It is regrettably that time for Mom to go into a nursing home. Every day for the last 2 years I have said " I can't do this anymore". My mom is so sweet and I love her but someone has to have eyes on her 24/7 as she is clueless to what she is doing and has started wondering off. I hoped this day would never come but after 9 years of this, my health is failing, my kids and husband complain that they don't spend time with me anymore and I'm just exhausted. The only thing that gives me solace is the knowledge that I can spend a lot of time with her at the home to she will be around someone familiar and not be freaked out. She may not remember anything else but she does remember who her immediate family is. I feel guilty . I feel like I'm abandoning her. But the worse part came when I talked to the home yesterday where we are trying to get her admitted and they told me that it would be best for Mom if we don't visit her very often or not at all for at least the first couple of weeks. I feel very uncomfortable about that but the administrator told me that she will adjust faster the less we are around. She said If we come all the time, then Mom will keep expecting that and keep thinking she gets to go home now. I wanted to cry all the way home. Does this sound right to everyone else? I understand what they are saying and it makes sense on an intellectual level but on an emotional level it seems wrong. I feel like I know her best and should be there to help her get adjusted and help the nurses understand her. Any thoughts or advice would be appreciated
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So just hang in there. You and Mom will settle into a routine after some time passes. My advice would be not to take her anywhere for a while - it will only confuse her when she has to go back, and the hurt will start all over again. Let her settle in. Definitely go to see her as often as you feel is appropriate, take her to the cafeteria for coffee or just walk with her around the building and let her tell you about her new home.
((Hugs)) to you.
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They have told me "It's ok, you can leave now" as they see my guilt..
Peace to your heart, and dont worry about your crying and feeling that you will never adapt to this. I am still 'winging it' and its been months ((Hug))
The facility I found was recommended by a friend of a friend who's mother had Alzheimer and was in the same financial boat. She put her Mom in this home and loves it. At first they said they weren't sure they could qualify her because of her good health. But when they found she wanders and couldn't give the police any information on what her name is or her birthday or address or MY last name, they said that could be her saving grace. But because of that they will have to put her in a lock down unit and the thought of that kills me. They said that after they get her on meds and get her approved for medicaid they will try to do trial periods in the open population rooms to see if she tries to leave and if she doesn't then they can move her. They are very well staffed, clean and most importantly the nurses and aids are always smiling like they're happy. I wander if their recommendation is as much for me as it is for Mom because I haven't stopped crying and she hasn't even gone in yet. She will go in on Monday so we can have her for the holidays. Maybe they are afraid that if someone is there all the time with Mom that medicaid will think she has people that can care for her?? Or maybe it's just been their experience that patients really do settle in faster to cut the cord clean for a short period so they settle into their new routines. Whatever the reason is, I trust them. I will spend several hours the day I take her and bring a list of questions, and meet all the nurses and aids on that wing and talk to them all and get the phone number. I may wait a few days and just call the nurses everyday and ask how she's adjusting and acting. I'm really just winging it. I thought I was ready for all this and didn't realize it would hit me so hard. You can't help but to feel protective and worry about how they are feeling and doing. I'm sorry if I'm rambling and I appreciate you all so much for caring and for the advice. Merry Christmas to you all
Follow the administrator's suggestion and let Mom time adjust to the new surroundings. After that 1-2 hour visits 2x a week would be just about right. Your husband and children need you. The whole family needs to heal, and you must nurse yourself back to health.
You have had to make a really hard decision.
You cannot be certain how your mother will settle in. Hope for the best, prepare for the worst is a good rule of thumb.
The 'leave the staff in peace to help her settle' school of thought has experience on its side. I have no doubt it does help them help her adjust to the NH routine more readily. Whether or not that is *all* that matters in terms of her quality of life is a different question. Speaking for myself, I feel that the continuity that only seeing you can provide is at least as important; but do bear in mind that it won't fall to you to deal with her confusion and (possibly) distress every time you leave - that's what the staff want to avoid.
So, I don't think there's a certain, right answer. Why not see how it goes? Visit her, form good relationships with the NH team, and see if, by co-operating, you can actually help. Then if that isn't working you can always think again.
But *meanwhile* there is how *you* are going to be feeling. Once the pressure comes off, mind guilt doesn't creep in and destroy any benefit for *you* (and your family) of this huge adjustment. Be kind to yourself, remind yourself that you have done and can only do your best throughout, and do what feels right.
Real experts, by the way, won't order you around or fob you off. If you're happy with the NH you've chosen, you should be able to trust its team to work with you for the best possible outcome for your mother.
Best of luck, please let us know how you and she are getting on.
You may find this exact same thing happens! Dont sweat it, do what you want.
I found the best thing was to call and have them have a tray of lunch for me so I could eat lunch with her...Then visit a bit till the afternoon program started, then when she was situated there, I slipped her into the face to face attention of an aid- I would leave. She didnt notice i was gone.
The next home she is in now, there isnt a program going on- so I say I have to go to the bathroom, or I say "see you tomorrow!" and she happily goes about her business... i was shocked at first at her lack of reaction, but its a godsend...
Make the visits short and like i saw up there, follow your gut.
With my mom, I have been up to see her every morning and every evening - just brief visits to give her some company and address any needs that come up on a daily basis - although when my work becomes extra busy, as it is right now, those visits may only be 15-20 minutes each, and some days I only get up there once, not twice.
She lived at this nursing home for a year. Then they moved her into a new one. I wasn't there when they transferred her and they told me she was roaming the halls saying "My daughter won't be able to find me" so I think you should go with your gut and do what it tells you to do.
Personally I think the reason they give that advice is cause it makes it easier for them not the patient and their family.
I know I made a nuisance of myself when mom was in rehab. I should have stayed away and visited once a week. I became the busy body daughter who knew more about the therapy than the therapists. I blush when I think about that time....
Now if the patient has late stages of dementia and wouldn't remember if you were there from one day to the next, then it is your call on how often to visit. My Dad and his caregiver would go daily for an hour or so, so I knew Mom had a visitor so if I couldn't get over to see her that was ok.
And yes, my Mom [98] would say she wanted to go home, but to her "home" was the house where she grew up. I had to clue Dad into that so he could play along when Mom said that. Just tell Mom "maybe tomorrow", that would make her happy in that moment of time, before long she would forget.
The Staff got to know me within days, and they saw how I was interacting with Mom, thus they knew I did my homework about Mom's condition. And I would let the Staff do their job, I very rarely interfered, and the Staff appreciated that.
I would feel much more comfortable knowing everyone involved in my Mom's care..