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SoBlessed Asked December 2016

My father who has vascular dementia and Parkinson's has recently become unable to swallow anything. How do I handle this?

Unable to swallow food or water. My father has requested that he not receive life support in any way so it is hard for me to allow his body to deteriorate until his organs fail and he dies.

Arleeda Dec 2016
Does he have an advance directive on health care, and are you his proxy? My husband had vascular dementia, and although his cognitive impairment was mild most of the time, his "executive function" was not. His advance directive said no gastric feeding tube, and when he became unable to swallow I decided to place him in a residential hospice because I couldn't care for him in the independent living facility we had moved to to be close to his children. He did not appear to be hungry, and he received regular mouth care by the staff. I spent the night there once the signs of dying set in. He was given morphine at that time. It was oh so difficult to watch him wither away, but I still believe it was the right decision for us both. Medicare pays for hospice care, but room and board was out of our pocket...so a lengthy stay would not have been possible. He lived for 3 weeks.

JessieBelle Dec 2016
SoBlessed, I am sorry that you are going through this. Pam and cwillie gave excellent advice. Some things are out of our hands, so we have to turn them over and just be there to comfort our loved one. I know it is heartbreaking, but it is part of your father's personal journey. Sending you a big cyber hug from the group.

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cwillie Dec 2016
I've done a lot of reading about what is normal at the end of life. It helps to understand that the desire for food diminishes and then disappears completely and they are not experiencing hunger.

geewiz Dec 2016
A speech therapist can do an evaluation and make some recommendations. In some instance, the person does better with thickened liquids or pureed foods. The therapist will be able to assess and offer suggestions.

pamstegma Dec 2016
You call in Hospice to help you. Don't try to tackle this alone, it's too overwhelming. Been there. Done that.

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