While being on Disability and won't qualify for additional help. A reliable source has told me I cannot quality for Medicaid because of my disability and who can assist me when assistance is needed with the income I make. There has to be someone somewhere with similar situations that has an answer. I'm asking way in advance hoping I can get prepared
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All I can tell you is that my LO was disabled, under age 65, receiving Social Security Disability check AND receiving Medicare health coverage. THEN when she got dementia, she also qualified for Medicaid Medical on top of Medicare and she also qualified for our State Program for Special Assistance that pays for Assisted Living for the disabled who need LTC.
I hope you'll get other information, especially from an expert, because there may be other programs and benefits that you may qualify for, such as reduced electric bill, reduced or waived property taxes, food stamps, etc.
A lot of times you do qualify but when you apply, somehow, they screw up their paperwork, so if you are assigned a worker at your welfare office, get on the phone with the worker and have that worker double-check the paperwork. Point out any discrepancy. For instance, they may have overlooked one or two checkboxes you checked off. Write down the names of whoever you speak with. If you get a response such as, "I can't access your paperwork," or any sort of response that indicates the person doesn't understand the forms you sent in, quietly ask for the name of the worker's supervisor, then thank the worker for his/her help and hang up. Then, wait a bit, call back and this time, ask for the supervisor directly.
So...let's hope you don't need care befor 65...or that ACA survives the next couple years...then just make sure you live in a State that has coverage.
I believe that once you qualify medically, and your assets are below $2000 you will have both Medicare (paid by Medicaid) and Medicaid. It's called Dual Eligible. This would be probably in a nursing home because the coverage doesn't fill more than a couple hours a week in home.