I tried finding the answer on here but no answer fit quite right. My grandfather has dementia and his wife of 67 years passed away 5 months ago. The first couple of months he knew she was gone, accepted it and talked about good memories and how he misses her. However, now he doesn't believe she is gone. He thinks that because we moved her bed from the dining room that she saw that and left him to go into a nursing home for better care. He has now been sending letters to all the nursing homes in NH and Maine addressed to his wife asking her to come home. He still has his drivers license and we are worried that he will begin going to the nursing homes when my grandmother doesn't respond to his letters. We tried explaining to him that she had passed away whenever he would ask where she was, but now he just won't believe it. He even says she was just here this morning. We switched our approach to telling him lies. "She is at the store" etc. but that has only fueled the fire and he is now always worried that she hasn't made it home yet. He even had us move her bed from upstairs back into the dining room so if she came to visit again she would see it was back in place and decide to stay. I know there may be no real solution to this but we're looking for help and advice any where we can. Thank you!
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Just an idea don't know if it would work or not.
When I was extremely ill in hospital i went to visit my mother in what I assumed was Heaven. She was not too pleased to see me. I also saw one of my aunts smiling happily out in the sun with other family member but she did not speak to me
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(1) getting out the grief and feelings however he can by sharing how he feels is critically important; ask him "if you could tell xxx now, what would you say to her?"
(2) many of us in very sound mind have challenges accepting death, even though we know it. It is a difficult reality for all of us - and so much more complicated by dementia;
(3) I certainly agree with the car concern-if need be, get MD letter indicating he is unable to drive and alert the local police department.
(4) Get him to talk about his wife as much as possible while also re-directing his attention, both verbally and physically (get him to day-care or get volunteers in to talk to him).
(5) I am no expert in dementia issues - I know some people go to the darkness and hallucinate. I would ask MD about (more) medication to help with this aspect of his behavior; and
(6) Aspects of some of the above may work some of the time. Try to not get discouraged realizing that the key is always a combination lock to open that door, and the combination keeps changing. (I used this image myself to lose/maintain 70+ lbs - and that is another story.
Was there an obit in your paper? - if so then frame it so you can show him when he is like that - this might be enough - if not do it now - he won't see the date on it
What about getting him to use 'her' bed in dining room? - say now that she is gone she probably would like him to have it, to be closer together - try telling him that anytime he dreams of her then she is sending her love to him - give him something to hold onto where she is concerned - if she had a favourite afghan place it on the bed so he can sleep under it & dream of her & their love together
For about a year after my father died, I would be in store and think, "I wonder if that jigsaw puzzle would appeal to Dad. ... Oh." I knew he was dead. But a part of me still acted, momentarily, as if he weren't. And the same thing happened after my mother died. I'd check emails expecting to see one from the sister who visited the nursing home that day. Oh. No one visits now. And in stores I would think "That looks like a good door decoration for Ma. ... Oh."
My husband died in our bedroom, holding my hand, almost 5 years ago. Certainly I knew and accepted that he was dead. But for a long time my ears perked up at every noise I heard, listening to see if my husband needed help. I think that gradually tapered off over a year.
Other people have told me of similar experiences.
I think many of us accept the death when it happens but need more time to fully assimilate all that this means. I can only guess how terribly difficult this must be for people whose minds aren't fully functioning.
Poor Grandfather. My heart really goes out to him! He is in mourning and can't even process those complex feelings.
Are there scrapbooks or shoeboxes full of family photographs. Sitting with him and reviewing the oldest ones may be comforting to him. (Not necessarily in response to a question about his late wife.) My mother loved going through old albums, even though she couldn't remember the events. It was comforting, I guess, to realize that once she had an active and fun relationship with her sister, that she was a good mother, etc. The scrapbooks were evidence of who she was.
When you are in mourning, it is good to hear kind memories of the deceased. Perhaps your family could share memories with Grandfather from time to time. After all, you are in mourning too (on a different level), and reminiscing would be good for all of you.
Grammy will be home later tends to work well.
For whatever reasons, your grandfather needs to still have your grandmother - so let him. It does no harm. In the long-run, it should keep him calmer and that is a good thing.
If you have pictures of your grandmother, place them where he can see them.
My dad knew my mother had passed, but I told him to go ahead and talk to her - it does no harm. It's really comforting to say goodnight to a person you love, even if they're no longer there. (I did it whenever my DH was away - I just said goodnight, I love you, as if he was also in the bed. Fell asleep easily that way. And yes, I knew he wasn't there - so what.)
About driving: you say he has his license, but does he actually drive today? Many elders continue to have their license, even when they have stopped driving. That question needs to be separate from the idea that he would go to nursing homes to seek his wife - if he actually doesn't drive, he would find a reason not to go, if he actually began planning to do so. And if he does still drive, that's a question in itself, how dangerous is he, does he just drive in mornings locally, which may be OK - that's an issue, and elders resist but eventually come to accept that they may cause an accident by continuing to drive, so they finally stop driving.
If he does drive safely and uses the car, then it is no big deal if he shows up at a nursing home looking for his wife - you would get a phonecall, and would come and get him - people who work there are perfectly familiar with elders with memory issues.
Sounds like you had a close family, good for you, and for doing your best in a time of loss and changes. You have this time to grieve and remember and celebrate together.
My mother tended to have a much tighter hold on the "bad" things that happened. Taking him to the cemetery and seeing a grave marker might be "bad" enough to stick with him. Plus it is concrete in that he experiences it with numerous senses; touch, sight, smell. And he would experience it for as long as he is there...5 minutes? A half hour? That may make more of an impression than a thirty second discussion that only involves hearing. If she was cremated and no stone exists, you could get a name plate with dates etc. put on her urn so he can see it and touch it.
Take away the keys your Grandpa should not be driving.
This could be a great liability for him and possibly you.
Disable the car, sell it, hide the keys, what ever you have to do do it to protect you, him and the rest of the drivers and pedestrians in the surrounding area.
No to how to deal with the rest of the problem.
Can you intercept the letters?
If so can you write back, as your Grandma and tell him everything is well, you miss him and that he should not worry. Tell him she is not permitted visitors at this point but she will continue to write to him.
Personally I would not do this but it is unusual that a person with dementia is this persistent and does not accept the "usual" she has gone to the store, she is at the doctors, and what ever else is told to placate the one asking the questions.
Also depending on how advanced your Grandpa is you might want to consider moving his bed downstairs. Stairs can be a problem and if he begins wandering at night you do not want him falling down the stairs. A broken hip is a difficult recovery for someone with dementia, the surgery is a set back and rehab is difficult if they can not follow directions easily.
I sort of have to laugh your Grandpa sounds like tough, stubborn, New England Stock! About the only thing more stubborn for me (also from New England) was the "Stubborn Pigheaded German" I was married to for over 30 years!
I would say you have to just keep experimenting with what you say and do. On one hand, keep experimenting with the fiblets (the "little lies").
On the other hand, see if there's a way you can acknowledge his thinking about her and then redirect his attention. For instance, you could try saying "You're thinking of her? You wish she were here?" and then ask him to tell you more about her and how they met. Or maybe redirect him towards doing some benign activity that she would appreciate, like something in the garden or house.
In general, if you occupy him enough with physical and social activities, he might end up less anxious about his late wife's whereabouts.
On another front: if he is that forgetful, then I would be a little concerned about him continuing to drive. So at some point, your family may want to think about how to approach the issue of his stopping driving. The Alzheimer's Association has some good handouts on this topic:
https://www.alz.org/national/documents/topicsheet_driving.pdf
http://www.alz.org/documents_custom/statements/Driving_and_Dementia.pdf
Good luck!