." These are the hits I got; you can check them out and might find some other helpful information:
https://www.agingcare.com/search.aspx?searchterm=Medicaid%2c+payment+for+care
Good luck!
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