My husband's many health issues have kept him in a cycle of home, hospital, rehab, hospital and back to rehab for over five months. In that time, he has lost more than 100 lbs and that includes muscle mass. It is very difficult for him to do anything major, including getting in and out of bed to a wheelchair or into the car or anything else, really.
He does as much rehab as he is capable of, but when he asks to stop, they tell him he hasn't done enough and they're going to put him down as refusing to work out, even though he hasn't.
In your experience, does it do any good to complain to management? I'm at my wit's end, because he is in NO shape to come home and I don't know what to do for him. Advice greatly appreciated.
21 Answers
Helpful Newest
First Oldest
First
there is NEVER a good reason to threaten any patient! NEVER!!
it is true, Medicare will refuse to pay if no improvement is logged. but this was very carefully explained to us - and they still didn't push my husband beyond his limits. my dh was encouraged to reach further than he had thought possible and praised all the way.
they went so far as to offer to help him after the Medicare ran out - for a nominal fee ($5), I can bring him in twice a week and they will work with him. Yes, the $5 adds up - but it's still cheaper than another hospital stay and way cheaper than a funeral.
don't ever take abuse lying down.
there is NEVER a good reason to threaten any patient! NEVER!!
it is true, Medicare will refuse to pay if no improvement is logged. but this was very carefully explained to us - and they still didn't push my husband beyond his limits. my dh was encouraged to reach further than he had thought possible and praised all the way.
they went so far as to offer to help him after the Medicare ran out - for a nominal fee ($5), I can bring him in twice a week and they will work with him. Yes, the $5 adds up - but it's still cheaper than another hospital stay and way cheaper than a funeral.
don't ever take abuse lying down.
ADVERTISEMENT
They MUST have "x" amount of time, and "Z" amount of measurable improvements. (daily and weekly)
For some patients there is a requirement by Medicare that they MUST improve by ''X" percent/amount every 7 days - BUT If they improve TOO much or NOT enough - continued physical therapy is denied, and the patient can be forced to leave the rehab facility or else private pay for the rehab facility and/or treatments.
See if that might be the issue here, and how you can work with them. (sometimes massage, etc can be counted as part of the physical therapy session, and be conducive to healing for the patient).
It is a shame that the paperwork applies a 'one size fits all' mentality to physical therapy/rehab.
I take my DH to PT (he's 95) and they are so compassionate and understanding with him. Do not allow anyone to make your DH feel like a loser - fight for his rights and yell at the Therapist if you must - but do not allow them to chastise him for his limits. I'm sure he is doing the best he can. At least he's trying!
Yes! Over the years I have complained to management in hospitals too - you have to demand respect - you can't just expect it.
Best of luck to you, dear one.
Was the patient previously injured? If so, it'll probably take a while for him to heal from that injury. Physical therapy may actually have to wait a while until he feels ready to pursue physical therapy. Depending on the injury will depend on whether or not physical therapy is appropriate if this happens to be an injury
You should be having regular care conferences. The therapist and head nurse should be there. They will tell u where he is in his therapy. Tell them your concerns and how he feels. Sometimes they may have to push. Medicare will allow him three times to refuse therapy after that they will not pay. Like said, if he shows no progress or has hit his plateau, Medicare will not pay. He will then be discharged. Did the therapist call u for a baseline? Because, their previous records don't always follow. Just what was done at his last hospital visit. Ex: Mom was in for a UTI, rehab was recommended to get her strength back. Her previously broken shoulder and her neuropathy had nothing to do with that stay so the info was not sent on. Also, she has no side vision on the left. These r things the therapist should know. Makes a difference in how the therapy is done. Believe me, the right hand doesn't know what the left hand is doing. If u haven't had a conference then u need to ask for one. You have a right to speak to the doctor in charge of his care and get ur husbands doctors involved.
I know we are coming to the end of his therapy with Medicare. It is not his fault or the therapists' fault. The therapy department at rehab centers have a strict guideline they must follow. Patients are tested and evaluated constantly and a therapist cannot decide on their own to throw someone out. If a patient does not meet the criteria, I.e. making visible progress, there is little the therapists can continue to do. Call a meeting with the facility to make sure you understand what their plans are for your hubby.
He lost weight because he has had several ileuses (compacted bowels), bad enough in many cases that everything backed up to the point that he was vomiting it out. He was on liquids and even NPO for long stretches of time. Finally, the last group of doctors did more than treat symptoms and they seem to have found the right combination of medicines. He's still afraid to eat too much, even though he knows he needs proteins and needs quantity to gain weight and muscle mass back. He doesn't want to get backed up again, and I kind of understand that.
But even though he can't stand right now and his shoulders are in pain constantly (they put lidocaine patches on them to alleviate the pain), the therapists expect him to do things he can't, and then he just gives up. Also, sometimes the medicines for the compaction work too well, and he spends the morning essentially having the runs and I'd guess we all know how enervating that can be.
I decided after I posted this to email the medical administrator and ask him/her to look at things to see if it can be resolved. So we're working on it. The social worker talked to my husband and he is going to try harder. Thanks for chipping in. I appreciate it.