My dad is dying and it could be soon he is in hospice. Last October when we found out he had stage 4 kidney cancer we immediately went to Florida and begged him to come home with me where I could take care of him he said no I live in Oklahoma I don't have the money to go back to Florida now that the end is near if I had the funds believe me I would be there I have made my self sick over this I don't know how to reconcile this I call him everyday and let him know we love him and today the charge nurse called and said perhaps I could call the VA so somebody can be with him so he feels supported and not alone I can't even begin to say how it devestated me to hear her say that I wanted to scream I tried to get him to come home with me Don't you think I want to be there!! I guess I needed to tell someone who might know what Iam going thru Thanks for letting me vent
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There is no peace really. Seeing your loved ones deteriorate and when they are stubborn, like mom and your family member is very difficult.
Not everyone goes peacefully, and not everyone makes peace with the death of their loved one. For me, I regret not being there. It's been 13 years and I still regret it, a lot. He was cremated before I could see his body, that might be part of why I don't feel closure. I had seen him critically ill, then he was gone.
One of my brothers that wasn't able to make it to Florida before Dad passed said he was sorry he couldn't make it, but that he would remember Dad as he was in his life. My other brother seemed unaltered by the experience.
You might do everything in your power to get there, and you may be horrified, or you may be eternally grateful that you were there. If not that you were there for him, but for yourself.
All the best. Hope
He probably knows he's dying, doesn't want to change domiciles, and wants to be comforted by what he's used to and comfortable with. So getting him to move is likely out of the question. My father feels the same way - he wants to stay in his home, regardless of what happens.
I don't recall the specific programs but I do recall seeing signs up at our local VA about programs to help a veteran remain at home. As others suggest, contact them, find out what help they can offer and implement it.
I also vaguely recall something about visiting teams but don't have the specifics, and any information is probably in my large pile of VA filing that needs to be addressed.
Service organizations can help as well; they may even have rotating visiting teams.
I like Partsmom's suggestions, especially about people who visit. WindyRidge, one of our posters here, visits hospice patients weekly.
I have some recollection about mercy flights; perhaps you could get assistance to fly back, especially toward the end. The VA might have information on this as well.
In the meantime, I would call regularly, send cards, and photos, and if you think he'll use it, arrange for Skype service so that you can communicate face to face. I've just learned of another service, apparently free, called TANGO. One of my relatives uses it to communicate with her family.
Check into the Ronald McDonald home arrangements; I believe that it used to provide reasonable or free housing for cancer patients in treatment at out-of-town facilities, but I haven't read recently on the extent of its scope.
Gilda's Club in his area of Florida may also have suggestions about other voluntary respite providers. It's a wonderful resource for anyone battling cancer.
I fully understand your concern and distress; I would want to be with any of my family in a time like this. But it's also important to respect your father's wishes and recognize that moving would probably be too traumatic for him at this stage of his life.
Treat it as such, say what you want to say to him about how much he means to you, how he's influenced your life, and make the best of this time by finding a way to accept, and know that you're accommodating, his wishes.
Also check with the hospice and the local visiting nurse association about volunteers that will visit hospice patients--usually retired people who are screened and trained. An older friend of mine did this for several years. People who can talk about "old times" are good company for him; get him to tell stories of his life and times to someone with a recorder.
He probably is better off in a place he feels is familiar and comfortable--older folks do not transplant well.
There's certainly a big need here. Someone should take this idea to the Shark Tank! You can start the ball rolling for your Dad at least. Visit your local VA, explain the situation you're in, ask if you can help and in exchange maybe someone there can contact the VA where your dad is on your behalf and get someone there to help your dad. What do you have to lose? Helping someone here who needs you will certainly make you feel batter and visa versa for the person who helps your dad. You could even swap phone numbers with your dad's "surrogate" so perhaps you two could talk about your dad, tell him some of your better stories so he/she will know something about them. If you end up helping someone here, you could contact their children to find out more about their dad/mom. What a wonderful idea this would be to get going around the world.... I can make websites, but can't do the script programming that would allow folks to sign up themselves and their parents for the swap. Hey, Aging Care...this may very well be a wonderful thing you could get this started????? I'll be the first to sign up. My brother and sister-in-law in Texas could use a stand in for me to watch my dad once in awhile so they can take a date night, and I, in turn can help out someone here where I live.
In the meantime, though, lostgaggurl, there is the the VA to get the ball rolling...I'd give your local chapter a visit or a call today. Sounds like time is of the essence for you and your father. At least you'll be doing something pro active! Best to you!