I've been my mom's sole caregiver for about 10 years. At first it was simply paying her bills and checking in on her every month or so. She lived in senior housing about 400 miles away and was doing quite well there. She fell and broke her hip a little over 2 years ago and things went downhill from there. She moved in with me about a little over a year ago and it's been 24/7 since then. She had a stroke just before Christmas and came back home in January. It's been even worse since then. The few things she could do for herself she couldn't or wouldn't do anymore. I'm so burned out I'm having a hard time even being civil let alone kind. I lose it with her every day after I've promised myself I wouldn't the day before. I've never been physical with her, but I can't seem to control my mouth. I am so full of resentment it's awful. I resent that I can have no life after working so hard for so many years to be able to enjoy retirement (she moved in with me 2 months after I retired). I hate myself for being this way and wanting to put her in a memory care facility against her wishes, but I'm afraid. Afraid that I will have a breakdown and then she will have noone to advocate for her or worse; that I will have a breakdown and hurt her.
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I remember my Dad hinting around that I should retire so I could drive him and my Mom to more places during the day.... oh fun. So I asked my Dad if he gave up his career to take care of his parents or Mom's parents.... I knew his answer would be "no", and he never asked again.
Emotionally I did crash and burn several times over the weight of helping my parents even though they lived under their own roof, and I lived under my own roof. I hated to drive to a point where I was getting major panic attacks during those 7 years. I tried to explain that to my parents, and their answer was "then who would drive us???" They refused taxis and senior mini bus.
After my Mom had passed at 98, Dad quickly wanted to move into Assisted Living/Memory Care. Dad loved the place, he was happy as a clam being around more people closer to his own age :)
My mom was very dependent on us. My dad had done everything for her and she expected us to do the same.We had no privacy. She expected us to cook and clean for her and entertain her. She had a large room with a TV but preferred to be in our family room watching her old TV shows all day. It effected the relationship I had with my husband and my high school son. They preferred to be somewhere else. I grew very resentful. I was angry at my siblings who lived far away for their lack of support. I was angry with my mom who wouldn't change and become more independent. But most of all I felt guilty because I felt so much resentment towards her. I woke up every day wanting to be nicer and more compassionate. I was a hospice volunteer so surely I had it in me. Every night I went to bed frustrated.
I soon began to have health problems. In the mornings my hands were in such pain I couldn't open them. They would be painfully cramped. The doctor thought I had carpal tunnel causing pain in my wrists,forearms and elbows. I wore braces on my wrists whenever I used my computer. I was constantly sick with sinus infections. The list goes on.
Miraculously soon after my mom moved out I was cured of all my health problems:)
My mom has been in independent living for two years now. She is in a very nice continuing care facility with hundreds of activities and trips. She still sits and watches TV all day and her only activity is dressing up to go down for dinner. I've resigned myself to the fact that she isn't going to get involved in activities and that's her choice. I visit her once or twice a week and take her to lunch and the grocery store. I take her to doctors appointments and am available whenever she needs me. She is getting more and more forgetful and repeating herself so I know we probably have a new journey ahead of us. I will be there for her, advocate for her and make sure she is well taken care of. But I will not move her back into my home.
Now remember, Guilt and Sorrow, when my mom lived with me she was capable of caring for herself. My stress was nowhere near what you must have with your mom. It's so important that you take care of yourself. The feelings of resentment will not go away. The stress will cause multiple problems to your health. Do not feel guilty if you can not care for her at home. She'd be better off in a memory care facility with a healthy daughter advocating for her and visiting her because she wants to, not because she feels obligated. I always ask myself "what would I want my kids to do if I get like this?" The answer is always "do not move me in with you, even if when the time comes I put a guilt trip on you. It's not me talking it's the dementia."
I've made this clear to all my kids and I've even put it in writing.
It's time to take care of yourself and live your life. You worked and now it's time to enjoy retirement. You can do that and still be a good daughter!
I can't tell you how much and how closely I sympathise with that horrible turmoil of emotions. "Hard time being civil let alone kind" - absolutely.
The trouble is, it's so hard to make a good, balanced plan for what to do next when you're absolutely knackered and demoralised. In the immediate future, can you at least get more hands to the pumps at home so that you can get adequate rest and the occasional respite break?
She lives alone at age 90-1/2 in her one-story condo. She can't see out of one eye, has balance problems, neuropathy in her legs and feet, and the beginnings of cognitive decline. She is obsessive and controlling.
Of course my three golden brothers are states away.
Do you have any sibs?
I watch the caregivers who are with Mom while I am at work and I know I could never be that kind and patient. Some people are just wired like that. I am not. It is no different that people knowing that they could never be a fireman and run into a burning building or be a school teacher and help kids learn all day. It does not make us "bad caregivers" bad people, just different. There is no dishonor in admitting that this is not for you.
It is also your choice if you decide to stick it out and suck up the anger and resentment. That is what I am doing for now but I am open to reevaluate later if I can't take it anymore. Find a way to absolve yourself of the guilt if you choose to let others provide her care. And definitely do that before you lose your mind.
And, I do know I am very fortunate to work 40 hours a week outside the home and let others take care of her for part of the day. Not everyone gets that break.
I was one of those caregivers that I just couldn't do hands-on care, but I was great at doing logistical caregiving. My hat is off to those who can do both. I never had children, so I didn't a chance to learn how to reason with a 3 year old to use later in life to reason with a 93 year old.
My Dad chose to move into Independent Living/Assisted Living and he loved it there. He was happy as a clam. He was so surprised that this place was like a fancy hotel, with a dining room with cloth table cloths, etc. He was so glad to be around people who would help him whenever he called.
Depending on your Mom's age, she may still remembers nursing homes as being asylums, not realizing how different such places are today. Take Mom on a tour and a free lunch, say you are checking out places for a friend.