from the ALS website http://als-ny.org/pdf/ps/Attendant%20Call.pdf
In the early stages, we had a 'dinner bell' for my friend to use. As time passed, she wasn't able to use it but it did work early on. Accept help from those who offer it. Make a list of things others can do -- grocery shopping, respite care for an hour or two so you can stay sane, church volunteers, whatever. Have you looked at caringbridge dot org? You list things that need to be done and your network, signs up to do what they can. It can be a huge help. This is a challenging diagnosis --Good luck.
If you want a emergency button for if they're by themselves, we use Bay Alarm Medical. If anything happens, they can talk to the person through their button. They're is a giant help button that you plug into a land line, and they will contact either emergency contacts or can contact ems directly. The bottoms have fall detection, and when you push the button, you'll know. A loud voice comes on through the counter help button saying Calling For Help. The first time we did it, my neighbors heard it. You also get a little paper that you keep on the fridge with all their medical information, so instead of rushing around and forgetting something, it's all right there.
I'm not sure about ALS, but I've taken care of Alzheimer's, cancer, fibromyalgia, and pulmonary fibrosis, and the best thing I did that I would recommend to any caregiver is to get baby monitor. You can carry it around with you on a belt and here when they need something. I got the safety 1st one, It comes with the one you keep in the room, and two that you can carry around and can attach to your belt. It's about $20. There's no monthly fees, you just need batteries. It lasts A LONG time. I've had mine for about a year now, and it's still sounds as good as the day I got it.
It depends on what you want the device to do, a simple wireless doorbell will summon helpers who are in the same house, you need something connected to the phone system to call beyond that. My mother had Philips Lifeline for many years, it connects you to a call centre operator and will summon a list of contacts before resorting to calling EMS, (there were options for fall detection or scheduled check ins too) but you might feel it is too pricey. A less expensive option would be a simple button that calls 911, something you purchase so there are no monthly fees.
I Know they need 24 hr care but ALS assoc. does talk about devices to call their caregiver. I'm by myself. I clean cook do laundry etc. no help. Please don't tell me something I already know.
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http://als-ny.org/pdf/ps/Attendant%20Call.pdf
In the early stages, we had a 'dinner bell' for my friend to use. As time passed, she wasn't able to use it but it did work early on.
Accept help from those who offer it. Make a list of things others can do -- grocery shopping, respite care for an hour or two so you can stay sane, church volunteers, whatever. Have you looked at caringbridge dot org? You list things that need to be done and your network, signs up to do what they can. It can be a huge help. This is a challenging diagnosis --Good luck.
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