I need to start discussing meds for Mom's dementia. How to provide enough info. Mom has been diagnosed with Mixed Dementia -Alzheimers and Vascular dementia. She experiences delusions (super complex), some hallucinations, wanting to go home, etc. Other times she is her former self, so it's intermittent. Even went almost completely away for like 2 months!
Mom had a stroke 6 yrs ago, right side weakness, so is bed or wheelchair bound. "Lucky" that way because she can't wander. I am her daughter and full-time caregiver. I think I'm managing OK, but so many people tell me I should start talking to doc about medications. Her doc gave me a referral to the psych pool in our network (Kaiser) but none seem to specialize in geriatric or Alz. When I go to the appt, how do I discuss symptoms in front of her when she hasnt acknowledged the disease and always reacts negatively when psychiatrist is mentioned. She imagines talk therapy. Would love to hear your suggestions.
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You've reminded me of an incident in the ER. It was April. The doctor was talking to mom about his suggested med change, handed her a scrip, shook her hand, said it was nothing serious and told her to have a good day.
Mom gave him her cutest Southern Belle smile and said, "Merry Christmas!!"
I will never forget the look he gave me. I laugh even now. I just had to share. She's been gone a year plus. I still think of her every single day.
Send a letter (many medical practices won't give out e-mail addresses to the doctor beforehand), emphasizing that to respect your mother, these issues will NOT be raised in her presence. However, you want him/her to be aware of them before the appointment, and to raise and address them then.
Or call and speak with his medical assistant or the nurse practitioner.
When you do go to the appointment, try to sit a bit behind your mother so she can't see your facial expressions, such as when you need to shake your head if she responds affirmatively to something that really requires a "no" answer, or when you need to nod "yes" when she says no.
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It was always a bit comical on the ride home, I would hear my parents in the back seat discussing their appointment and I would wonder if I was in the same room as them???
But when we were with her discharge team at the rehab center, she got very very upset when they discussed her care and condition like she wasn't even there and talked over her to me and my father. I really hated that they did that. I wanted to ask if they could consult with us privately but they made it clear that they include the patient in consults. I think that's silly because it treats them like a nonentity. How would you like it if you were in a room of people who talked to your spouse or adult child about you but you didn't think anything was wrong with you, yet they were saying you do this or that but you think you don't! then when you protest, hey I don't do that, they simply ignore you and don't believe you. Its awful. If she is ever in rehab again, I'm going to demand they do the discharge consult w/o her there. Its the kind thing to do.
I too like the Christmas in April tale - it's so sweet.
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