My sister, lives with Mom who has ALZ. She is still ambulatory but forgetful and somewhat passive. Mom will often go back to bed because she is unsure what to do next. The problem I have is dealing with my sister who is very bossy when it comes for me to take care of Mom. My sister is insistent doing things her way. She is often condensing and talks down to me. We once had a great relationship but noticed that it is rapidly deteriorating. Any suggestions?
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If she's too bossy while you are in her house, I'd just listen to her, smile and do it her way while she's looking. If it's in your home, I'd invite her to take some time off and take a drive, nap or shopping trip while you care for mom and do what I thought was best. I would keep in mind that she may have some helpful tips though. If she's telling you that mom can't chew certain foods well, I'd heed that info to avoid risk or if she's telling you that mom can't handle the cat, believe her and keep the cat away. If it's a safety or health issue, I'd try to see it her way.
One thing about dementia/ Alzheimer's is routine. They can thrive very nicely in their very small world but not well at all when disruption. We want to treat them to lunch, or have a nice birthday party or a big family holiday party for them.. But it's really for family.
Anything that is changed is a huge deal from them. Throwing them a big birthday party is not fun for them . They are usually at an unfamiliar place with people they know they should know but can't remember who they are . This will also include family they don't see regularly. The caregiver can use a night away but it's not fun for someone to come in all happy and loud and talkative. To mom it was just a beehive of words that don't make sense, then they get really agitated and this agitatatiin lasts for days. The can't still do the things they could like working a puzzle, playing cards asking do you remember when questions. The don't and it just upsets them - for days.... the visit with 4-5 people with 2. Small children becomes ( after 3 or 4 days of trying desperately to figure out who you are , who all the others were and who the kids were and where you were) a " horrible crowd of people with at least 20 kids running around screaming and it was just aweful. So then the caregiver try's to tell them it was just your daughter and her kids and she tells her she's crazy so one little get together turns into a week long nightmare for the caregiver.
Best book ever Planet Alzheimer's . Get it.
You loved one has moved there. If you want to be with them you have to go there.. the caregiver lives there and let me tell you if you don't live there you are lucky. Listen to them if you are gonna be around because if you don't live there you have no clue. Cut her some slack cause the rules on that planet are not the same. ask what you can do for her and don't criticize any thing . Do it her way because she knows what's best for mom. Or you move to planet Alzheimer's for a few years and let her escape. There is no excepting for your mom.
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Why I ask is that the caregiver who is around the person 24/7 has a better understanding of a person's Alzheimer's, thus certain things should be done a certain way to make it a routine for your Mom.
Your sister could be condescending because she is burning out from caring for your Mom, that is normal. Any way you could give her more time helping with Mom? Just a suggestion.
If Sister hired a caregiver to help out she would feel responsible for telling her what to do, when, and how. You are not a hired caregiver, for heavens sakes, but the woman's daughter! Still, I can kind of understand Sister's "I'm in charge" attitude.
With a little more detail about the situation, I'm sure you will get more detailed responses.
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